CFIDS Association Aces First Round of Sanofi Challenge

September 28, 2012

Two CFIDS Association projects win out over more than 100 other competitors and make it to the final round in the Sanofi Competition to fund medical breakthroughs

The CFIDS Association of America’s research efforts have been nothing if not innovative since Suzanne Vernon took over the organizations research helm about five  years ago.  Dr. Vernon has ‘smushed’ (:)) separate research projects together to form multi-layered ones, funded efforts on Drug repurposing and cajoled researchers somehow into doing complete metabiome and epigenetic analyses all on quite  limited funding.

The CAA has been adept at maximizing their limited resources but nowhere may they get more bang for their buck than in this years Sanofi Challenge. Last summer Sanofi Pharmaceuticals invited non profit and for profit  organizations to come up with proposals demonstrating how they could effectively work together to improve health.  Over a hundred proposals were submitted and when the dust settled two CFIDS Association proposals made it to the top four…You’ve gotta wonder what the odds of that are.

Now the CAA and its partnering organizations are getting $25,000 and the help of Sanofi mentors to further refine their proposals  for the final round with  rewards of $100,000 and $300,000 at stake.  If my math is right one of the CAA proposals has at least a 50-50 chance of winning at least $100,000.

Let’s take a look at the two CFIDS Association proposals Sanofi thought so highly of…

Partnering to End Pain

The CAA, TMJ and Vulvodynia Association propose to develop a web-based patient registry for people with six chronic pain conditions (CFS/FM/IBS/TMJ/IC/endometriosis).

One of the big questions facing the  pain and fatigue research communities is how  similar these conditions are. By creating a standardized database containing everything from symptoms to test results this registry will help researchers to help determine just that.

The findings could have major  ramifications. If studies find these disorders – which affect tens of millions of American’s and cost the economy hundreds of billions of dollars a year – have similar causes,  they could set the stage for large, (very large), research efforts.  (Can anyone say a Chronic Pain and Fatigue Institute at the NIH?). It’s hard to imagine this proposal not winning one of the top  two prizes….

Registries for All Diseases

The CFIDS Association of America,  the Genetic Alliance, the Inflammatory Breast Cancer Research Foundation and the National Psoriasis Foundation collaborated  to create a patient registry to make it easier to develop clinical trials…something ME/CFS, of course, with its meager funding and historically low rate of clinical trials, vastly needs.

The CAA is  up against some stiff competition; a proposal to develop an app to detect signs of Alzheimer’s earlier in the lifespan, and a tool for ‘real-time’ flu surveillance to promote better immunization.  Even if it all ended now, they’ve already in a sense ‘won’, however; they and their partnering organizations have received $50,000 to refine their initiatives, they’ve developed valuable contacts at high levels and they’re displaying their efforts on a large stage.  With a little luck they’ll make it into the big bucks as well.

They’ll present their proposals before the judges on Oct 29th and we’ll know on Nov 15th. In the meantime congratulations to the CAA for coming so far..

 

3 comments

{ 3 comments… read them below or add one }

Snow Leopard September 30, 2012 at 5:59 am

This is excellent news. While the other two projects are excellent, I daresay they could easily get funding to develop those apps elsewhere, hence I hope at least one of the ME/CFS related projects wins.

Reply

Cort September 30, 2012 at 6:57 am

Good point – I’m hoping so too….Getting easier clinical trials fits right in with the move to make the FDA work more effectively for us (ie the Stakeholder Meeting) and I think it would be tremendous to determine how closely how all these disorders are linked….If they are in some ways that could really help funding.

Reply

reda grudzinsky October 4, 2012 at 3:39 pm

Hello my name is Reda i am a patient of Dr Lerner since 2000 i was suffering fro cfs and new i had to do something i could not work anymore so Dr Lerner was recomended to me after first apt he began his regiment of valtrex and valcyte i followed is advice took a little time but i began feeling better and better and today i am able to walk 6 miles what a change this worked for me and will work for you just be patient, and work with your DR. as of today i consider myself
cured,and i am living proof that it works DR Lerner saved my live and i am forever grateful.
g
r

Reply

Leave a Comment

Previous post:

Next post: