The list of our community’s challenges is endless: a severely disabling disease with little recognition, no approved treatments, funding at the bottom of the pile, public and medical ignorance, a spectacular lack of specialists…
We need to act to get what we need, and we need to act together and make the most of our numbers.
And more than one million Americans, 250,000 Britons, and 400,000 Canadians and Australians have ME/CFS. Worldwide prevalence is at least 17 million.
We have the numbers. And although many of us are too sick for conventional advocacy in the physical world, the internet makes effective mass-campaigning possible.
Join the growing force of ME/CFS patients acting together to change the medical landscape!
Check out our pages on:
- Current campaigns: find out what you can do right now
- #MEAction platform: this powerful online platform for mass advocacy was designed for you
- How to comment on online news stories: a clever way to use media stories on ME/CFS to get your own message out
- How to write a letter to the editor: top tips for getting your views published
- How to write a petition: some useful advice about this potentially powerful tool
- How to demonstrate: an experienced ME/CFS demonstrator explains how
- How to speak at CFSAC: for those who want to address this important US government advisory committee (open to non-US patients too)
Let’s take action!