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Aviva! Your vote can help fund a year of ME/FM awareness in Canada!

It will cost you nothing more than an online vote to help see the National ME/FM Action Network enter the second round of the Aviva community competition to win $100,000. Voting in this round closes 14th October and you can vote every single day until then – so please join us and cast your vote now! By Firestormm.

National ME FM Action Network - Aviva 2013 (3)Join us in sending the National ME/FM Action Network of Canada through to the second round of the Aviva Community Fund competition so that they can win $100,000 to be used to help raise awareness on 12th May 2014.

This is the first of three qualifying rounds of the online competition. At the time of writing we have 12 days left until all the votes are totted up and the National ME/FM Action Network will move hopefully a little closer to winning $100,000.

Voting is so darned simple even I could do it!

Go here to register.

Click the button, Vote Now.

Complete the simple voting registration form (the one on the left) with your email address and provide a password.

Or, you can vote via your Facebook account (the blue button above), and simply skip the permission request to access your profile etc.

You only need to register the first time and you don’t need a Facebook account to vote in this competition.

You can vote every single day (using the same link will redirect you to the right place – or click the pictures above and below which are also linked to the voting page) and you can ask to be reminded to vote automatically.

Voting for the first round ends on 14th October at which time we’ll aim to publish another article when they are successfully through to the next round.

But your support is needed. So please help give a fighting chance for the National ME/FM Action Network of Canada to win $100,000 so that they can ensure May 12th 2014 begins a spectacular year for raising awareness of our disease and bringing much needed attention to those like us who are most affected by it.

The Action Network has already made it into the top ten in its size category of this round and if it maintains that position and is then able to repeat its performance in subsequent qualifying rounds, it will go through to the semi-finals in December. All finalists in each round win $5,000. The leaderboard can be found here.

Please consider sharing this article on your own Facebook page to help bring greater awareness to the competition. Use our share link (the green pop-out located on our Home page version of this article), to ‘like’ on Facebook, to ‘tweet’ or to recommend the article on other applications.

The National ME/FM Action Network of Canada

The Action Network’s contest statement is as follows:

Our dream begins with awareness. May 12th Awareness Day is a chance for the 750,000 people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM) to be seen and heard! These illnesses are real; the people are real; and they need help NOW!  

ME/CFS and FM are chronic and severely disabling illnesses. They are as disabling as MS and are more prevalent in Canada than breast cancer, MS and AIDS combined! People are frequently bedridden and become isolated from friends and family – invisible in their own communities.  

Dr Nancy Klimas, an expert in both ME/CFS and AIDS, was quoted as saying “A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS. If I had to choose between the two illnesses I would rather have H.I.V.

These illnesses do not discriminate. All races, men and women, rich and poor, adults and children can be afflicted. It is devastating when a child is forced to cope with such a disabling illness.  

National ME FM Action Network - Aviva 2013We are on a mission to bring awareness in Canada for this community of people living with these illnesses and to set the stage for fundraising for research and more physician education.   To date our volunteer efforts have been handcuffed as not only is our community very disabled, many are in financial distress. The illness limits our ability to raise the substantial amounts required to mount a large scale awareness event and to fund the desperately needed research. It is the dream of our community to erase stigma and finally be taken seriously by friends, family, researchers, government and those in our local communities.  

This contest gives us a chance to fund a nation wide awareness campaign for 2014, the 22nd Anniversary of May 12th Awareness Day.  It will also define Canada as a world leader in raising awareness as this day is also an international event. It will not only benefit 750,000 Canadians, but it will indirectly benefit the 20 million people that suffer worldwide.  

We will use the funds to hold events in as many communities across Canada as possible which will lay the foundation for a strong network of organizations in Canada and future fund raising for education and research.  We’ll connect with every MP and provincial/territorial representative in Canada and have May 12th proclaimed in cities nationwide. We’ll sport t-shirts, carry signs and have engaging speakers in as many communities as possible. Each event will have its own venue but will share elements common to all. In order to unite the larger community across Canada we’ll also advertise in national and local papers, and, if funding permits, on TV and radio. As education is so critical, we will also target physicians, medical students and other health professionals with our letters and/or advertising.  Brochures and a white board medicine video are planned.  

We believe with awareness, will come action! Our community is desperately in need of treatment facilities and funding is required to support research and our scientists.  A successful May 12th will bring many rewards for years to come. These activities will not only benefit us today, but they will be an investment in our future.  

