Projects

Phoenix Rising is committed to being a leader in online patient support. As such we’re involved in a number of projects to enhance the health and well-being of people with ME/CFS.

Projects Proposed/Underway

  • An Improved Website - integrated with a Wiki and the Forums and all the (appropriate) bells and whistles WordPress can provide.
  • Community Rising’  Program - will empower local CFS communities by allowing people to locate themselves on a Google map, review physicians in their area, identify resources, get assistance…and more…
  • Rate a Practitioner Program - will help patients find the best practitioners…and help us learn who treats ME/CFS best….

Future Projects 

  • Community Marketplace -  support the community by buying products and services from people with ME/CFS
  • Project Incubator - a place where people can list their skills and find or create projects and dust off their skills and get into action
  • Online Dating Program - will reduce the isolation that many in the ME/CFS community experience

Finished Projects

  •  New Forum Package Installed – On May 11, 2012 Phoenix Rising successfully moved to a new Forum package called ‘Xenforo’ with new features and a codebase we can use to build for the future. Thanks to Adin, Mark, Will, Kina and Svet for all your hard work.  Check it out here. 

Interested in moving these projects along? Check out our Donation and/or Volunteering pages.

7 comments

{ 7 comments… read them below or add one }

Toby Vokal March 8, 2012 at 12:32 pm

Hi,

I was just wondering if your organization is planning anything for May 12th. It’s the 20th anniversary of ME/CFS awareness day. Please let me know.

Thanks,
Toby

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Cort March 8, 2012 at 4:00 pm

Hi Toby, Other than an acknowledgement and a review of the 20 years of CFS we don’t have anything specific. Any ideas?

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Toby Vokal March 9, 2012 at 12:39 pm

Hi Cort,

Is there a place in your forums where people could write in their ideas. I personally would like to see us as a community to take the advise of MECFS Alert episode 20. That is contacting 535 congressperson and get one or hopefully more to take up the cause. I would also welcome ideas on how to do that.

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Cort March 9, 2012 at 12:53 pm

We could do a thread in the advocacy section and on the Front page. We could then do a poll and see which idea engenders the most interest. Then we could try to implement it.

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Toby Vokal March 9, 2012 at 1:56 pm

Thanks Cort. That would be awesome! Please let me know when it launches so I can follow it.

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RichardII May 13, 2012 at 8:47 pm

Hi Cort

Well done on the new site, looks great.

I emailed you previously about whether you think there is much value in creating visual representations of CFS et al?

Based on the idea that keeping track of so much research on so many disparate bodily systems requires superhuman brainpower that not many of us have.

I guess I am thinking of a visual wiki to explore relationships and keep track of summarized research. Drill down capability would be a useful feature.

If we have such a repository where we can combine our efforts then a more definite picture might arise allowing other researchers to see connections that were not previously apparent. There are so many of us doing this work in isolation – what a waste! I have used Visio but there are web based programs available.

I have created a couple of small diagrams based around CMV and HHV6 that I can send you. If you want to have a look then please send me your new? email.

I am not sure how good an idea this is, I will be interested in your input.

Hope you are well
Richard

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Cort May 14, 2012 at 3:55 am

Hi Richard…My apologies! I must have missed your email. Visual diagrams sound like a fantastic idea. I think good visuals are a key to communication, particularly on the web. Could you please send them to cort@phoenixrising.me. Thanks!

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