Chasing the Money: Chase Community Giving Contest to Start Soon

September 1, 2012

Posted by Cort Johnson

 

The Chase Community Giving Contest gives ME/CFS a chance at winning a significant amount of money

The Chase Community Giving Contest for non-profits will run from Sept 6th-19th.  In the past two years Phoenix Rising has poured time and resources into helping other ME/CFS orgs win over $170,000 and now, for the first time, we’re in ‘the chase’ (:)) and we’re excited to be there. The annual Chase contest provides a rare opportunity for ME/CFS organizations to pick up some easy money. 

Some History

2011 - Three ME/CFS non-profits; the IACFS/ME,  the ME/CFS KnowledgeCenter,  and the Mass CFIDS Association won 20k  in a contest that matched smaller non-profits against each other.

The CFIDS Association of America won 25k and the Whittemore Peterson Institute won over 50K in a contest that matched larger non-profits against each other

2010 - PANDORA wins 25K in the first Chase contest in which all the non-profits, small and large, were lumped together…the top 50 win and PANDORA just squeaks it out in the last week.

ME/CFS Organizations in Chase 2012

In 2012 we know of at least five ME/CFS organizations that are ready to go and we’ll update that number as we go along. We will feature each of these in future blogs.

Each ME/CFS non-profit in this contest realistically has  the opportunity to win  ten thousand dollars. That’s alot of money to a ME/CFS non-profit with low overhead and it can go a long, long way. Phoenix Rising, for instance, has several projects, each of which would cost less than that, which could make a difference.  Some of them include a

  • Rate a Practitioner program - to help ME/CFS patients save time, money and improve their health by finding good doctors and avoiding bad ones
  • Community Rising program - to break up the isolation and connect people in their local communities, provide avenues for assistance,  reviews of local clinics and physicians, etc.
  • Making the Forums More Accessible to the Visually Impaired - upgrading the Forums so that as many as possible can participate.

Chase Rules – Simplified :)

Here’s some basic information on the contest…

Potential Winnings 

  • @$500 - Simply by accepting the nomination and providing Chase with suitable documents -  each non-profit will win maybe $500 ($2.5 million/# of charities in the contest).
  • $10,000 - bottom 100 charities – based on past history this is where ME/CFS organizations will probably place.
  • $20,000 - next 50
  • $50, 000 - next 35
  • $100,000 - next 10
  • $250,000 - top vote getter

Once an organization enters and wins the contest it cannot enter again; if it enters and loses it can enter the contest next year (provided there is a contest).

Two Different Types of Voters..

  • Chase Customers - This year Chase customers without a Facebook account can vote on www.Chasegiving.com……for two organizations…
  • Facebook - anyone on Facebook who ‘allows access’ to the Chase Giving Application will get two votes for two organizations..plus Facebook users can earn a bonus vote
  • Chase Customers and Facebook Users - can vote a maximum of five times; three for one organization….

Strategy!  Request For Volunteers

With hundreds of non-profits expected to be in the contest strategy is going to be important.   We need help to organize the vote  and to devise a strategy for getting the all important “Bonus Votes”.  If you’d like to volunteer to help Phoenix Rising and other organizations win money please send me an email at cort@phoenixrising.me  (or message me in the Forums).

For the most part the contest is simple and we’ll go over it in more detail in future posts. For now

  1. Facebook  – If you have a Facebook account you can vote at least twice…
  2. Chase customers - if you bank with Chase you can vote twice.
  3. Bonus Vote - The Bonus Vote will very likely be the key to ME/CFS non-profits winning because getting one is fairly complicated – which means that most groups probably won’t do it well – which means that if we master the Bonus vote  our chances of winning go up dramatically. The Bonus vote potentially is a third of the entire vote.

Bonus Vote Strategy

We’re looking for ideas on how best to get as many Bonus Votes as we can.  We’d like to coordinate Bonus Votes for all the ME/CFS orgs on Phoenix Rising…its going to take some work to puzzle out best to do this…

In order to get a Bonus vote someone must allow ‘access’ to the Chase contest and share content from the Chase site (ie an organizations profile) on their newsfeed/Timeline. Then when a Facebook Friend uses that link to go to Chase Community and vote a bonus vote is given to the person who posted the link.

More simply it appears that if you put a Chase Profile for Phoenix Rising or another group on your Timeline or Newsfeed and then have a friend vote for them on Facebook you’ll get a bonus vote to use on any organization.

Here are the Official Bonus Vote Rules

A Facebook user can earn one (1) bonus vote by allowing “Access” and sharing any content from the Chase Community Giving application to his/her Facebook newsfeed or timeline.

If one of the Facebook users’ Facebook Friends links back to the Chase Community Giving Application and casts a vote, the original Facebook user will earn one (1) bonus vote.

The bonus vote earned by the original Facebook user can only be cast once he/she has cast his/her two (2) Standard Facebook Votes.

The bonus vote may be cast for any Eligible Nominated Charity, including an Eligible Nominated Charity for which the Facebook user has already cast a Standard Facebook Vote.

Eligible Voters must return to his/her Facebook page to find out whether he/she has earned a bonus vote as it will be displayed both in the header as well as in the “apps and games” link.

There is a limit of one (1) bonus vote earned per Eligible Voter.

This is really complicated but it appears that voting in steps would work. We need as many eyes on this as possible. One idea is below.

One idea 

(1) First we  concentrate on getting the Chase Profiles from ME/CFS organizations onto the timelines/newsfeeds of ME/CFS supporters

(2) Then we have friends of that person (or people who are willing to friend them on Facebook) to click on that profile and  vote…

(3) Above all we don’t want people to go out and use their two votes without first going to another persons Facebook and clicking on their Timeline or Newsfeed ad…because that is how we get the Bonus Votes..so

We want to get as many people as possible to post Chase profiles on their Timelines first and THEN start voting for organizations….

Since each person only gets one bonus vote we want to make sure that each Timeline or Newsfeed ‘ad’ on each person’s Facebook site gets voted on only once.  Therefore…

We probably want to ask everyone who’s going to vote to contact us if a) they are going to vote and b) when they post a profile on their Timeline/Newsfeed…..Then we will team them up with another person….ensuring that each profile gets voted on only once.

But…..there is this issue….

 The bonus vote earned by the original Facebook user can only be cast once he/she has cast his/her two (2) Standard Facebook Votes.”
The Bonus Vote can be used only after the two votes allotted have been cast but can it be earned before casting votes? The above statement does not address that issue.
92 comments

{ 92 comments… read them below or add one }

frenchtulip September 1, 2012 at 11:04 am

Word was received from OFFER that their paperwork was submitted on Aug. 30th. Enterovirus Foundation was hoping to get everything in order by Aug. 30th. So there should be two more in the running.

Cort September 1, 2012 at 11:09 am

Good – two good organizations – thanks.

frenchtulip September 1, 2012 at 7:27 pm

I should mention that CFCCC also expressed interest at the beginning of Aug. I haven't heard anything further, so I'm not sure if they plan to compete.

Kati September 1, 2012 at 8:40 pm

Cort, you forgot to mention that WPI won over 100 000$ in 2011, was it a voluntary omission, because it was a big one!

We cannot pretend that it didn't happen. I am very glad they won and they won because of all of us that voted for them.

frenchtulip September 1, 2012 at 10:13 pm

If I'm remembering correctly, PANDORA won $20,000 in 2010. In 2011, in the contest for larger org's, The CFIDS Assn. won $25,000 and the WPI won $25,000 (plus $40,000 for finishing high on the leader board). In 2011, in the contest for smaller org's with operating expenses under $1,000,000, IACFS/ME, the CFS Knowledge Center, and Massachusetts CFIDS and FM each won $25,000. So in Chase we have won $185,000, I think. (WPI also won $100,000 in Vivint in 2011.)

Cort September 2, 2012 at 5:24 am

OMG – you're right Kati…Completely involuntary. I'm glad they won as well….:) I'll get that in there. I stopped by the WPI last year and talked with Vincent Lombardi…I think we'll hear some good stuff from them in the future…

justinreilly September 2, 2012 at 12:00 pm

Cort, I think it's a great idea to match up people for the bonus votes.

I think we should try to gt everyone to vote for two orgs in order to try to get more money for them, unless that's a hopeless goal.