Aviva’s gift will help to unite our national and local communities and make a difference to the lives of many Canadians. It will give us credibility in our quest for treatment and a cure and hope for a better tomorrow.  

To quote Helen Keller – “Alone we can do so little; together we can do so much.”

 

{ 81 comments… add one }

  • Battery Muncher October 8, 2013, 9:35 am

    2336. We're now up to 8th – just! It seems like we've picked up ~130 independent supporters since two days ago (613–>743) so well done to people recruiting.

  • Nielk October 8, 2013, 11:47 am

    If you have some time, please leave a comment at the bottom of the page when you vote. I was told that we need 100 comments and we have 61 so far.

  • May12th October 9, 2013, 1:44 am

    Thanks for mentioning comments Nielk. Yes we want lots of comments. They want to see at least a hundred. There is a judging round so the comments will help sell the entry.

    We need everyone to vote. It's not just so we win the prize but just being in the contest gives us exposure. If all of us where to vote we'd be way out in 1st place and people would be looking to see who we are. The prize would be a bonus.

    Right now we're behind a beagle sanctuary and
    a children splash pad. We deserve to be ahead of entries liked this. So anything you can do to help get the vote out would be greatly appreciate and beneficial to all of us.

  • Battery Muncher October 9, 2013, 9:30 am

    2702. 803 independent 'supporters' – another ~50-60 voters since yesterday :thumbsup:

  • aimossy October 9, 2013, 9:56 am

    oh geeze, I didn't notice the comment bit, will do with tomorrows vote!

  • anniekim October 9, 2013, 2:36 pm

    Am voting daily. What rank do they need to be to get through to the next round? Thanks

  • Firestormm October 9, 2013, 6:17 pm
    anniekim

    Am voting daily. What rank do they need to be to get through to the next round? Thanks

    Within the top 10 I believe :)

  • May12th October 9, 2013, 11:43 pm

    In the top 10 of the medium budget category. The rank they are showing doesn't appear to have much meaning other than 30 entries more on to the semi finals. I find it misleading but were still in the top 30 too so I guess that's a good thing.

  • Little Bluestem October 10, 2013, 8:16 am

    If You Have Unused Votes

    I have missed a couple of days of voting and will miss one more. I still get 15 votes, so I have some extra. I found this group that does outreach to women caught up in the sex trade. They are seeking funds for a van. That struck me as a little more worthwhile than animals and playgrounds.

  • Sasha October 10, 2013, 9:13 am

    Just voted – we're in 8th place, but not very safely.

    Nice to see on the graph that our pool of voters has increased every day – let's hope that keeps up and that they're all ready to go once the semi-finals start!

  • Battery Muncher October 10, 2013, 10:22 am

    3130. There are now 880 independent supporters – about ~260 more than 3-4days ago! Great recruiting :)

    PS: Is anyone else having problems posting a comment? On the one hand, the thing seems to recognise me (i.e. it says 'Posting as _____ ' with a comment button beside it). Yet every time I click the comment button, I get '
    You are not logged in. Please login and try again.'??

  • May12th October 11, 2013, 5:14 am

    I think it wants you to be logged into Facebook.

  • Little Bluestem October 11, 2013, 7:39 am

    I have been watching the contestants below us down to 18th place because I thought they were the greatest threat. Three days ago Cultural Café came into 15 place from below that and is now 7th. We are still vulnerable to last minute surges from those close behind us. Everyone needs to keep voting through the week-end. That is sometimes when others slack off.

  • Sasha October 11, 2013, 8:51 am

    Just voted – I agree, the weekend will be very important so we must all remember to vote!

  • rosie26 October 11, 2013, 9:01 am

    I vote usually around 7pm at night.
    When it finishes I think it will take me a week to forget that I don't have to vote. :)

  • Battery Muncher October 11, 2013, 9:50 am

    3610 votes and 8th place in our category. Now 945 independent supporters! That's another 50-60 voters since yesterday!

    May12th

    Thanks for the reply. The problem is that I'm logged in but still can't comment.

  • Battery Muncher October 12, 2013, 10:47 am

    4030 votes. We're in 7th place now!

  • helen41 October 12, 2013, 2:06 pm

    we are doing well. One group (Cultural Cafe) has dropped way down. I saw this on their FB page "Hi all, sad to inform you that we will loose over 1000 votes from our Aviva project. Unusual voting method has been used to vote for us. I know this is a good project to support, however, let us do it in a proper way according to the rules. Although we will drop out of top 10, but we still have the chance to make back in. I just need everyone of you to cast your vote everyday for the remaining 3 days. We can do it! Let us vote, vote, and vote!"
    I am glad to see Aviva is watching!

