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Chasing the Money: Chase Community Giving Contest to Start Soon

Posted by Cort Johnson

 

The Chase Community Giving Contest gives ME/CFS a chance at winning a significant amount of money

The Chase Community Giving Contest for non-profits will run from Sept 6th-19th.  In the past two years Phoenix Rising has poured time and resources into helping other ME/CFS orgs win over $170,000 and now, for the first time, we’re in ‘the chase’ (:)) and we’re excited to be there. The annual Chase contest provides a rare opportunity for ME/CFS organizations to pick up some easy money. 

Some History

2011 – Three ME/CFS non-profits; the IACFS/ME,  the ME/CFS KnowledgeCenter,  and the Mass CFIDS Association won 20k  in a contest that matched smaller non-profits against each other.

The CFIDS Association of America won 25k and the Whittemore Peterson Institute won over 50K in a contest that matched larger non-profits against each other

2010 – PANDORA wins 25K in the first Chase contest in which all the non-profits, small and large, were lumped together…the top 50 win and PANDORA just squeaks it out in the last week.

ME/CFS Organizations in Chase 2012

In 2012 we know of at least five ME/CFS organizations that are ready to go and we’ll update that number as we go along. We will feature each of these in future blogs.

Each ME/CFS non-profit in this contest realistically has  the opportunity to win  ten thousand dollars. That’s alot of money to a ME/CFS non-profit with low overhead and it can go a long, long way. Phoenix Rising, for instance, has several projects, each of which would cost less than that, which could make a difference.  Some of them include a

  • Rate a Practitioner program – to help ME/CFS patients save time, money and improve their health by finding good doctors and avoiding bad ones
  • Community Rising program – to break up the isolation and connect people in their local communities, provide avenues for assistance,  reviews of local clinics and physicians, etc.
  • Making the Forums More Accessible to the Visually Impaired – upgrading the Forums so that as many as possible can participate.

Chase Rules – Simplified :)

Here’s some basic information on the contest…

Potential Winnings 

  • @$500 – Simply by accepting the nomination and providing Chase with suitable documents –  each non-profit will win maybe $500 ($2.5 million/# of charities in the contest).
  • $10,000 – bottom 100 charities – based on past history this is where ME/CFS organizations will probably place.
  • $20,000 – next 50
  • $50, 000 – next 35
  • $100,000 – next 10
  • $250,000 – top vote getter

Once an organization enters and wins the contest it cannot enter again; if it enters and loses it can enter the contest next year (provided there is a contest).

Two Different Types of Voters..

  • Chase Customers – This year Chase customers without a Facebook account can vote on www.Chasegiving.com……for two organizations…
  • Facebook – anyone on Facebook who ‘allows access’ to the Chase Giving Application will get two votes for two organizations..plus Facebook users can earn a bonus vote
  • Chase Customers and Facebook Users – can vote a maximum of five times; three for one organization….

Strategy!  Request For Volunteers

With hundreds of non-profits expected to be in the contest strategy is going to be important.   We need help to organize the vote  and to devise a strategy for getting the all important “Bonus Votes”.  If you’d like to volunteer to help Phoenix Rising and other organizations win money please send me an email at cort@phoenixrising.me  (or message me in the Forums).

For the most part the contest is simple and we’ll go over it in more detail in future posts. For now

  1. Facebook  – If you have a Facebook account you can vote at least twice…
  2. Chase customers – if you bank with Chase you can vote twice.
  3. Bonus Vote – The Bonus Vote will very likely be the key to ME/CFS non-profits winning because getting one is fairly complicated – which means that most groups probably won’t do it well – which means that if we master the Bonus vote  our chances of winning go up dramatically. The Bonus vote potentially is a third of the entire vote.

Bonus Vote Strategy

We’re looking for ideas on how best to get as many Bonus Votes as we can.  We’d like to coordinate Bonus Votes for all the ME/CFS orgs on Phoenix Rising…its going to take some work to puzzle out best to do this…

In order to get a Bonus vote someone must allow ‘access’ to the Chase contest and share content from the Chase site (ie an organizations profile) on their newsfeed/Timeline. Then when a Facebook Friend uses that link to go to Chase Community and vote a bonus vote is given to the person who posted the link.

More simply it appears that if you put a Chase Profile for Phoenix Rising or another group on your Timeline or Newsfeed and then have a friend vote for them on Facebook you’ll get a bonus vote to use on any organization.

Here are the Official Bonus Vote Rules

A Facebook user can earn one (1) bonus vote by allowing “Access” and sharing any content from the Chase Community Giving application to his/her Facebook newsfeed or timeline.

If one of the Facebook users’ Facebook Friends links back to the Chase Community Giving Application and casts a vote, the original Facebook user will earn one (1) bonus vote.

The bonus vote earned by the original Facebook user can only be cast once he/she has cast his/her two (2) Standard Facebook Votes.

The bonus vote may be cast for any Eligible Nominated Charity, including an Eligible Nominated Charity for which the Facebook user has already cast a Standard Facebook Vote.

Eligible Voters must return to his/her Facebook page to find out whether he/she has earned a bonus vote as it will be displayed both in the header as well as in the “apps and games” link.

There is a limit of one (1) bonus vote earned per Eligible Voter.

This is really complicated but it appears that voting in steps would work. We need as many eyes on this as possible. One idea is below.