My two cents is that i am willing to vote for PR, but I'd really like the money to go to a charitable or advocacy project of PRs or be forwarded on to good research rather than give to you, Cort. I'm sorry if that's harsh, but it's just a matter of priorities of where I'd like our very limited funds to go considering the great number of very important unfunded things we need to do as a community.

btw, it's the Wisconsin ME/CFS association, not "chronic fatigue" and it's rocky mountain CFS/ME assn.

justinreilly September 2, 2012 at 12:00 pm

Cort, I think it's a great idea to match up people for the bonus votes.

I think we should try to gt everyone to vote for two orgs in order to try to get more money for them, unless that's a hopeless goal.

My two cents is that i am willing to vote for PR, but I'd really like the money to go to a charitable or advocacy project of PRs or be forwarded on to good research rather than give to you, Cort. I'm sorry if that's harsh, but it's just a matter of priorities of where I'd like our very limited funds to go considering the great number of very important unfunded things we need to do as a community.

btw, it's the Wisconsin ME/CFS association, not "chronic fatigue" and it's rocky mountain CFS/ME assn.

Cort September 2, 2012 at 2:16 pm
frenchtulip

If I'm remembering correctly, PANDORA won $20,000 in 2010. In 2011, in the contest for larger org's, The CFIDS Assn. won $25,000 and the WPI won $25,000 (plus $40,000 for finishing high on the leader board). In 2011, in the contest for smaller org's with operating expenses under $1,000,000, IACFS/ME, the CFS Knowledge Center, and Massachusetts CFIDS and FM each won $25,000. So in Chase we have won $185,000, I think. (WPI also won $100,000 in Vivint in 2011.)

Thanks FrenchTulip and Kati – I forgot about both the CAA and the WPI :). That's alot of $ pumped into the ME/CFS Community.

Cort September 2, 2012 at 2:22 pm
justinreilly

Cort, I think it's a great idea to match up people for the bonus votes.

I think we should try to gt everyone to vote for two orgs in order to try to get more money for them, unless that's a hopeless goal.

My two cents is that i am willing to vote for PR, but I'd really like the money to go to a charitable or advocacy project of PRs or be forwarded on to good research rather than give to you, Cort. I'm sorry if that's harsh, but it's just a matter of priorities of where I'd like our very limited funds to go considering the great number of very important unfunded things we need to do as a community.

btw, it's the Wisconsin ME/CFS association, not "chronic fatigue" and it's rocky mountain CFS/ME assn.

I appreciate your support of Phoenix Rising and its projects, Justin. If we do win the Contest my vote is for most of it go to our Projects. Not only are those best for the Community but I have always thought that completing these projects is the key to building Phoenix Rising as an organization that can support itself (and myself :))

That's why my salary is $600 a month. I am exploring other options but that cannot continue given my eroding financial situation..Either I will have to find another job to make up the difference or I'll have to get a bit more from PR. That's something for the Board of Directors to decide. My vote is for most of the winnings, should they happen, to go to the projects and my guess is that they feel the same.

(Those organizations are titled the way they are because that's the way they appear in the Chase contest.)

Merry September 2, 2012 at 3:03 pm

Cort, thanks for the reminder that some ME/CFS organizations may have names rather different in the Chase contest than we are used to seeing them. This caused me problems during nomination and later when I checked back to see if I could tell if orgs had submitted info to Chase. Sometimes I had to read five or six pages of search results to find the organization I was looking for. If we don't present voters with the names as the names appear at Chase, people may get frustrated and not bother to vote or vote for some charity other than the one they wanted to support.

Nielk September 2, 2012 at 3:17 pm

I understand how people would want money to go for research projects since that is ultimately "our way out" of this illness. I do think though that raising money for PR has it's merits for us, members. I know for myself that PR is giving me much needed support which I can't find anywhere else. I have been searching for a support group in my area to no avail. I appreciate all the work that goes into making this the best website/forum for ME/CFS.

Cort, no one today can survive on $600 a month. That is below the poverty line.

In Jewish law, we are taught to first give charity to family than friends then the neighborhood and only after that to the world at large. As a member of PR, I feel like it's my family and my first vote would go to PR. It doesn't mean of course that I don't support other efforts towards our goals. I just think that we owe PR a vote of thanks.

Cort September 2, 2012 at 10:17 pm
Nielk

I understand how people would want money to go for research projects since that is ultimately "our way out" of this illness. I do think though that raising money for PR has it's merits for us, members. I know for myself that PR is giving me much needed support which I can't find anywhere else. I have been searching for a support group in my area to no avail. I appreciate all the work that goes into making this the best website/forum for ME/CFS.

Cort, no one today can survive on $600 a month. That is below the poverty line.

In Jewish law, we are taught to first give charity to family than friends then the neighborhood and only after that to the world at large. As a member of PR, I feel like it's my family and my first vote would go to PR. It doesn't mean of course that I don't support other efforts towards our goals. I just think that we owe PR a vote of thanks.

Thanks Nielk, Thankfully my family provides much needed support :) ..Check out the Community Rising project – its designed to empower people in their local communities – to get people in touch with each other – and empower support groups…

Cort September 2, 2012 at 10:18 pm
Merry

Cort, thanks for the reminder that some ME/CFS organizations may have names rather different in the Chase contest than we are used to seeing them. This caused me problems during nomination and later when I checked back to see if I could tell if orgs had submitted info to Chase. Sometimes I had to read five or six pages of search results to find the organization I was looking for. If we don't present voters with the names as the names appear at Chase, people may get frustrated and not bother to vote or vote for some charity other than the one they wanted to support.

This is one of the more frustrating parts of Chase and we'll reiterate this as we go along…you must type in the organizations name exactly at it appears in Chase for it to work…They do not have a particularly good search engine.

frenchtulip September 3, 2012 at 12:19 pm

Having to decide on a voting strategy is painful! I think there are 8 fabulous ME/CFS org's that have completed their profile pages. (Others may be competing, too.) I would feel a lot better about it if the competing org's decided amongst themselves on a strategy. I know that is very, very difficult. Plan B is a poll, which is being considered in the ME (ME/CFS) Fundraising Group (a closed group so the general public cannot do an Internet search – Those on Facebook, if they are not already Fundraising members, may ask to join.) The poll is being considered for tomorrow, Sept. 4th. If there are other ideas to help choose a strategy, please let us know. We need to be getting whatever is decided out to voters around the world. Thanks.

frenchtulip September 3, 2012 at 12:23 pm
frenchtulip

Having to decide on a voting strategy is painful! I think there are 8 fabulous ME/CFS org's that have completed their profile pages. (Others may be competing, too.) I would feel a lot better about it if the competing org's decided amongst themselves on a strategy. I know that is very, very difficult. Plan B is a poll, which is being considered in the ME (ME/CFS) Fundraising Group (a closed group so the general public cannot do an Internet search – Those on Facebook, if they are not already Fundraising members, may ask to join.) The poll is being considered for tomorrow, Sept. 4th. If there are other ideas to help choose a strategy, please let us know. We need to be getting whatever is decided out to voters around the world. Thanks.

I believe these eight have completed their profile pages: Phoenix Rising, Rocky Mountain, Wisconsin, New Jersey, Enterovirus Foundation, NIDA, OFFER, & HHV-6 Foundation.

Cort September 4, 2012 at 1:04 pm

We will be putting projects out from the different orgs on blogs; that may be the best way to go. I don't think its likely that anyone is going to give up a shot for the others…

justinreilly September 4, 2012 at 2:35 pm
frenchtulip

Having to decide on a voting strategy is painful! I think there are 8 fabulous ME/CFS org's that have completed their profile pages. (Others may be competing, too.) I would feel a lot better about it if the competing org's decided amongst themselves on a strategy. I know that is very, very difficult. Plan B is a poll, which is being considered in the ME (ME/CFS) Fundraising Group (a closed group so the general public cannot do an Internet search – Those on Facebook, if they are not already Fundraising members, may ask to join.) The poll is being considered for tomorrow, Sept. 4th. If there are other ideas to help choose a strategy, please let us know. We need to be getting whatever is decided out to voters around the world. Thanks.

Thanks for the info, frenchtulip.

justinreilly September 4, 2012 at 2:38 pm
Cort
justinreilly

Cort, I think it's a great idea to match up people for the bonus votes.

I think we should try to gt everyone to vote for two orgs in order to try to get more money for them, unless that's a hopeless goal.