  • Keela Too October 12, 2013, 2:16 pm
    Little Bluestem

    If You Have Unused Votes

    I have missed a couple of days of voting and will miss one more. I still get 15 votes, so I have some extra. I found this group that does outreach to women caught up in the sex trade. They are seeking funds for a van. That struck me as a little more worthwhile than animals and playgrounds.

    Thank you. I missed one day, and so have used that extra vote for this cause.

  • Sasha October 13, 2013, 9:38 am

    Bump!

    Just voted.

  • Firestormm October 13, 2013, 9:41 am
    Sasha

    Bump!

    Just voted.

    Yep. We're almost into the last day's voting.

    I picked this up on their Facebook page earlier this morning:

    $650,000 and counting!
    October 12, 2013 at 6:36pm
    Did you know that since 2011 when our Facebook fund raising group started entering contests to win money for ME and FM, we have won in excess of $650,000? That’s substantially more money than many countries are spending to help us.

    Not only have we won the money, but we’ve made many people aware of our illnesses just by being in the contests. It’s free advertising that is priceless! In one contest where we just missed winning a prize, we had such an impact on the contest organizer that they made a donation of $5000 to our cause!

    Your votes make a difference!

    We need everyone to vote again in the current Aviva contest where we are hoping to win another $100,000. Please go to the Aviva site and cast a vote for http://www.avivacommunityfund.org/ideas/acf17388. It’s simple and quick to do. Voting is daily to Oct 14th but if you only have the energy to vote once that’s OK – just please vote! There are just 2 1/2 days of voting left and we need every vote.

    VOTE and then LIKE and SHARE this notice. Ask everyone you know to vote too. We can win this! Voting ends at noon EST Oct 14th.

    Thank you

    Individually we are one drop
    Together we are an ocean”
    Ryunosako Satoro

    So what happened to all that money?

    May 12th – International ME/CFS & FM Awareness DaySome went to research (WPI, Simmaron, CFIDS, UK research). Some used in support of IACFSME conference and IACFSME Primer. Some was gas cards that have gone to people in need.

  • Nielk October 13, 2013, 12:10 pm

    Thanks for all your votes. They are really counting up. Let's keep up the momentum. We need to stay in the top ten.

    Vote here

  • Battery Muncher October 13, 2013, 12:14 pm

    4412 votes. We now have over 1005 independent supporters who voted for us! :thumbsup:

    Having said that, some people have stopped voting over the past two days – we need to keep going, just in case we get overtaken in the last day (it's happened before!).

  • rosie26 October 13, 2013, 5:45 pm

    Just voted, bit late doing it today. 4540 votes now

  • Kina October 13, 2013, 5:48 pm

    Just voted. 4542 votes. :)

  • snowathlete October 13, 2013, 7:09 pm

    I voted earlier

  • Battery Muncher October 14, 2013, 9:55 am

    4817 votes. Final day – I think we may be able to break 5000 votes by the end of this round :)

  • May12th October 17, 2013, 4:30 pm

    Thanks everyone for your support. It's OFFICIAL – we made it to the semi-finals!

    Next round of voting starts Dec 2nd.

  • Little Bluestem October 18, 2013, 9:55 am

    Do you know what place you finished in? When I looked at the rankings page it already had the entrants for the next contest.

    I did find the page with the 30 finalists. Of the 30 finalist, excepting one in French that I couldn't figure out, 10 (that's 1/3!) are for domestic animals, 2 are for wild animals, and 7 are for playgrounds and/or pools.

    Animals and children seem to be the vote-getters. Maybe you need some children with ME in your promotions!

  • helen41 October 28, 2013, 7:24 pm
    Little Bluestem

    Do you know what place you finished in? When I looked at the rankings page it already had the entrants for the next contest.

    I did find the page with the 30 finalists. Of the 30 finalist, excepting one in French that I couldn't figure out, 10 (that's 1/3!) are for domestic animals, 2 are for wild animals, and 7 are for playgrounds and/or pools.

    Animals and children seem to be the vote-getters. Maybe you need some children with ME in your promotions!

    we ended up in 7th in our category (medium)

  • Little Bluestem October 29, 2013, 6:20 am
    helen41

    we ended up in 7th in our category (medium)

    :balloons: I'm glad to hear that we held on at the end. :thumbsup: