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Advocacy and campaigning

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The list of our community’s challenges is endless: a severely disabling disease with little recognition, no approved treatments, funding at the bottom of the pile, public and medical ignorance, a spectacular lack of specialists…

We need to act to get what we need, and we need to act together and make the most of our numbers.

And more than one million Americans, 250,000 Britons, and 400,000 Canadians and Australians have ME/CFS. Worldwide prevalence is at least 17 million.

We have the numbers. And although many of us are too sick for conventional advocacy in the physical world, the internet makes effective mass-campaigning possible.

Join the growing force of ME/CFS patients acting together to change the medical landscape!

Check out our pages on:

Let’s take action!

Our friendly, international forum is the busiest in the world with 400 new posts every day and over 13,000 members - join in!