My two cents is that i am willing to vote for PR, but I'd really like the money to go to a charitable or advocacy project of PRs or be forwarded on to good research rather than give to you, Cort. I'm sorry if that's harsh, but it's just a matter of priorities of where I'd like our very limited funds to go considering the great number of very important unfunded things we need to do as a community.

btw, it's the Wisconsin ME/CFS association, not "chronic fatigue" and it's rocky mountain CFS/ME assn.

I appreciate your support of Phoenix Rising and its projects, Justin. If we do win the Contest my vote is for most of it go to our Projects. Not only are those best for the Community but I have always thought that completing these projects is the key to building Phoenix Rising as an organization that can support itself (and myself :))

That's why my salary is $600 a month. I am exploring other options but that cannot continue given my eroding financial situation..Either I will have to find another job to make up the difference or I'll have to get a bit more from PR. That's something for the Board of Directors to decide. My vote is for most of the winnings, should they happen, to go to the projects and my guess is that they feel the same.

(Those organizations are titled the way they are because that's the way they appear in the Chase contest.)

Thanks for the reply, Cort. We can all appreciate how hard it is to live on such limited resources and you certainly put a lot of effort into PR.

frenchtulip September 4, 2012 at 10:12 pm

The ME (ME/CFS) Fundraising Group is planning to post a poll tomorrow on their Facebook page at: http://on.fb.me/twyeN3 to determine which of the ME/CFS nonprofits competing in the Chase Contest may have the best chance of winning. Because of a fewer number of votes this year allowed to each voter and the fact that nonprofits with operating expenses of up to $10 million are allowed to compete, we believe the competition will be more challenging for our ME/CFS nonprofits. Therefore, we believe it is necessary to have a voting strategy to help our ME/CFS community win.

As far as we have heard (or judging by their completed profile pages), it appears that eight of our 24 nominated nonprofits are planning to compete in the contest. These nonprofits are: Phoenix Rising, Rocky Mountain, Wisconsin, New Jersey, OFFER, Enterovirus Foundation, NIDA, and HHV-6 Voundation. If you know of any others, please let us know.

If you are not a member of Facebook, you could set up an account. If you are a Facebook member but not a Fundraising Group member, you could ask to join to take the poll.

If the leaders of the competing nonprofits come up with a voting strategy, that will be given priority over the poll. We desperately want some of our nonprofits to win and feel very strongly a strategy is imperative for us to win. Thanks for your help!

frenchtulip September 4, 2012 at 11:20 pm

Here are the mission statements of the eight nonprofits that we think are planning to compete and have their profile pages completed. You can also check their websites to learn more.

ROCKY MOUNTAIN CFS ASSOCIATION INC
AKA: Rocky Mountain CFS/ME and FM Associaition
7020 E Girard Ave, Suite 207, Denver, CO, 80224
EIN: 84-1178034
Causes: Health
Mission
The Rocky Mountain CFS/ME & FM Association is a 501(c)(3) non-profit organization for those affected by Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME), and Fibromyalgia (FM). Our mission: Advocate for research Awareness for understanding Educate for patient care Support for hope
Find this Charity online http://www.rmcfa.org
Donate: http://www.rmcfa.org/donations.html
http://www.facebook.com/pages/RMCFA-Rocky-Mountain-CFS-ME-FM-Association/162296707138242
twitter.com/rmcfaorg
Charity Administrator
Mike Munoz

Wisconsin Chronic Fatigue Syndrome Association, Inc.
AKA: Wisconsin ME and CFS Association, Inc. ( 1987)
733 Lois Dr, Sun Prairie, WI, 53590
EIN: 39-1614649
Causes: Health
Mission
In 1987, Wisconsin pledged to assist patients and their families. In 2012, the needs of the majority of our underserved patient population have changed. People sick with ME and CFS who lack computer access and /or skills to use a computer, may be denied the very basis of hope, that is, a proper diagnosis, better medical care, and knowledge about promising research. Mission: The CO-OP for Services is a toll free health information access number.Trained responders briefly talk with people who are ill, secure a mailing address, and send it to a designated confidential e mail address. WIsconsin will send out a package of good medical information about CFS. Goals: To locate the large number of undiagnosed and misdiagnosed CFS patients To give patients with no Internet access a way to get medically approved information. SEPT 1 start up: Health Information CO-OP for Services Toll Free: 1-855-878-5555
Find this Charity online http://www.wicfs-me.org
Charity Administrator
PAT FERO

NEW JERSEY CHRONIC FATIGUE SYNDROME ASSOCIATION INC
AKA: NJCFSA
PO Box 477, Florham Park, NJ, 07932
EIN: 22-3367433
Causes: Health
Mission
The primary purpose of the New Jersey Chronic Fatigue Syndrome Association, Inc is to disseminate information about CFS to patients, caregivers, the health care community and the public, organize and maintain patient support groups, promote research into the cause, method of treatment, diagnosis and cure of the disease
Find this Charity online http://www.njcfsa.org
Donate: http://www.njcfsa.org/donate
http://www.facebook.com/#!/pages/New-Jersey-Chronic-Fatigue-Syndrome-Association-Inc-NJCFSA/141665745869451
twitter.com/njcfsa
Charity Administrator
Patricia LaRosa

ENTEROVIRUS FOUNDATION INC
268 Bush Street 4044, % Rachel Landphere, San Francisco, CA, 94104
EIN: 26-3513934
Causes: Health
Mission
"The scariest disease you've never heard of…" Help us END EV! According to the CDC there are 50 million enterovirus infections annually in the US and an estimated one billion globally. They are as easy to catch as the common cold. Enterovirus infections such as Coxsackie, EV71, and Echovirus can trigger diseases such as juvenile diabetes, viral myocarditis, viral meningitis, Hand Food and Mouth Disease, pancreatitis, and approximatley 26 disease associations that we know of. There is no treatment. EVF is committed to providing funding for: •Research • Finding antiviral medications that work • Improving diagnostic testing • Accelerating communication across the research and medical communities, including clinical education about the latest in diagnosis and treatment • Raising public awareness about enteroviruses and their role in disease.
Find this Charity online http://www.EnterovirusFoundation.org
Donate: npo1.networkforgood.org/Donate/Donate.aspx?npoSubscriptionId=1000786%22%3e%3cimg
http://www.facebook.com/EVForg
Charity Administrator
Rachel Landphere

NEURO IMMUNE DISEASE ALLIANCE INC
AKA: NIDA
29302 Laro Drive, Agoura Hills, CA, 91301
EIN: 27-2861703
Causes: Health
Mission
A specific list of high-priority projects ( The OMI-MERIT Initiative), focused on finding diagnostic tools and treatments, including a Rituxan clinical trial, was created and agreed upon by a global consortium of world renowned researchers and clinicians including, in alphabetical order, Drs. Lucinda Bateman, Yenan Bryceson, Ron Davis, David Dreyfus, Oystein Fluge, Mady Hornig, Nancy Klimas, Andy Kogelnik (Chair), Charles Lapp, Jay Levy, Alan Light, Kathleen Light, Sonya Marshall, Mauro Malnati, Olav Mella, Jose Montoya, Dan Peterson, Simone Pensieroso, Ila Singh, Carmen Scheibenbogen, Charles Shepherd, and Rozamond Vallings. NIDA is collaborating with the Open Medicine Institute (OMI) and all monies raised as part of the Chase-sponsored contest will support the OMI-MERIT Initiative. The goals are to fast-track answers in diagnosis and treatment. For more information please visit http://www.openmedicineinstitute.org.
Find this Charity online http://www.nidalliance.org
Donate: http://www.nidalliance.org/ways-to-help.html
http://www.facebook.com/pages/Chronic-Fatigue-Syndrome-Support-CFSME/273240696061761
Charity Administrator
Linda Tannenbaum

ORGANIZATION FOR FATIGUE AND FIBROMYALGIA EDUCATION AND RESEARC
AKA: OFFER
1002 E South Temple Ste 408, Salt Lake Cty, UT, 84102
EIN: 87-0687610
Causes: Health
Mission
Our mission is to offer hope to individuals who are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome(ME/CFS) and Fibromyalgia (FM) by providing and supporting education, advocacy, research and networking for patients and families. We will accomplish this mission by • Educating patients, families, physicians and community members; • Changing perspectives within community systems, families, governments, public insurance companies, and providers through advocacy and greater awareness; • Supporting ongoing CFS and FM research and disseminate current, accurate information to patients, providers, and other interested parties; • Improving community resources for patients with CFS and FM, by identifying a network of healthcare providers, social workers, and other professionals who are informed, compassionate, qualified, knowledgeable and affordable.
Find this Charity online http://www.offerutah.org/
Donate: http://www.offerutah.org/donations.htm
http://www.facebook.com/offer.utah.3
twitter.com/OFFERUtahorg
Charity Administrator
Paul Shepherd