One idea 

(1) First we  concentrate on getting the Chase Profiles from ME/CFS organizations onto the timelines/newsfeeds of ME/CFS supporters

(2) Then we have friends of that person (or people who are willing to friend them on Facebook) to click on that profile and  vote…

(3) Above all we don’t want people to go out and use their two votes without first going to another persons Facebook and clicking on their Timeline or Newsfeed ad…because that is how we get the Bonus Votes..so

We want to get as many people as possible to post Chase profiles on their Timelines first and THEN start voting for organizations….

Since each person only gets one bonus vote we want to make sure that each Timeline or Newsfeed ‘ad’ on each person’s Facebook site gets voted on only once.  Therefore…

We probably want to ask everyone who’s going to vote to contact us if a) they are going to vote and b) when they post a profile on their Timeline/Newsfeed…..Then we will team them up with another person….ensuring that each profile gets voted on only once.

But…..there is this issue….

 The bonus vote earned by the original Facebook user can only be cast once he/she has cast his/her two (2) Standard Facebook Votes.”
The Bonus Vote can be used only after the two votes allotted have been cast but can it be earned before casting votes? The above statement does not address that issue.

{ 92 comments… add one }

  • frenchtulip September 1, 2012, 11:04 am

    Word was received from OFFER that their paperwork was submitted on Aug. 30th. Enterovirus Foundation was hoping to get everything in order by Aug. 30th. So there should be two more in the running.

  • Cort September 1, 2012, 11:09 am

    Good – two good organizations – thanks.

  • frenchtulip September 1, 2012, 7:27 pm

    I should mention that CFCCC also expressed interest at the beginning of Aug. I haven't heard anything further, so I'm not sure if they plan to compete.

  • Kati September 1, 2012, 8:40 pm

    Cort, you forgot to mention that WPI won over 100 000$ in 2011, was it a voluntary omission, because it was a big one!

    We cannot pretend that it didn't happen. I am very glad they won and they won because of all of us that voted for them.

  • frenchtulip September 1, 2012, 10:13 pm

    If I'm remembering correctly, PANDORA won $20,000 in 2010. In 2011, in the contest for larger org's, The CFIDS Assn. won $25,000 and the WPI won $25,000 (plus $40,000 for finishing high on the leader board). In 2011, in the contest for smaller org's with operating expenses under $1,000,000, IACFS/ME, the CFS Knowledge Center, and Massachusetts CFIDS and FM each won $25,000. So in Chase we have won $185,000, I think. (WPI also won $100,000 in Vivint in 2011.)

  • Cort September 2, 2012, 5:24 am

    OMG – you're right Kati…Completely involuntary. I'm glad they won as well….:) I'll get that in there. I stopped by the WPI last year and talked with Vincent Lombardi…I think we'll hear some good stuff from them in the future…

  • justinreilly September 2, 2012, 12:00 pm

    Cort, I think it's a great idea to match up people for the bonus votes.

    I think we should try to gt everyone to vote for two orgs in order to try to get more money for them, unless that's a hopeless goal.

    My two cents is that i am willing to vote for PR, but I'd really like the money to go to a charitable or advocacy project of PRs or be forwarded on to good research rather than give to you, Cort. I'm sorry if that's harsh, but it's just a matter of priorities of where I'd like our very limited funds to go considering the great number of very important unfunded things we need to do as a community.

    btw, it's the Wisconsin ME/CFS association, not "chronic fatigue" and it's rocky mountain CFS/ME assn.

  • justinreilly September 2, 2012, 12:00 pm

    Cort, I think it's a great idea to match up people for the bonus votes.

    I think we should try to gt everyone to vote for two orgs in order to try to get more money for them, unless that's a hopeless goal.

    My two cents is that i am willing to vote for PR, but I'd really like the money to go to a charitable or advocacy project of PRs or be forwarded on to good research rather than give to you, Cort. I'm sorry if that's harsh, but it's just a matter of priorities of where I'd like our very limited funds to go considering the great number of very important unfunded things we need to do as a community.

    btw, it's the Wisconsin ME/CFS association, not "chronic fatigue" and it's rocky mountain CFS/ME assn.

  • Cort September 2, 2012, 2:16 pm
    frenchtulip

    If I'm remembering correctly, PANDORA won $20,000 in 2010. In 2011, in the contest for larger org's, The CFIDS Assn. won $25,000 and the WPI won $25,000 (plus $40,000 for finishing high on the leader board). In 2011, in the contest for smaller org's with operating expenses under $1,000,000, IACFS/ME, the CFS Knowledge Center, and Massachusetts CFIDS and FM each won $25,000. So in Chase we have won $185,000, I think. (WPI also won $100,000 in Vivint in 2011.)

    Thanks FrenchTulip and Kati – I forgot about both the CAA and the WPI :). That's alot of $ pumped into the ME/CFS Community.

  • Cort September 2, 2012, 2:22 pm
    justinreilly

    Cort, I think it's a great idea to match up people for the bonus votes.

    I think we should try to gt everyone to vote for two orgs in order to try to get more money for them, unless that's a hopeless goal.

    My two cents is that i am willing to vote for PR, but I'd really like the money to go to a charitable or advocacy project of PRs or be forwarded on to good research rather than give to you, Cort. I'm sorry if that's harsh, but it's just a matter of priorities of where I'd like our very limited funds to go considering the great number of very important unfunded things we need to do as a community.

    btw, it's the Wisconsin ME/CFS association, not "chronic fatigue" and it's rocky mountain CFS/ME assn.

