Posted by Cort Johnson I first met Lisa Faust at the Symposium on Viruses in 2008. She was at a table with a group of women all of whom were battling a similar sounding illness. They were definitely the acute onset infectious disease subset. My mouth dropped as I listened to their stories; some were on complete disability, others had
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Dan Moricoli at the IACFS/ME Conference
Posted by Cort Johnson Dan Moricoli was no shrinking violet before he came down with chronic fatigue syndrome (ME/CFS) three years ago. A business owner, internet marketer, motorcycle racer, skiing enthusiast and deep-sea fisherman Dan was, in fact, something of an adrenaline junky. At sixty Dan’s idea of coming down from the stress of work was to race motorcycles. But
ContinueThe NIH On the Clock Pt. III: It’s Raining Money
Posted by Cort Johnson That’s right – in the midst of the greatest economic contraction since the depression the NIH has, all of sudden, found itself in the greatest single expansion in its history. How and why demonstrates how much influence one Senator can have. Desperate to get Arlen Spectors vote on the stimulus package, the Obama administion acceded to
ContinueComing Home: Dr. Peterson at the IACFS/ME Conference
Posted by Cort Johnson Reno (the Littlest Big City in the World’) is not your typical conference destination but it was hard to imagine a better spot for the 9th International IACFS/ME meeting. Much water has passed under the bridge since the plight of those Incline village residents made headlines across the country thrust this disease back out into the
ContinueRoadtrip – Reno Conference
Posted by Cort Johnson I didn’t intend to blog about my trip to the conference but the trip was for me, like for other ME/CFS patients, half the battle. Several people I talked to at the conference noted how difficult travel was. My ability to travel has increased greatly over the past few years. I no longer worry about being
ContinueOn the Clock Pt II: The Winners and Losers in the NIH Money Game
Posted by Cort Johnson Dr. Hanna at the NIH has repeatedly said that given the tight budgetary times there’s just no money for ME/CFS. A look at NIH funding across the past few years suggests, however, there’s more to the issue than she suggests. Underneath the seemingly placid surface of a stable budget a fierce fight goes on every year
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