PHOENIX RISING AN NEID CORPORATION
3709 Beaver Creek Dr, Raleigh, NC, 27604
EIN: 27-3313361
Causes: Health
Mission
Phoenix Rising is a non-profit corporation dedicated to providing people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) information and online programs they can use to enhance their health and well-being.
Find this Charity online phoenixrising.me
Donate: phoenixrising.me/donating
http://www.facebook.com/PhoenixRisingMECFS?ref=hl
Charity Administrator
Karen Luoto

HHV-6 FOUNDATION
1253 Coast Village Rd Ste 105, Santa Barbara, CA, 93108
EIN: 20-1043981
Causes: Health
Mission
The HHV-6 Foundation is a non-profit entity founded to encourage scientific exchange between investigators and to promote scientific and clinical research on the under-appreciated viruses HHV-6A and HHV-6B. The Foundation sponsors international conferences, supports scientists and clinicians seeking to clarify the role of the two HHV-6 viruses in disease, and acts as a resource for patients suffering from HHV-6 infection/reactivation worldwide.
Find this Charity online http://www.hhv-6foundation.org
Donate: http://www.hhv-6foundation.org/support-us
http://www.facebook.com/Hhv6Foundation
Charity Administrator
Jill Chase

GcMAF Australia September 5, 2012 at 3:02 am

I think PR is an excellent resource, and i also think the people here are very courageous.
I appreciate the effort of Cort and many others, I am wondering if a link can be posted to amazon so that a percentage can go to PR.
also a site used by Jessica L. for art

frenchtulip September 5, 2012 at 11:23 am

To help determine a voting strategy in the Chase Contest, two polls have been set up at: https://www.facebook.com/events/442305962477809/?notif_t=plan_user_joined
Please cast a vote for two different ME/CFS nonprofits.

If you are not a member of Facebook and wish to vote in the poll, you can set up a Facebook account. (That will also entitle you to two votes in the Chase Contest and make you eligible to try to earn a third "bonus" vote.) A new Facebook page was set up for the poll and it is open. You do not have to ask to join.

Nielk September 5, 2012 at 12:26 pm

Bumping this to remind members to take this important poll.

Merry September 5, 2012 at 4:44 pm

Bumping. Please participate in the poll.

frenchtulip September 5, 2012 at 7:58 pm

We also need to make certain that every single org that accepted the nomination early gets the needed one vote to share in the $2.5 million grant. Any org that accepted early and doesn't plan to compete actively probably will know to get one vote in. But we need to keep an eye on it.

warriorseekspeace September 5, 2012 at 10:19 pm

I tried the links in Cort's article, to see info about the participating groups, but they all take me to the same page, asking for Chase Bank online acct. info, which I do not have. I have voted in Chase contests before, so I don't know what the problem. I have already "liked" the Chase page from FB. I hope this isn't stumping other people, or discouraging anybody who may be considering starting a FB account just to vote with.

Oh, I am just putting it together that probably what is happening is that from here, PR, or somewhere else outside of FaceBook, on the internet, the links to the Chase voting contest group pages are only accessible to Chase Bank members. However, once a person is logged on to their FB account, they will be able to see the groups' pages. From FaceBook, I can open the links to the pages of those ME/CFS groups participating, because I have already "liked" Chase.

frenchtulip September 5, 2012 at 10:24 pm
frenchtulip

To help determine a voting strategy in the Chase Contest, two polls have been set up at: https://www.facebook.com/events/442305962477809/?notif_t=plan_user_joined
Please cast a vote for two different ME/CFS nonprofits.

If you are not a member of Facebook and wish to vote in the poll, you can set up a Facebook account. (That will also entitle you to two votes in the Chase Contest and make you eligible to try to earn a third "bonus" vote.) A new Facebook page was set up for the poll and it is open. You do not have to ask to join.

The two top vote-getters in the poll held on Facebook were NIDA and Phoenix Rising. It appears to be a tie. Perhaps you may wish to consider voting for one or both of them or voting for one of them and for a different nonprofit of your choosing. Thanks for your help!

I think a really, really important thing is to use the CCG app shared on a ME/CFS friend's timeline or newsfeed to cast a vote and give them a bonus vote. Leave a message there on the friend's page, if possible, that you have used their app, so nobody else will use it (and waste potentially a good bonus vote, which could go to someone else).

Nielk September 6, 2012 at 4:46 am
frenchtulip

The two top vote-getters in the poll held on Facebook were NIDA and Phoenix Rising. It appears to be a tie. Perhaps you may wish to consider voting for one or both of them or voting for one of them and for a different nonprofit of your choosing. Thanks for your help!

I think a really, really important thing is to use the CCG app shared on a ME/CFS friend's timeline or newsfeed to cast a vote and give them a bonus vote. Leave a message there on the friend's page, if possible, that you have used their app, so nobody else will use it (and waste potentially a good bonus vote, which could go to someone else).

I agree that if possible, it is vital to try to take advantage of this "bonus" vote by using this CCF app through Facebook. It will increase your voting power by 50%.

If anyone doesn't understand the voting process, please state your questions here and we will try to clarify.

This year, each person gets only 2 votes for the whole contest period through Facebook. If one uses the "bonus vote", it makes it three. In addition, if one is a Chase customer, one can get two votes through Chase on-line.

If you are thinking "why should I get involved with this?", I would say this is such a unique opportunity that it would be a real shame to pass up.

With just a few clicks of your mouse (which you are touching right now anyway), you can help one or more of these ME/CFS organizations earn much needed funding. This is really an easy one. You will feel good knowing that you did your part.

Cort September 6, 2012 at 5:23 am

The links are updated – I couldn't figure out how to do that until today :(.

Phoenix Rising's Chase profile is very bare by the way but that's not for lack of trying. We uploaded several things to our page four or five days ago but they're not visible.

Cort September 6, 2012 at 5:26 am

I am really confused about the CCG app and getting organizations on a persons timeline. Can somebody explain that?

Nielk September 6, 2012 at 5:51 am
Cort

The links are updated – I couldn't figure out how to do that until today :(.

Phoenix Rising's Chase profile is very bare by the way but that's not for lack of trying. We uploaded several things to our page four or five days ago but they're not visible.

Cort,

You might have to go through this link: https://www.chase.com/online/Specia…ine/Special-Offers/ccg_redirect.htm?nptag=CCG

Merry September 6, 2012 at 6:11 am

Nielk, I'm sorry to say that even after looking at the Chase contest material off and on for weeks, I still don't understand how to get the bonus point. I've just voted through my Chase account. Do I use my two Facebook votes and then figure out how to get the bonus vote?

Cort September 6, 2012 at 6:49 am
Merry

Nielk, I'm sorry to say that even after looking at the Chase contest material off and on for weeks, I still don't understand how to get the bonus point. I've just voted through my Chase account. Do I use my two Facebook votes and then figure out how to get the bonus vote?

Please hold off for a bit Merry with the Facebook votes if you could….What I think is happening is

To Get SOMEBODY ELSE A Bonus Vote – click on an organizations profile in a friends timeline and then use one of your votes.. That will get them a bonus vote.

To Get YOURSELF a Bonus Vote – vote for a organization; it should then show up on your timeline and have one of your friends vote for it… (then either get rid of the link or warn everyone not to vote on it and vote using somebody else's timeline because each person only gets one bonus vote.

I think this is what's happening….if you vote for an organization it should up in your timeline and then if one of your friends clicks on it – you should get a bonus vote. ((for some reason Phoenix Rising is not yet showing in Timelines after someone has voted for it).

Cort September 6, 2012 at 6:57 am
Nielk

Cort,

You might have to go through this link: https://www.chase.com/online/Special-Offers/chasegiving_none.htm?dest=https://www.chase.com/online/Special-Offers/ccg_redirect.htm?nptag=CCG

Thanks that sure looked good but its not letting me vote again for (yes, I will come clean on this) – Phoenix Rising :)…..It sends me back to the regular page and it shows that I've already voted for PR and cannot vote again…I will try again.

Merry September 6, 2012 at 7:07 am

Eeee, sorry, Cort, but I used my Facebook votes. If I understand which part of Facebook is the timeline, it shows that I liked Chase Community Giving, Phoenix Rising an NEID Corporation, and Neuro Immune Diseases Alliance. It also says that I voted for Neuro Immune Diseases Alliance but does not say that I voted for Phoenix Rising an NEID Corporation although I did, twice.

Cort September 6, 2012 at 7:24 am

Ah – the Chase Contest just showed up inside my account….I will try again….nope – same thing – it shows I've already voted

Cort September 6, 2012 at 7:26 am
Merry

Eeee, sorry, Cort, but I used my Facebook votes. If I understand which part of Facebook is the timeline, it shows that I liked Chase Community Giving, Phoenix Rising an NEID Corporation, and Neuro Immune Diseases Alliance. It also says that I voted for Neuro Immune Diseases Alliance but does not say that I voted for Phoenix Rising an NEID Corporation although I did, twice.

No problem…Thanks for voting for us :), I'll go to your timeline and try to vote for NIDA….and see what happens..​
On our Chase site it shows you voted :)​
My vote for Phoenix Rising does not show up on my Facebook page or on Phoenix Rising's Facebook page. I wonder if we're having a problem….none of the banners, etc for Chase work for us, they're not uploading images to the site and votes aren't showing up on Facebook pages….and I can't vote for PR using my Chase account….I'll try and get in touch with them. ​

Merry September 6, 2012 at 7:29 am

Wait! We are not friends yet. I just set up this account after closing the one with my fake name.

Merry September 6, 2012 at 7:31 am

Just sent you a friend request.

Cort September 6, 2012 at 7:37 am

How funny – Searching for info on the bonus votes I typed in 'explaining bonus vote chase giving' and in the first page our blog came up…

OK I voted for NIDA using Merry's Timeline (sorry other orgs – we've got to get this figured out so I can blog about it and they were available)…..

Merry, since you've used all your other votes you should get a message, I guess in your Facebook site, stating you have a bonus vote.

It looks like Chase is having some early glitches – the redirect page from the Chase banking site is down; maybe they are fixing something…

Aileen September 6, 2012 at 7:51 am

The Rules for Facebook Voting (from the Chase page on Facebook, with some rearranging & emphasis added)

Regular Votes:
2.) Facebook: During the Voting Period Facebook Users on the Facebook Chase Community Giving application will automatically receive two (2) votes ("Standard Facebook Vote(s)") to cast during the Voting Period on the Chase Community Giving application found at http://www.facebook.com/chasecommunitygiving (the "CCG Application"). A Facebook user can only cast one (1) Standard Facebook Vote per charity.

Bonus Vote:
Facebook users can earn one (1) bonus vote by sharing content from the CCG Application. There are 4 ways to do this. Choose one:
1.) Clicking the "like" button in the CCG Application to share content by having it pushed to his/her Facebook news fee/wall.
2.) Clicking the "send" button in the CCG Application to share content with another person;
3.) Clicking the "tweet" button in the CCG Application and tweeting the URL of the content the user want to share with another person; or,
4.) Clicking the "copy link" button in the CCG Application and emailing the URL of the content the user wants to share with another person.

And here's the catch …
If the receiving party links back to the CCG Application through the shared content and casts a vote, the Facebook user who shared the content will earn one (1) bonus vote. BUT The receiving party MUST LINK to the CCG Application AND VOTE during the same visit for the sharing Facebook user to receive the extra vote. The sharing Facebook user only will receive the extra vote if the receiving party uses the sharing Facebook users shared link to enter the CCG Application and vote during that visit.

**You must cast BOTH your 2 standard votes BEFORE you can cast your bonus vote
The bonus vote may be cast for any Eligible Nominated Charity, including an Eligible Nominated Charity for which the sharing Facebook user has already cast a Standard Facebook Vote.

Eligible Voters must return to the Chase Community Giving Application on Facebook to find out whether he/she has earned a bonus vote as it will be displayed in the application header as well as in the "apps and games" link. There is a limit of one (1) bonus vote earned per Eligible Voter.

Cort September 6, 2012 at 8:03 am

Thanks Aileen…what do they mean by 'link to the to the CCG application and then vote during the same visit? I guess that means they click in the link – go to the page and vote…that makes sense.

warriorseekspeace September 6, 2012 at 8:17 am

Merry, I just wanted to say it's so delightful how far you've come in the world of internet and facebook operation! I remember when you seemed a little hesitant about it! (And not long before that, I myself was CLUELESS! and also very fearful and suspicious of getting on FaceBook. Now it's such a joy to have connections with hundreds more people who share my condition.

Merry September 6, 2012 at 8:35 am
warriorseekspeace

Merry, I just wanted to say it's so delightful how far you've come in the world of internet and facebook operation! I remember when you seemed a little hesitant about it! (And not long before that, I myself was CLUELESS! and also very fearful and suspicious of getting on FaceBook. Now it's such a joy to have connections with hundreds more people who share my condition.

This is hilarious! I've just been in conversation with Purple all week about how much I hate Facebook and this has nothing to do with being suspicious and fearful. Believe me, I would not have the account if I weren't required to to vote to raise money for ME/CFS organizations. I may close the account after this contest.

Aileen September 6, 2012 at 8:36 am
Cort

Thanks Aileen…what do they mean by 'link to the to the CCG application and then vote during the same visit? I guess that means they click in the link – go to the page and vote…that makes sense.

unfortunately I think it means that many M.E./FM patients are going to be in trouble. Click the link, look and decide it looks too confusing so will come back later – don't vote … and lose the bonus vote for the person. :cry: We're going to have to be sure to stress that you CAN'T do that in all instructions!! I hate this contest and I haven't even voted yet!:ill:

warriorseekspeace September 6, 2012 at 9:06 am

Aww, Merry, I'm sorry you hate it. It's just that you seemed to jump right into a leadership role with it. I totally understand wanting to do something that makes a difference, but finding the things involved in doing that repugnant. After having read/ re-read this whole thread on FB today, I'm reminded of my initial (and ongoing repressed) loathing of FB. For me, I'm just to the point I'm just going with the flow, because it's too hard to resist it right now. And I am just trusting (hoping?) that good would prevail if any of the dreaded misuse of my FB info by those in power were to occur. I probably will simply stop using my FB account someday. Until then, I'm hoping it helps put me in a better position simply by being less isolated, more than it would harm me.

Cort September 6, 2012 at 12:23 pm

Does anyone have trouble getting into Chase? It's really slow…I can't bring up PR right now or New Jersey…..

Nielk September 6, 2012 at 1:28 pm
Cort

Does anyone have trouble getting into Chase? It's really slow…I can't bring up PR right now or New Jersey…..

It's very slow. My husband has been trying to get in and can't.

Cort September 6, 2012 at 1:51 pm

Thanks…I'm glad to hear that….very glad actually because we're quite behind on our Chase blogs and this means we have a chance to get some blogs out and catch up :)…

On the other hand it probably means that participation is really high and their servers are getting smacked…not particularly good news ….:rolleyes:

Here's what I have thus far – based on Aileen's information – which was a godsend…:thumbsup:

The Bonus Vote

A Bonus Vote is an extra vote you can win and then use to vote for any organization you wish. In the grand tradition of Chase Giving the bonus vote is a bit complicated :) but getting them could make a big difference…We're going to explain as simply as possible how to get an extra vote. If it's too much – forget about the Bonus vote strategy and just vote!
To Get a Bonus Vote

Sharing Content – To get a bonus vote Chase wants you to share information on an organization you like with a friend and then have them vote for that organization.
There are two catches…. the person voting for the organization must click on your link and then vote without going to any other pages….and you only get one Bonus Vote.
How to Share An Organization
a) go to an organization's Chase Giving page

and then use the Like/Send/Twitter buttons below the profile or the link in the box in an email to send the Chase Giving request.
a) Like button – clicking the 'Like button – this will put the organization's content on your newsfeed or timeline. Then one of your Facebook Friends (only your friends can see your timeline) can vote.
b) Clicking on the 'Send' button – will send the organization's profile to a person's Facebook or to their twitter account. If they click on the link they can vote. Here's a sample…."One of my favorite ME/CFS organizations, Phoenix Rising, has the opportunity to win 10K in the Chase contest. Please click on this link and then vote! "
c) Twitter – click on the twitter button to send a request on twitter.
c) Linking – taking the link provided below the Send and Like buttons and paste it into an email asking a friend to vote for it .

Merry September 6, 2012 at 2:51 pm
warriorseekspeace

Aww, Merry, I'm sorry you hate it. It's just that you seemed to jump right into a leadership role with it. I totally understand wanting to do something that makes a difference, but finding the things involved in doing that repugnant. After having read/ re-read this whole thread on FB today, I'm reminded of my initial (and ongoing repressed) loathing of FB. For me, I'm just to the point I'm just going with the flow, because it's too hard to resist it right now. And I am just trusting (hoping?) that good would prevail if any of the dreaded misuse of my FB info by those in power were to occur. I probably will simply stop using my FB account someday. Until then, I'm hoping it helps put me in a better position simply by being less isolated, more than it would harm me.

warriorseekspeace, I'd like to continue this conversation but off thread. May not get back to you until tomorrow afternoon, though.

Nielk September 6, 2012 at 3:36 pm

Chase just posted this message on fb.

Chase Community Giving
The response to this year's program is overwhelming! While we are very excited about all of this activity, the traffic is making it difficult for some people to cast their votes. Not to worry, we are actively working to resolve this issue, so please be patient. Please stay tuned for an update.

madietodd September 6, 2012 at 3:37 pm

Last year this was really simple, but this year there's no place to vote. I've liked the Chase Community Giving page, but when I go there there's no information about voting. How are you all doing it?

Also, I'm completely confused by this bonus vote idea….maybe because I can't see the page you're talking about. Do we get one bonus vote every day, or one per person, total?

Marg September 6, 2012 at 3:42 pm
madietodd

Last year this was really simple, but this year there's no place to vote. I've liked the Chase Community Giving page, but when I go there there's no information about voting. How are you all doing it?

Also, I'm completely confused by this bonus vote idea….maybe because I can't see the page you're talking about. Do we get one bonus vote every day, or one per person, total?

I don't understand it either. I went to the Chase Giving Page page and nothing. I also clicked on the App on my FB page and a blank page came up. I hate missing the vote.

Nielk September 6, 2012 at 3:52 pm
Marg

I don't understand it either. I went to the Chase Giving Page page and nothing. I also clicked on the App on my FB page and a blank page came up. I hate missing the vote.

the problem is not with you – it's Chase which is running into technical problems right now. They said to hold of voting for the time being until they can repair the problem.

Aileen September 6, 2012 at 4:26 pm
madietodd

Last year this was really simple, but this year there's no place to vote. I've liked the Chase Community Giving page, but when I go there there's no information about voting. How are you all doing it?

Also, I'm completely confused by this bonus vote idea….maybe because I can't see the page you're talking about. Do we get one bonus vote every day, or one per person, total?

This contest is NOT a daily voting one – thank goodness!! You get to vote for 2 different organizations and, if you correctly jump through a couple hoops, get one bonus vote. That is a grand total of 3 votes to be cast during the entire length of the contest.

Cort September 6, 2012 at 4:49 pm
Nielk

Chase just posted this message on fb.

Chase Community Giving
The response to this year's program is overwhelming! While we are very excited about all of this activity, the traffic is making it difficult for some people to cast their votes. Not to worry, we are actively working to resolve this issue, so please be patient. Please stay tuned for an update.

Glad to hear this…..although it does mean the competition is fiercer than ever…..it does give me some time to catch up….I'll have something more on the Bonus vote situation tomorrow.

Marg September 6, 2012 at 4:53 pm
Nielk

the problem is not with you – it's Chase which is running into technical problems right now. They said to hold of voting for the time being until they can repair the problem.

LOL, good it means we are not crazy.

Hope123 September 6, 2012 at 5:38 pm

Is the contest open to international voting as it was in years past? I have family/ friends who live outside the US and in years past, Chase rules have allowed them to vote. This is especially important to relay to PR members as many are not in the US but might vote if the rules allowed them to and this fact was publicized.

frenchtulip September 6, 2012 at 5:40 pm

Yes, Hope, you may vote from anywhere around the world!

frenchtulip September 6, 2012 at 5:41 pm

Please be aware that searching for our org's at the Chase site can be tricky. Phoenix Rising is listed as Phoenix Rising An NEID Corporation. If you just search for Phoenix Rising, several of them pop up. One person voted for the wrong PR.

Cort September 7, 2012 at 4:49 am
frenchtulip

Please be aware that searching for our org's at the Chase site can be tricky. Phoenix Rising is listed as Phoenix Rising An NEID Corporation. If you just search for Phoenix Rising, several of them pop up. One person voted for the wrong PR.

Thanks for the warning – the names listed on Chase are the names registered with Guidestar – which are not always the names we know the orgs by….here are the ME/CFS organizations I know of

Phoenix Rising An NEID Corporation
Rocky Mountain CFS Association
New Jersey Chronic Fatigue Syndrome Association
Neuroimmune Disease Alliance (NIDA)
Wisconsin Chronic Fatigue Association
Organization for Fatigue and Fibromyalgia Education and Research
HHV-6 Foundation
Enterovirus Foundation

Cort September 7, 2012 at 10:10 am

Here's the count as of this morning…NIDA was in the top 100 and Phoenix Rising in the top 150 :)

  • Neuroimmune Disease Alliance at 90th place (58 votes)
  • Phoenix Rising An NEID Corporation at #128 (24 votes)
  • New Jersey Chronic Fatigue Association- 8 votes*
  • Rocky Mountain CFS Association, Inc – 8 votes
  • Wisconsin Chronic Fatigue Association – 4 votes,
  • Organization for Fatigue and Fibromyalgia Education and Research – 1 vote
  • HHV-6 Foundation – 0 votes
  • Enterovirus Foundation – 0 votes

Cort September 7, 2012 at 10:16 am

I've created a Bonus Vote Exchange here for people who want to try to maximize their votes

warriorseekspeace September 7, 2012 at 10:51 am

Hi. I see on my FB page, the RMCFA is being promoted too. Isn't this going to split the vote? Does anyone have a dialogue going with the people promoting that group? Just wondering before I do my voting.

Cort September 7, 2012 at 11:00 am

Yes it will but I think that's the nature of the contest. The orgs did not get together and agree to support two organizations so that's understandable…I would be doing the same thing :)

Aileen September 7, 2012 at 12:31 pm
Hope123

Is the contest open to international voting as it was in years past? I have family/ friends who live outside the US and in years past, Chase rules have allowed them to vote. This is especially important to relay to PR members as many are not in the US but might vote if the rules allowed them to and this fact was publicized.

We will be reaching out but we are trying to figure out how the heck to vote first so we can give people instructions. They really make this difficult which is why I detest this contest. :devil: I'm Canadian, btw.

Speaking of difficulty, I tried for hours last night and I could not vote. It would not "Allow" chase although I kept clicking the allow button. I finally switched browsers — from Safari to Firefox and it worked fine. So if you are having trouble that might be an option.

Cort September 7, 2012 at 12:47 pm
Aileen

We will be reaching out but we are trying to figure out how the heck to vote first so we can give people instructions. They really make this difficult which is why I detest this contest. :devil: I'm Canadian, btw.

Speaking of difficulty, I tried for hours last night and I could not vote. It would not "Allow" chase although I kept clicking the allow button. I finally switched browsers — from Safari to Firefox and it worked fine. So if you are having trouble that might be an option.

Thanks Aileen, Firefox is often a good option if other browsers don't work…

Aileen September 7, 2012 at 7:46 pm

Ok, I picked a partner, I voted for PR (took almost 2 days of trying but finally succeeded). Sent my partner the link by clicking on "Send" option. It showed up on her FB page but wouldn't take her to PR page!!! She ended up not being able to use the link. So I have no bonus vote.
She voted for NIDA and sent me a link. It did work. I clicked on it and voted. My vote was counted but she did not receive her bonus vote. If someone could tell me what went wrong I'd appreciate it.
How on earth am I supposed to write up instructions for other people if I can't even get the bonus vote thing to work myself?? :mad:
Has anyone been successful in getting bonus votes?

Cort September 8, 2012 at 6:52 am
Aileen

Ok, I picked a partner, I voted for PR (took almost 2 days of trying but finally succeeded). Sent my partner the link by clicking on "Send" option. It showed up on her FB page but wouldn't take her to PR page!!! She ended up not being able to use the link. So I have no bonus vote.
She voted for NIDA and sent me a link. It did work. I clicked on it and voted. My vote was counted but she did not receive her bonus vote. If someone could tell me what went wrong I'd appreciate it.
How on earth am I supposed to write up instructions for other people if I can't even get the bonus vote thing to work myself?? :mad:
Has anyone been successful in getting bonus votes?