    I appreciate your support of Phoenix Rising and its projects, Justin. If we do win the Contest my vote is for most of it go to our Projects. Not only are those best for the Community but I have always thought that completing these projects is the key to building Phoenix Rising as an organization that can support itself (and myself :))

    That's why my salary is $600 a month. I am exploring other options but that cannot continue given my eroding financial situation..Either I will have to find another job to make up the difference or I'll have to get a bit more from PR. That's something for the Board of Directors to decide. My vote is for most of the winnings, should they happen, to go to the projects and my guess is that they feel the same.

    (Those organizations are titled the way they are because that's the way they appear in the Chase contest.)

  • Merry September 2, 2012, 3:03 pm

    Cort, thanks for the reminder that some ME/CFS organizations may have names rather different in the Chase contest than we are used to seeing them. This caused me problems during nomination and later when I checked back to see if I could tell if orgs had submitted info to Chase. Sometimes I had to read five or six pages of search results to find the organization I was looking for. If we don't present voters with the names as the names appear at Chase, people may get frustrated and not bother to vote or vote for some charity other than the one they wanted to support.

  • Nielk September 2, 2012, 3:17 pm

    I understand how people would want money to go for research projects since that is ultimately "our way out" of this illness. I do think though that raising money for PR has it's merits for us, members. I know for myself that PR is giving me much needed support which I can't find anywhere else. I have been searching for a support group in my area to no avail. I appreciate all the work that goes into making this the best website/forum for ME/CFS.

    Cort, no one today can survive on $600 a month. That is below the poverty line.

    In Jewish law, we are taught to first give charity to family than friends then the neighborhood and only after that to the world at large. As a member of PR, I feel like it's my family and my first vote would go to PR. It doesn't mean of course that I don't support other efforts towards our goals. I just think that we owe PR a vote of thanks.

  • Cort September 2, 2012, 10:17 pm
    Nielk

    I understand how people would want money to go for research projects since that is ultimately "our way out" of this illness. I do think though that raising money for PR has it's merits for us, members. I know for myself that PR is giving me much needed support which I can't find anywhere else. I have been searching for a support group in my area to no avail. I appreciate all the work that goes into making this the best website/forum for ME/CFS.

    Cort, no one today can survive on $600 a month. That is below the poverty line.

    In Jewish law, we are taught to first give charity to family than friends then the neighborhood and only after that to the world at large. As a member of PR, I feel like it's my family and my first vote would go to PR. It doesn't mean of course that I don't support other efforts towards our goals. I just think that we owe PR a vote of thanks.

    Thanks Nielk, Thankfully my family provides much needed support :) ..Check out the Community Rising project – its designed to empower people in their local communities – to get people in touch with each other – and empower support groups…

  • Cort September 2, 2012, 10:18 pm
    Merry

    Cort, thanks for the reminder that some ME/CFS organizations may have names rather different in the Chase contest than we are used to seeing them. This caused me problems during nomination and later when I checked back to see if I could tell if orgs had submitted info to Chase. Sometimes I had to read five or six pages of search results to find the organization I was looking for. If we don't present voters with the names as the names appear at Chase, people may get frustrated and not bother to vote or vote for some charity other than the one they wanted to support.

    This is one of the more frustrating parts of Chase and we'll reiterate this as we go along…you must type in the organizations name exactly at it appears in Chase for it to work…They do not have a particularly good search engine.

  • frenchtulip September 3, 2012, 12:19 pm

    Having to decide on a voting strategy is painful! I think there are 8 fabulous ME/CFS org's that have completed their profile pages. (Others may be competing, too.) I would feel a lot better about it if the competing org's decided amongst themselves on a strategy. I know that is very, very difficult. Plan B is a poll, which is being considered in the ME (ME/CFS) Fundraising Group (a closed group so the general public cannot do an Internet search – Those on Facebook, if they are not already Fundraising members, may ask to join.) The poll is being considered for tomorrow, Sept. 4th. If there are other ideas to help choose a strategy, please let us know. We need to be getting whatever is decided out to voters around the world. Thanks.

  • frenchtulip September 3, 2012, 12:23 pm
    frenchtulip

    Having to decide on a voting strategy is painful! I think there are 8 fabulous ME/CFS org's that have completed their profile pages. (Others may be competing, too.) I would feel a lot better about it if the competing org's decided amongst themselves on a strategy. I know that is very, very difficult. Plan B is a poll, which is being considered in the ME (ME/CFS) Fundraising Group (a closed group so the general public cannot do an Internet search – Those on Facebook, if they are not already Fundraising members, may ask to join.) The poll is being considered for tomorrow, Sept. 4th. If there are other ideas to help choose a strategy, please let us know. We need to be getting whatever is decided out to voters around the world. Thanks.

    I believe these eight have completed their profile pages: Phoenix Rising, Rocky Mountain, Wisconsin, New Jersey, Enterovirus Foundation, NIDA, OFFER, & HHV-6 Foundation.

  • Cort September 4, 2012, 1:04 pm

    We will be putting projects out from the different orgs on blogs; that may be the best way to go. I don't think its likely that anyone is going to give up a shot for the others…

  • justinreilly September 4, 2012, 2:35 pm
    frenchtulip

    Having to decide on a voting strategy is painful! I think there are 8 fabulous ME/CFS org's that have completed their profile pages. (Others may be competing, too.) I would feel a lot better about it if the competing org's decided amongst themselves on a strategy. I know that is very, very difficult. Plan B is a poll, which is being considered in the ME (ME/CFS) Fundraising Group (a closed group so the general public cannot do an Internet search – Those on Facebook, if they are not already Fundraising members, may ask to join.) The poll is being considered for tomorrow, Sept. 4th. If there are other ideas to help choose a strategy, please let us know. We need to be getting whatever is decided out to voters around the world. Thanks.

    Thanks for the info, frenchtulip.

  • justinreilly September 4, 2012, 2:38 pm
    Cort
    justinreilly

    Cort, I think it's a great idea to match up people for the bonus votes.

    I think we should try to gt everyone to vote for two orgs in order to try to get more money for them, unless that's a hopeless goal.

    My two cents is that i am willing to vote for PR, but I'd really like the money to go to a charitable or advocacy project of PRs or be forwarded on to good research rather than give to you, Cort. I'm sorry if that's harsh, but it's just a matter of priorities of where I'd like our very limited funds to go considering the great number of very important unfunded things we need to do as a community.

    btw, it's the Wisconsin ME/CFS association, not "chronic fatigue" and it's rocky mountain CFS/ME assn.

    I appreciate your support of Phoenix Rising and its projects, Justin. If we do win the Contest my vote is for most of it go to our Projects. Not only are those best for the Community but I have always thought that completing these projects is the key to building Phoenix Rising as an organization that can support itself (and myself :))

    That's why my salary is $600 a month. I am exploring other options but that cannot continue given my eroding financial situation..Either I will have to find another job to make up the difference or I'll have to get a bit more from PR. That's something for the Board of Directors to decide. My vote is for most of the winnings, should they happen, to go to the projects and my guess is that they feel the same.

    (Those organizations are titled the way they are because that's the way they appear in the Chase contest.)

    Thanks for the reply, Cort. We can all appreciate how hard it is to live on such limited resources and you certainly put a lot of effort into PR.

  • frenchtulip September 4, 2012, 10:12 pm

    The ME (ME/CFS) Fundraising Group is planning to post a poll tomorrow on their Facebook page at: http://on.fb.me/twyeN3 to determine which of the ME/CFS nonprofits competing in the Chase Contest may have the best chance of winning. Because of a fewer number of votes this year allowed to each voter and the fact that nonprofits with operating expenses of up to $10 million are allowed to compete, we believe the competition will be more challenging for our ME/CFS nonprofits. Therefore, we believe it is necessary to have a voting strategy to help our ME/CFS community win.

    As far as we have heard (or judging by their completed profile pages), it appears that eight of our 24 nominated nonprofits are planning to compete in the contest. These nonprofits are: Phoenix Rising, Rocky Mountain, Wisconsin, New Jersey, OFFER, Enterovirus Foundation, NIDA, and HHV-6 Voundation. If you know of any others, please let us know.

    If you are not a member of Facebook, you could set up an account. If you are a Facebook member but not a Fundraising Group member, you could ask to join to take the poll.

    If the leaders of the competing nonprofits come up with a voting strategy, that will be given priority over the poll. We desperately want some of our nonprofits to win and feel very strongly a strategy is imperative for us to win. Thanks for your help!

  • frenchtulip September 4, 2012, 11:20 pm

    Here are the mission statements of the eight nonprofits that we think are planning to compete and have their profile pages completed. You can also check their websites to learn more.

    ROCKY MOUNTAIN CFS ASSOCIATION INC
    AKA: Rocky Mountain CFS/ME and FM Associaition
    7020 E Girard Ave, Suite 207, Denver, CO, 80224
    EIN: 84-1178034
    Causes: Health
    Mission
    The Rocky Mountain CFS/ME & FM Association is a 501(c)(3) non-profit organization for those affected by Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME), and Fibromyalgia (FM). Our mission: Advocate for research Awareness for understanding Educate for patient care Support for hope
    Find this Charity online http://www.rmcfa.org
    Donate: http://www.rmcfa.org/donations.html
    http://www.facebook.com/pages/RMCFA-Rocky-Mountain-CFS-ME-FM-Association/162296707138242
    twitter.com/rmcfaorg
    Charity Administrator
    Mike Munoz

    Wisconsin Chronic Fatigue Syndrome Association, Inc.
    AKA: Wisconsin ME and CFS Association, Inc. ( 1987)
    733 Lois Dr, Sun Prairie, WI, 53590
    EIN: 39-1614649
    Causes: Health
    Mission
    In 1987, Wisconsin pledged to assist patients and their families. In 2012, the needs of the majority of our underserved patient population have changed. People sick with ME and CFS who lack computer access and /or skills to use a computer, may be denied the very basis of hope, that is, a proper diagnosis, better medical care, and knowledge about promising research. Mission: The CO-OP for Services is a toll free health information access number.Trained responders briefly talk with people who are ill, secure a mailing address, and send it to a designated confidential e mail address. WIsconsin will send out a package of good medical information about CFS. Goals: To locate the large number of undiagnosed and misdiagnosed CFS patients To give patients with no Internet access a way to get medically approved information. SEPT 1 start up: Health Information CO-OP for Services Toll Free: 1-855-878-5555
    Find this Charity online http://www.wicfs-me.org
    Charity Administrator
    PAT FERO

