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Twittering the IACFS/ME Ottawa Conference Pt. II

Posted by Cort Johnson

Quick hits from the first two days of the Conference. Follow CortJohnson on Twitter tomorrow for more

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – #Clauw reports #interstitial cytisus (allied with #CFS) will change name next year to reflect understanding about CNS origin

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – #Clauw reports #interstitial cytisus research community acknowledges they were all wrong; its all the central nervous system.

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – #Baraniuk says #brain proteome #CFS validation study went even better than expected. Wins the prize for most posters – six!

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – #Simmaron Foundation by Dr. Peterson is present with a room set up (and a nice spread) last night.

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – Tom Carlson of #CFI (Chronic Fatigue Initiative) is here meeting with his CFS diagnostic team. (I almost crashed their lunch.:))

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – I heard from a Norwegian journalist that the #Rituximabresults for #CFS are in and should be published soon…….

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – Neg finding from independent lab suggests VP62 contamination did not occur at WPI, Silverman not at conference to respond.

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – #Mikovits sends subsets of contaminated Silverman #XMRV samples to independent lab, IAP neg/VP62 contamination section not there

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME- #DeMeirleir says he has an idea re: which endogenous retroviruses might be causing antibody results in #CFS but was mum on which

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – #DeMeirleir states increased endogenous retrovirus activation in #CFS could be due to inflammation or herpesviruses

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – #DeMeirleir, however, reports that increased #XMRVantibodies could also be due to endogenous retrovirus activation.

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – #DeMeirleir reports finding antibodies to# XMRV in 57% of CFS patients and only 14% of controls in samples sent to #WPI

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME – in difficult patients section Lapp says he will start sending endoscopy samples to Dr. #Chia for testing for #enteroviruses

 

Cort Johnson
CortJohnson Cort Johnson

IACFS/ME Ottawa – Clauw reports that FM is everywhere! and looks the same everywhere….it looks the same in Kenya as it does in the US

 

Cort Johnson
CortJohnson Cort Johnson

IACFS/ME Ottawa – Clauw believes in the next 10-20 years, medical est. will get that CFS/FM conditions are most expensive/ prevalent of all

 

Cort Johnson
CortJohnson Cort Johnson

IACFS/ME Ottawa – Clauw believes an FM/CFS like-condition occurs in 20-30% of ALL disorders…20-30% of arthritis, cancer,,patients have it

 

Cort Johnson
CortJohnson Cort Johnson

@TomKindlon – hey Tom Thanks for picking up my tweet on the conference. I can’t even pick it up on the search bar. :(

 

Cort Johnson
CortJohnson Cort Johnson

IACFS/ME: Montoya suggests NIH convene meeting to create a standardized approach to research protocols for CFS…

 

Cort Johnson
CortJohnson Cort Johnson

IACFS/ME Ottawa – Montoya says focus on PBMC’s in studies means CFS researchers are missing important information on TLR’s and others.

 

Cort Johnson
CortJohnson Cort Johnson

IACFS/ME Ottawa- Montoya suggests researchers have been looking at the wrong part of the immune system in CFS; should be studying innate sys

 

Cort Johnson
CortJohnson Cort Johnson

IACFS/ME Ottawa – Only Ruscetti and WPI find XMRV in BWG study but in different patients and in as many healthy controls as CFS patients.

 

Cort Johnson
CortJohnson Cort Johnson

IACFS/ME -BWG group presents devastating results for validity of WPI’s test for XMRV. WPI’s culture test has problems and is not completed.

 

Cort Johnson
CortJohnson Cort Johnson

IACFS/ME Ottawa – Mikovits says full genetic sequencing of ‘dozens’ of isolates will take time because of limited resources.

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