Jeez…the link wouldn't work….and she didn't get bonus votes….wow…we are having troubles but there is some good news…despite all that

NIDA (Neuro-immune Disease Alliance) is in the top 100 with over 200 votes, Phoenix Rising is just out of the top 200 with 118 votes – we were actually in the bottom 400's yesterday (I counted wrong), Rocky Mountain has 25, New Jersey has 13, OFFER has 8 votes, who am I missing….

Both Phoenix Rising and NIDA moved up quite a bit yesterday – a good sign. I am going to send out newsletters today and hopefully we'll climb more…

Thanks for your persistence Aileen and all the ideas :)

Anne September 8, 2012 at 8:38 am
Aileen

Has anyone been successful in getting bonus votes?

Yep, worked for me! After having voted, I clicked "Like" and then wrote a message to post the link on my wall, and then when someone used that link to vote, I got a notification saying I had earned a bonus vote. NOTE: If you use the "Like" button, it seems important to write something too, not just click like, in order to get the link up on your timeline.

Anne September 8, 2012 at 8:41 am

Updated message to use as a template if you like, to send out to friends on Facebook:
(How to reach all your friends? – see next post below):

Friends, please help us raise money for ME/CFS research by voting in the Chase Community Giving Contest. Previous Chase contests have resulted in $170,000 to ME/CFS research – this time we can win some more! Help us by voting – it only takes a few minutes.

Vote before Sept 19. Each person has two votes (plus a possible bonus vote, see below). Here’s how:

NOTE: The Chase FB site is overloaded at times, so if it behaves weirdly, please try again later!

1. Go to Chase Community Giving’s FB page and click “Like” (if you haven’t done this previously).
https://www.facebook.com/ChaseCommunityGiving?ref=ts

2. Go to this page:
http://fb.chasegiving.com/charity/view/ein/27-2861703
(Or type NIDA in the box “"Search charities".) "Neuro Immune Disease Alliance" will appear. Click "Vote". At the question "Allow" or "Allow App", click Yes.

3. Once you have voted, click the "Like" button and – IMPORTANT – write a short message to post it on your timeline. If someone then follows the link and votes you get a bonus vote.

4. Then go to this page:

http://fb.chasegiving.com/charity/view/ein/27-3313361
(Or type NEID in the box "Search Charities".) "Phoenix Rising, an NEID corporation" will appear. Click “Vote” and then click “Like” and write a short message for your timeline.

5. Send this message on and ask your friends to vote too.

6. If you get a bonus vote, you can use it to vote for NIDA or Phoenix Rising NEID again, but you have to wait a while.

The top 200 organizations will receive $10,000 each.

Many thanks!

Anne September 8, 2012 at 8:45 am

How to send a message to all your Facebook friends:

Two ways:

1. You can only send normal messages to 20 people at a time. Open Facebook in two browser windows simultaneously, and in one window, go to Messages; in the other window, go to the list of your friends. Now use the friends list to decide which friends you want to message – and use the Message window to create a message to the first 20 that you see. Then make a second message for the next 20, and so on.

2. Or, you can create an event – that opens up a possibility to send a message to all your Facebook friends, see

Cort September 8, 2012 at 8:50 am

It looks like the 'event' a 2 week rolling event is it :)

Thanks again Anne

Aileen September 8, 2012 at 10:51 am
Anne

Updated message to use as a template if you like, to send out to friends on Facebook:
(How to reach all your friends? – see next post below):

Friends, please help us raise money for ME/CFS research by voting in the Chase Community Giving Contest. Previous Chase contests have resulted in $170,000 to ME/CFS research – this time we can win some more! Help us by voting – it only takes a few minutes.

Vote before Sept 19. Each person has two votes (plus a possible bonus vote, see below). Here’s how:

NOTE: The Chase FB site is overloaded at times, so if it behaves weirdly, please try again later!

1. Go to Chase Community Giving’s FB page and click “Like” (if you haven’t done this previously).
https://www.facebook.com/ChaseCommunityGiving?ref=ts

2. Go to this page:
http://fb.chasegiving.com/charity/view/ein/27-2861703
(Or type NIDA in the box “"Search charities".) "Neuro Immune Disease Alliance" will appear. Click "Vote". At the question "Allow" or "Allow App", click Yes.

3. Once you have voted, click the "Like" button and – IMPORTANT – write a short message to post it on your timeline. If someone then follows the link and votes you get a bonus vote.

4. Then go to this page:
http://fb.chasegiving.com/charity/view/ein/27-3313361
(Or type NEID in the box "Search Charities".) "Phoenix Rising, an NEID corporation" will appear. Click “Vote” and then click “Like” and write a short message for your timeline.

5. Send this message on and ask your friends to vote too.

6. If you get a bonus vote, you can use it to vote for NIDA or Phoenix Rising NEID again, but you have to wait a while.

The top 200 organizations will receive $10,000 each.

Many thanks!

Most of that is really good but if the person votes like this they will not give anyone else a bonus vote. Perhaps ask if before they vote they could get a friend to do it with them? They vote for NIDA as explained but the friend vote for PR and they vote for PR through friends link?

Another correction. The top 200 do not receive $10,000 each. The money breaks down like this:
1st Place: $250,000
2nd – 11th Place: $100,000 each
12th – 46th Place: $50,000 each
47th – 96th Place: $20,000 each
97th – 196th Place: $10,000 each

Tuha September 8, 2012 at 2:52 pm

with my experiences – the best way how to motivate the friends to vote is just to ask directly throught facebook chat. if you are there and you see a friend online – just make a small chat with him. when I do it – almost noone refused it to do it for me. if I sent a message to everyone only few friends voted – the people are just lazy

Anne September 8, 2012 at 2:55 pm

Thanks Aileen! My estimation is that what matters most is that we get our extended Facebook networks to vote. I have thought hard about the bonus vote, but have realized that if it gets any more complicated than this, my friends won't vote at all… And it's so important that they do!

Every Facebook friend we can involve means two votes for ME/CFS org:s, and if we all involve friends it will grow exponentially, so let's make it simple for them, I think.

Also, I haven't been able to use my bonus vote to vote again for Phoenix Rising or NIDA, even though I've read here that you're supposed to be able to. I have one vote left but can't vote for PR or NIDA anymore. This makes me even more convinced that the power is in getting the word out rather than having complicated strategies among us in the patient community.

I have changed the number to Top 196 in my newly sent messages. Thanks!

Anne September 8, 2012 at 2:55 pm
Tuha

with my experiences – the best way how to motivate the friends to vote is just to ask directly throught facebook chat. if you are there and you see a friend online – just make a small chat with him. when I do it – almost noone refused it to do it for me. if I sent a message to everyone only few friends voted – the people are just lazy

Tuha, that is great advice!

warriorseekspeace September 8, 2012 at 3:19 pm

Hi, Anne. Just to let you know, I got an alert from FB/Chase, that I have a bonus vote. When I click on the link in that alert, it takes me right to a choice to "use bonus vote" for either Phoenix Rising, or NIDA, the two I voted for to begin with. (I haven't used it yet, waiting to see who will need it). Just fyi.

Aileen September 8, 2012 at 3:59 pm
Anne

Thanks Aileen! My estimation is that what matters most is that we get our extended Facebook networks to vote. I have thought hard about the bonus vote, but have realized that if it gets any more complicated than this, my friends won't vote at all… And it's so important that they do!

Hmmm… perhaps 2 sets of instructions are necessary then. One for those of us in the patient community who can find a partner and are really motivated and those close to us who also are really willing to help and a separate set for uh, reluctant, family and friends?

Anne

Also, I haven't been able to use my bonus vote to vote again for Phoenix Rising or NIDA, even though I've read here that you're supposed to be able to. I have one vote left but can't vote for PR or NIDA anymore. This makes me even more convinced that the power is in getting the word out rather than having complicated strategies among us in the patient community.

I'm confused. Are you sure you got a bonus vote? The first time someone went through my link (she did everything properly) it refused to give me my bonus vote. The 2nd try I got my bonus vote. It will let me vote for either of my choices a 2nd time.

Anne September 8, 2012 at 4:12 pm
Aileen

Hmmm… perhaps 2 sets of instructions are necessary then. One for those of us in the patient community who can find a partner and are really motivated and those close to us who also are really willing to help and a separate set for uh, reluctant, family and friends?

Good idea!