    NEW JERSEY CHRONIC FATIGUE SYNDROME ASSOCIATION INC
    AKA: NJCFSA
    PO Box 477, Florham Park, NJ, 07932
    EIN: 22-3367433
    Causes: Health
    Mission
    The primary purpose of the New Jersey Chronic Fatigue Syndrome Association, Inc is to disseminate information about CFS to patients, caregivers, the health care community and the public, organize and maintain patient support groups, promote research into the cause, method of treatment, diagnosis and cure of the disease
    Find this Charity online http://www.njcfsa.org
    Donate: http://www.njcfsa.org/donate
    http://www.facebook.com/#!/pages/New-Jersey-Chronic-Fatigue-Syndrome-Association-Inc-NJCFSA/141665745869451
    twitter.com/njcfsa
    Charity Administrator
    Patricia LaRosa

    ENTEROVIRUS FOUNDATION INC
    268 Bush Street 4044, % Rachel Landphere, San Francisco, CA, 94104
    EIN: 26-3513934
    Causes: Health
    Mission
    "The scariest disease you've never heard of…" Help us END EV! According to the CDC there are 50 million enterovirus infections annually in the US and an estimated one billion globally. They are as easy to catch as the common cold. Enterovirus infections such as Coxsackie, EV71, and Echovirus can trigger diseases such as juvenile diabetes, viral myocarditis, viral meningitis, Hand Food and Mouth Disease, pancreatitis, and approximatley 26 disease associations that we know of. There is no treatment. EVF is committed to providing funding for: •Research • Finding antiviral medications that work • Improving diagnostic testing • Accelerating communication across the research and medical communities, including clinical education about the latest in diagnosis and treatment • Raising public awareness about enteroviruses and their role in disease.
    Find this Charity online http://www.EnterovirusFoundation.org
    Donate: npo1.networkforgood.org/Donate/Donate.aspx?npoSubscriptionId=1000786%22%3e%3cimg
    http://www.facebook.com/EVForg
    Charity Administrator
    Rachel Landphere

    NEURO IMMUNE DISEASE ALLIANCE INC
    AKA: NIDA
    29302 Laro Drive, Agoura Hills, CA, 91301
    EIN: 27-2861703
    Causes: Health
    Mission
    A specific list of high-priority projects ( The OMI-MERIT Initiative), focused on finding diagnostic tools and treatments, including a Rituxan clinical trial, was created and agreed upon by a global consortium of world renowned researchers and clinicians including, in alphabetical order, Drs. Lucinda Bateman, Yenan Bryceson, Ron Davis, David Dreyfus, Oystein Fluge, Mady Hornig, Nancy Klimas, Andy Kogelnik (Chair), Charles Lapp, Jay Levy, Alan Light, Kathleen Light, Sonya Marshall, Mauro Malnati, Olav Mella, Jose Montoya, Dan Peterson, Simone Pensieroso, Ila Singh, Carmen Scheibenbogen, Charles Shepherd, and Rozamond Vallings. NIDA is collaborating with the Open Medicine Institute (OMI) and all monies raised as part of the Chase-sponsored contest will support the OMI-MERIT Initiative. The goals are to fast-track answers in diagnosis and treatment. For more information please visit http://www.openmedicineinstitute.org.
    Find this Charity online http://www.nidalliance.org
    Donate: http://www.nidalliance.org/ways-to-help.html
    http://www.facebook.com/pages/Chronic-Fatigue-Syndrome-Support-CFSME/273240696061761
    Charity Administrator
    Linda Tannenbaum

    ORGANIZATION FOR FATIGUE AND FIBROMYALGIA EDUCATION AND RESEARC
    AKA: OFFER
    1002 E South Temple Ste 408, Salt Lake Cty, UT, 84102
    EIN: 87-0687610
    Causes: Health
    Mission
    Our mission is to offer hope to individuals who are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome(ME/CFS) and Fibromyalgia (FM) by providing and supporting education, advocacy, research and networking for patients and families. We will accomplish this mission by • Educating patients, families, physicians and community members; • Changing perspectives within community systems, families, governments, public insurance companies, and providers through advocacy and greater awareness; • Supporting ongoing CFS and FM research and disseminate current, accurate information to patients, providers, and other interested parties; • Improving community resources for patients with CFS and FM, by identifying a network of healthcare providers, social workers, and other professionals who are informed, compassionate, qualified, knowledgeable and affordable.
    Find this Charity online http://www.offerutah.org/
    Donate: http://www.offerutah.org/donations.htm
    http://www.facebook.com/offer.utah.3
    twitter.com/OFFERUtahorg
    Charity Administrator
    Paul Shepherd

    PHOENIX RISING AN NEID CORPORATION
    3709 Beaver Creek Dr, Raleigh, NC, 27604
    EIN: 27-3313361
    Causes: Health
    Mission
    Phoenix Rising is a non-profit corporation dedicated to providing people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) information and online programs they can use to enhance their health and well-being.
    Find this Charity online phoenixrising.me
    Donate: phoenixrising.me/donating
    http://www.facebook.com/PhoenixRisingMECFS?ref=hl
    Charity Administrator
    Karen Luoto

    HHV-6 FOUNDATION
    1253 Coast Village Rd Ste 105, Santa Barbara, CA, 93108
    EIN: 20-1043981
    Causes: Health
    Mission
    The HHV-6 Foundation is a non-profit entity founded to encourage scientific exchange between investigators and to promote scientific and clinical research on the under-appreciated viruses HHV-6A and HHV-6B. The Foundation sponsors international conferences, supports scientists and clinicians seeking to clarify the role of the two HHV-6 viruses in disease, and acts as a resource for patients suffering from HHV-6 infection/reactivation worldwide.
    Find this Charity online http://www.hhv-6foundation.org
    Donate: http://www.hhv-6foundation.org/support-us
    http://www.facebook.com/Hhv6Foundation
    Charity Administrator
    Jill Chase

  • GcMAF Australia September 5, 2012, 3:02 am

    I think PR is an excellent resource, and i also think the people here are very courageous.
    I appreciate the effort of Cort and many others, I am wondering if a link can be posted to amazon so that a percentage can go to PR.
    also a site used by Jessica L. for art

  • frenchtulip September 5, 2012, 11:23 am

    To help determine a voting strategy in the Chase Contest, two polls have been set up at: https://www.facebook.com/events/442305962477809/?notif_t=plan_user_joined
    Please cast a vote for two different ME/CFS nonprofits.

    If you are not a member of Facebook and wish to vote in the poll, you can set up a Facebook account. (That will also entitle you to two votes in the Chase Contest and make you eligible to try to earn a third "bonus" vote.) A new Facebook page was set up for the poll and it is open. You do not have to ask to join.

  • Nielk September 5, 2012, 12:26 pm

    Bumping this to remind members to take this important poll.

  • Merry September 5, 2012, 4:44 pm

    Bumping. Please participate in the poll.

  • frenchtulip September 5, 2012, 7:58 pm

    We also need to make certain that every single org that accepted the nomination early gets the needed one vote to share in the $2.5 million grant. Any org that accepted early and doesn't plan to compete actively probably will know to get one vote in. But we need to keep an eye on it.

  • warriorseekspeace September 5, 2012, 10:19 pm

    I tried the links in Cort's article, to see info about the participating groups, but they all take me to the same page, asking for Chase Bank online acct. info, which I do not have. I have voted in Chase contests before, so I don't know what the problem. I have already "liked" the Chase page from FB. I hope this isn't stumping other people, or discouraging anybody who may be considering starting a FB account just to vote with.

    Oh, I am just putting it together that probably what is happening is that from here, PR, or somewhere else outside of FaceBook, on the internet, the links to the Chase voting contest group pages are only accessible to Chase Bank members. However, once a person is logged on to their FB account, they will be able to see the groups' pages. From FaceBook, I can open the links to the pages of those ME/CFS groups participating, because I have already "liked" Chase.

  • frenchtulip September 5, 2012, 10:24 pm
    frenchtulip

    To help determine a voting strategy in the Chase Contest, two polls have been set up at: https://www.facebook.com/events/442305962477809/?notif_t=plan_user_joined
    Please cast a vote for two different ME/CFS nonprofits.

    If you are not a member of Facebook and wish to vote in the poll, you can set up a Facebook account. (That will also entitle you to two votes in the Chase Contest and make you eligible to try to earn a third "bonus" vote.) A new Facebook page was set up for the poll and it is open. You do not have to ask to join.

    The two top vote-getters in the poll held on Facebook were NIDA and Phoenix Rising. It appears to be a tie. Perhaps you may wish to consider voting for one or both of them or voting for one of them and for a different nonprofit of your choosing. Thanks for your help!

    I think a really, really important thing is to use the CCG app shared on a ME/CFS friend's timeline or newsfeed to cast a vote and give them a bonus vote. Leave a message there on the friend's page, if possible, that you have used their app, so nobody else will use it (and waste potentially a good bonus vote, which could go to someone else).

  • Nielk September 6, 2012, 4:46 am
    frenchtulip

    The two top vote-getters in the poll held on Facebook were NIDA and Phoenix Rising. It appears to be a tie. Perhaps you may wish to consider voting for one or both of them or voting for one of them and for a different nonprofit of your choosing. Thanks for your help!

    I think a really, really important thing is to use the CCG app shared on a ME/CFS friend's timeline or newsfeed to cast a vote and give them a bonus vote. Leave a message there on the friend's page, if possible, that you have used their app, so nobody else will use it (and waste potentially a good bonus vote, which could go to someone else).

    I agree that if possible, it is vital to try to take advantage of this "bonus" vote by using this CCF app through Facebook. It will increase your voting power by 50%.

    If anyone doesn't understand the voting process, please state your questions here and we will try to clarify.

    This year, each person gets only 2 votes for the whole contest period through Facebook. If one uses the "bonus vote", it makes it three. In addition, if one is a Chase customer, one can get two votes through Chase on-line.

    If you are thinking "why should I get involved with this?", I would say this is such a unique opportunity that it would be a real shame to pass up.

    With just a few clicks of your mouse (which you are touching right now anyway), you can help one or more of these ME/CFS organizations earn much needed funding. This is really an easy one. You will feel good knowing that you did your part.

  • Cort September 6, 2012, 5:23 am

    The links are updated – I couldn't figure out how to do that until today :(.

    Phoenix Rising's Chase profile is very bare by the way but that's not for lack of trying. We uploaded several things to our page four or five days ago but they're not visible.

  • Cort September 6, 2012, 5:26 am

    I am really confused about the CCG app and getting organizations on a persons timeline. Can somebody explain that?

  • Nielk September 6, 2012, 5:51 am
    Cort

    The links are updated – I couldn't figure out how to do that until today :(.

    Phoenix Rising's Chase profile is very bare by the way but that's not for lack of trying. We uploaded several things to our page four or five days ago but they're not visible.

    Cort,

    You might have to go through this link: https://www.chase.com/online/Specia…ine/Special-Offers/ccg_redirect.htm?nptag=CCG

  • Merry September 6, 2012, 6:11 am

    Nielk, I'm sorry to say that even after looking at the Chase contest material off and on for weeks, I still don't understand how to get the bonus point. I've just voted through my Chase account. Do I use my two Facebook votes and then figure out how to get the bonus vote?

  • Cort September 6, 2012, 6:49 am
    Merry

    Nielk, I'm sorry to say that even after looking at the Chase contest material off and on for weeks, I still don't understand how to get the bonus point. I've just voted through my Chase account. Do I use my two Facebook votes and then figure out how to get the bonus vote?

    Please hold off for a bit Merry with the Facebook votes if you could….What I think is happening is

    To Get SOMEBODY ELSE A Bonus Vote – click on an organizations profile in a friends timeline and then use one of your votes.. That will get them a bonus vote.

    To Get YOURSELF a Bonus Vote – vote for a organization; it should then show up on your timeline and have one of your friends vote for it… (then either get rid of the link or warn everyone not to vote on it and vote using somebody else's timeline because each person only gets one bonus vote.

    I think this is what's happening….if you vote for an organization it should up in your timeline and then if one of your friends clicks on it – you should get a bonus vote. ((for some reason Phoenix Rising is not yet showing in Timelines after someone has voted for it).

  • Cort September 6, 2012, 6:57 am
    Nielk

    Cort,

    You might have to go through this link: https://www.chase.com/online/Special-Offers/chasegiving_none.htm?dest=https://www.chase.com/online/Special-Offers/ccg_redirect.htm?nptag=CCG

    Thanks that sure looked good but its not letting me vote again for (yes, I will come clean on this) – Phoenix Rising :)…..It sends me back to the regular page and it shows that I've already voted for PR and cannot vote again…I will try again.

  • Merry September 6, 2012, 7:07 am

    Eeee, sorry, Cort, but I used my Facebook votes. If I understand which part of Facebook is the timeline, it shows that I liked Chase Community Giving, Phoenix Rising an NEID Corporation, and Neuro Immune Diseases Alliance. It also says that I voted for Neuro Immune Diseases Alliance but does not say that I voted for Phoenix Rising an NEID Corporation although I did, twice.

  • Cort September 6, 2012, 7:24 am

    Ah – the Chase Contest just showed up inside my account….I will try again….nope – same thing – it shows I've already voted

  • Cort September 6, 2012, 7:26 am
    Merry

    Eeee, sorry, Cort, but I used my Facebook votes. If I understand which part of Facebook is the timeline, it shows that I liked Chase Community Giving, Phoenix Rising an NEID Corporation, and Neuro Immune Diseases Alliance. It also says that I voted for Neuro Immune Diseases Alliance but does not say that I voted for Phoenix Rising an NEID Corporation although I did, twice.

    No problem…Thanks for voting for us :), I'll go to your timeline and try to vote for NIDA….and see what happens..​
    On our Chase site it shows you voted :)​
    My vote for Phoenix Rising does not show up on my Facebook page or on Phoenix Rising's Facebook page. I wonder if we're having a problem….none of the banners, etc for Chase work for us, they're not uploading images to the site and votes aren't showing up on Facebook pages….and I can't vote for PR using my Chase account….I'll try and get in touch with them. ​
  • Merry September 6, 2012, 7:29 am

    Wait! We are not friends yet. I just set up this account after closing the one with my fake name.

  • Merry September 6, 2012, 7:31 am

    Just sent you a friend request.

  • Cort September 6, 2012, 7:37 am

    How funny – Searching for info on the bonus votes I typed in 'explaining bonus vote chase giving' and in the first page our blog came up…

    OK I voted for NIDA using Merry's Timeline (sorry other orgs – we've got to get this figured out so I can blog about it and they were available)…..

    Merry, since you've used all your other votes you should get a message, I guess in your Facebook site, stating you have a bonus vote.

    It looks like Chase is having some early glitches – the redirect page from the Chase banking site is down; maybe they are fixing something…

  • Aileen September 6, 2012, 7:51 am

    The Rules for Facebook Voting (from the Chase page on Facebook, with some rearranging & emphasis added)

    Regular Votes:
    2.) Facebook: During the Voting Period Facebook Users on the Facebook Chase Community Giving application will automatically receive two (2) votes ("Standard Facebook Vote(s)") to cast during the Voting Period on the Chase Community Giving application found at http://www.facebook.com/chasecommunitygiving (the "CCG Application"). A Facebook user can only cast one (1) Standard Facebook Vote per charity.

    Bonus Vote:
    Facebook users can earn one (1) bonus vote by sharing content from the CCG Application. There are 4 ways to do this. Choose one:
    1.) Clicking the "like" button in the CCG Application to share content by having it pushed to his/her Facebook news fee/wall.
    2.) Clicking the "send" button in the CCG Application to share content with another person;
    3.) Clicking the "tweet" button in the CCG Application and tweeting the URL of the content the user want to share with another person; or,
    4.) Clicking the "copy link" button in the CCG Application and emailing the URL of the content the user wants to share with another person.

    And here's the catch …
    If the receiving party links back to the CCG Application through the shared content and casts a vote, the Facebook user who shared the content will earn one (1) bonus vote. BUT The receiving party MUST LINK to the CCG Application AND VOTE during the same visit for the sharing Facebook user to receive the extra vote. The sharing Facebook user only will receive the extra vote if the receiving party uses the sharing Facebook users shared link to enter the CCG Application and vote during that visit.

    **You must cast BOTH your 2 standard votes BEFORE you can cast your bonus vote
    The bonus vote may be cast for any Eligible Nominated Charity, including an Eligible Nominated Charity for which the sharing Facebook user has already cast a Standard Facebook Vote.

    Eligible Voters must return to the Chase Community Giving Application on Facebook to find out whether he/she has earned a bonus vote as it will be displayed in the application header as well as in the "apps and games" link. There is a limit of one (1) bonus vote earned per Eligible Voter.

  • Cort September 6, 2012, 8:03 am

    Thanks Aileen…what do they mean by 'link to the to the CCG application and then vote during the same visit? I guess that means they click in the link – go to the page and vote…that makes sense.

  • warriorseekspeace September 6, 2012, 8:17 am

    Merry, I just wanted to say it's so delightful how far you've come in the world of internet and facebook operation! I remember when you seemed a little hesitant about it! (And not long before that, I myself was CLUELESS! and also very fearful and suspicious of getting on FaceBook. Now it's such a joy to have connections with hundreds more people who share my condition.

  • Merry September 6, 2012, 8:35 am
    warriorseekspeace

    Merry, I just wanted to say it's so delightful how far you've come in the world of internet and facebook operation! I remember when you seemed a little hesitant about it! (And not long before that, I myself was CLUELESS! and also very fearful and suspicious of getting on FaceBook. Now it's such a joy to have connections with hundreds more people who share my condition.

    This is hilarious! I've just been in conversation with Purple all week about how much I hate Facebook and this has nothing to do with being suspicious and fearful. Believe me, I would not have the account if I weren't required to to vote to raise money for ME/CFS organizations. I may close the account after this contest.

  • Aileen September 6, 2012, 8:36 am
    Cort

    Thanks Aileen…what do they mean by 'link to the to the CCG application and then vote during the same visit? I guess that means they click in the link – go to the page and vote…that makes sense.

    unfortunately I think it means that many M.E./FM patients are going to be in trouble. Click the link, look and decide it looks too confusing so will come back later – don't vote … and lose the bonus vote for the person. 😥 We're going to have to be sure to stress that you CAN'T do that in all instructions!! I hate this contest and I haven't even voted yet!:ill:

  • warriorseekspeace September 6, 2012, 9:06 am

    Aww, Merry, I'm sorry you hate it. It's just that you seemed to jump right into a leadership role with it. I totally understand wanting to do something that makes a difference, but finding the things involved in doing that repugnant. After having read/ re-read this whole thread on FB today, I'm reminded of my initial (and ongoing repressed) loathing of FB. For me, I'm just to the point I'm just going with the flow, because it's too hard to resist it right now. And I am just trusting (hoping?) that good would prevail if any of the dreaded misuse of my FB info by those in power were to occur. I probably will simply stop using my FB account someday. Until then, I'm hoping it helps put me in a better position simply by being less isolated, more than it would harm me.

  • Cort September 6, 2012, 12:23 pm

    Does anyone have trouble getting into Chase? It's really slow…I can't bring up PR right now or New Jersey…..

  • Nielk September 6, 2012, 1:28 pm
    Cort

    Does anyone have trouble getting into Chase? It's really slow…I can't bring up PR right now or New Jersey…..

    It's very slow. My husband has been trying to get in and can't.

  • Cort September 6, 2012, 1:51 pm

    Thanks…I'm glad to hear that….very glad actually because we're quite behind on our Chase blogs and this means we have a chance to get some blogs out and catch up :)…

    On the other hand it probably means that participation is really high and their servers are getting smacked…not particularly good news ….:rolleyes:

    Here's what I have thus far – based on Aileen's information – which was a godsend…:thumbsup:

    The Bonus Vote

    A Bonus Vote is an extra vote you can win and then use to vote for any organization you wish. In the grand tradition of Chase Giving the bonus vote is a bit complicated :) but getting them could make a big difference…We're going to explain as simply as possible how to get an extra vote. If it's too much – forget about the Bonus vote strategy and just vote!
    To Get a Bonus Vote

    Sharing Content – To get a bonus vote Chase wants you to share information on an organization you like with a friend and then have them vote for that organization.
    There are two catches…. the person voting for the organization must click on your link and then vote without going to any other pages….and you only get one Bonus Vote.
    How to Share An Organization
    a) go to an organization's Chase Giving page

    and then use the Like/Send/Twitter buttons below the profile or the link in the box in an email to send the Chase Giving request.
    a) Like button – clicking the 'Like button – this will put the organization's content on your newsfeed or timeline. Then one of your Facebook Friends (only your friends can see your timeline) can vote.
    b) Clicking on the 'Send' button – will send the organization's profile to a person's Facebook or to their twitter account. If they click on the link they can vote. Here's a sample…."One of my favorite ME/CFS organizations, Phoenix Rising, has the opportunity to win 10K in the Chase contest. Please click on this link and then vote! "
    c) Twitter – click on the twitter button to send a request on twitter.
    c) Linking – taking the link provided below the Send and Like buttons and paste it into an email asking a friend to vote for it .