Anne September 8, 2012 at 4:16 pm
Aileen

I'm confused. Are you sure you got a bonus vote? The first time someone went through my link (she did everything properly) it refused to give me my bonus vote. The 2nd try I got my bonus vote. It will let me vote for either of my choices a 2nd time.

warriorseekspeace

Hi, Anne. Just to let you know, I got an alert from FB/Chase, that I have a bonus vote. When I click on the link in that alert, it takes me right to a choice to "use bonus vote" for either Phoenix Rising, or NIDA, the two I voted for to begin with. (I haven't used it yet, waiting to see who will need it). Just fyi.

This is all so strange! I am sure I got a bonus vote, I can still see the notification on my FB page (thanks warriorseekspeace), and on the Chase page it shows that I have one vote left (I have used my first two votes, one for PR and one for NIDA), but I can't use it for PR or NIDA. Says "Voted". All the other charities have the little green Vote button, so it seems I could use my vote for them… I may have to see if there by any chance is a third ME/CFS org in the running at the end of the contest.

Glad the bonus vote works as it should for the rest of you – it's not working for me! :-(

Aileen September 8, 2012 at 4:52 pm

I think the Chase app has a mind of its own. Too bad it won't give us its version of the rules!!!:confused:

Cort September 9, 2012 at 8:36 am

Very good news at the beginning of day 4: both NIDA and Phoenix Rising are in the top 100 – which wins them 20K. NIDA is up to 68th place! and Phoenix Rising is 93….

These are major jumps from the first and second days. We're doing well in a very competitive environment! Thanks everyone sincerely for voting…

I sent out a Phoenix Rising and a Forum newsletter yesterday..

Today I'm going to focus on Facebook and getting the word out via email.

Tomorrow we'll have a blog on what NIDA's doing – they're a great group that's is going to focus their support on a new international research effort….its quite exciting…

Merry September 9, 2012 at 8:42 am
Cort September 9, 2012 at 10:09 am

I've also redone the voting instructions to incorporate Anne's suggestions….and put them on the two blogs…Thanks Anne!

Nielk September 13, 2012 at 6:21 am
Cort

[​IMG]Opportunity Knocks! The Chase Contest for Non-profits Has Begun!

The Chase Giving Contest is back and with it the opportunity to get cash-starved ME/CFS non-profits some real cash. All it takes is your vote and spreading the word for the next two weeks (Sept 6-19th). This, in the world of non-profits is a remarkably easy (if nerve-wracking) way to make money…
Over the past two years Phoenix Rising has played a key role in getting Chase to pump over $170,000 into ME/CFS non-profits coffers and now we and eight other organizations are in the contest. The Top 200 vote getters this year will win from 10K to 250K.

Where We Are Now – Because you only have two votes we suggest that you focus them on organizations with a good chance of winning. In this blog we're going to focus on the top two vote-getters; Phoenix Rising and the Neuro Immune Disease Alliance or NIDA, an ME/CFS research funder. On the fourth day of the two week contest here's where the organizations that are strongly in the running are…

  • Neuro Immune Disease Alliance – #68 – $20K
  • Phoenix Rising An NEID Corporation – #96 – 20K

To Vote on Facebook

NOTE: The Chase FB site is overloaded at times, so if it behaves weirdly, please try again later!

If you do not have a Facebook Account - go to http://www.facebook.com and quickly create a page. Since you must ‘like’ Community Chase Giving first in order to vote go to Community Chase’s Facebook page http://www.facebook.com. Each person has two votes (plus a possible bonus vote, see below).

If You Have a Facebook Account

1. Go to Phoenix Rising's page athttp://fb.chasegiving.com/charity/view/ein/27-3313361

(Or type NEID in the box "Search Charities".) "Phoenix Rising, an NEID corporation" will appear. Click “Vote”. If it asks you to "Allow" or "Allow App", click Yes. Then click the Like and Send buttons to spread the word about Phoenix Rising and the contest.

2. Then go to NIDA's page: http://fb.chasegiving.com/charity/view/ein/27-2861703

(Or type NIDA in the box “"Search charities".) "Neuro Immune Disease Alliance" will appear. Click "Vote". At the question "Allow" or "Allow App", click Yes. Then click the Like and Send buttons to spread the word about Phoenix Rising and the contest.

To Vote From Chase (all Chase customers)

Chase Bank and Facebook Users- can vote for the same organization twice…If you get a Bonus vote you can vote for an organization a third time.

The Bonus Vote

A Bonus Vote is an extra vote you can win and then use to vote for any organization you wish. In the grand tradition of Chase Giving the bonus vote is a complicated but getting Bonus votes could make a big difference…We're going to explain as simply as possible how to get an extra vote. If it's too much – forget about the Bonus vote strategy and just vote!

To Get a Bonus Vote

Sharing Content – To get a bonus vote Chase wants you to share an organization you like with a friend and then have them vote for that organization.

  • the person voting for the organization must click on your link and then vote without going to any other pages..
  • you only get one Bonus Vote..

How to Share An Organization

a) Go to Phoenix Rising's page athttp://fb.chasegiving.com/charity/view/ein/27-3313361 and then click the like button to put the organization on your Timeline. Then ask one of your Facebook Friends to click on it and vote…You'll then get a Bonus you can use to vote for Phoenix Rising or another organization, including ones you already voted for.

b) For Family and Friends - Clicking on the 'Send' button is a great way to get a string going with family and friends. Click the Send button will send the organization's profile to a person's Facebook page, their email address or to their twitter account.

For instance, I'm asking my brother, Cass, to vote for Phoenix Risng An NEID Organization and NIDA. I will get a bonus vote when my brother votes. He will ask his partner to vote for the two organizations; once his partner has done that Cass will get a vote. Then his partner will send a message to my sister, who will send the message to her husband to his son etc. As long as the string continues everyone gets 3 instead of 2 votes.

You can also try The Bonus Vote Exchange we created.

We've created a Bonus Vote Exchange on Phoenix Rising to try and facilitate this process. Check it out here… For more information on how to vote check out this Forum thread or contact me at Cort@phoenixrising.me

Phoenix Rising's Winnings

Phoenix Rising has several projects it could spend the winnings on. Check some of them our here:

  • Rate a Practitioner program – to help ME/CFS patients save time, money and improve their health by finding good doctors and avoiding bad ones
  • Community Rising program - to break up the isolation and connect people in their local communities, provide avenues for assistance, reviews of local clinics and physicians, etc.
  • Making the Forums More Accessible to the Visually Impaired – upgrading the Forums so that as many as possible can participate.

Your vote could make the difference whether PR or NIDA win $10,000 – $20,000 – or nothing.

Since this year only 2 votes (3 if bonus vote is used) are allowed per person, each vote can make a HUGE difference.

Merry September 13, 2012 at 6:34 am

As of 8:30 EST:

Neuro Immune Diseases Alliance (NIDA) 63rd with 1085 votes.

Phoenix Rising an NEID Corporation 142nd with 551 votes.

These two organizations, which have been in the running to win cash, continue to slide in the standings. Please vote!​

Merry September 16, 2012 at 6:53 am

Contest stats as of 8:30 am EST:

Neuro Immune Diseases Alliance is 66th with 1555 votes. Phoenix Rising an NEID Corporation is 161th with 761 votes.

Other ME/CFS organizations continue to pull in some votes but still are not on the leaderboard. Rocky Mountain CFS Association is top of this group with 83 votes. To get on the leaderboard, an organization would need at least 668 votes.

Four days remain in the contest.

Thanks to all who are helping out.

Little Bluestem September 17, 2012 at 1:17 am
Cort

I've also redone the voting instructions to incorporate Anne's suggestions….and put them on the two blogs…Thanks Anne!

What blogs, where? I did occur to me that I have a friend who I think is on Facebook (I am not) and maybe she would vote for one of more of the ME organizations if she has not voted already. I'm guessing a lot of the instructions that I have seen have to do with the bonus vote which I am not going to get into with her.

Merry September 17, 2012 at 5:49 am

Contest stats as of 7:30 am, September 17th:

Neuro Immune Diseases Alliance (NIDA) 69th with 1674 votes

Phoenix Rising an NEID Corporation 148th with 868 votes

NIDA has fallen 3 places, and PR has risen 13. NIDA is still in the running for $20,000 and PR for $10,000.

Voting ends the 19th.

SpecialK82 September 17, 2012 at 7:55 am

Thanks so much everyone for updating us everyone – love the banners – glad to see PR has risen and NIDA is still in decent shape :)

Previous post:

Next post: