July 2009

Posted by Cort Johnson

PLEASE REPOST PUBLICLY”

In a recent post, (marked “Please do not repost publicly”)  Jodi Bassett noted her ‘outrage’ at Mike’s story of his recovery and declared herself ‘absolutely disgusted’ by Mike’s attempt to spread it. After only the most superficial acquaintance with the treatment procedures she declared it ‘harmful’

We were rather astonished. We’d offered the story because we thought it might offer some hope. What could have made this maven of medical  correctness so angry? Apparently the suggestion that Mike had myalgic encephalomyelitis tipped her over the  edge. Although we referred to Mike’s condition as ME/CFS throughout the paper Mike’s belief that he had myalgic encephalomyelitis was too much and a rather incoherent e-mail (see below) resulted.… Read More

34 comments

Posted by Cort Johnson

Click Here for  Part I/ Part II

When we last left ‘patient X’ he was in a semi-coherent state and had trouble tolerating even mild stimuli without pain. Emaciated and in pain he had  essentially resigned himself to dying.  Then, remarkably enough, he heard of doctor in his own area whom, he was told, was successfully treating ME/CFS. He would take one last chance.

A Leap of Faith A few days later I decided to take the leap of faith. I crawled into my dad’s car. We arrived at the doctor’s office where I crawled my way into the lobby.… Read More

13 comments

Posted by Cort Johnson

To Read Part I Click Here

When last we left ‘patient X’ he had spent a night in a New York mental facility after collapsing with exhaustion and telling medical personnel that he had myalgic encephalomyelitis/chronic fatigue syndrome. Now back in California, with his health failing he’s  going from clinic to clinic trying to find some help.

A Desperate Search. For the next 6 months I would run around from clinic to clinic trying treatment after treatment. With each treatment I just got sicker and sicker. At the end of 6 months, which was March, 2007 I was almost completely bedridden and was down from 180 to 165 pounds.… Read More

Add Your Comment

Posted by Cort Johnson

This is  the most extroardinary recovery story I’ve ever heard. I’d known this person before his health had completely fallen apart. He’d participated heavily in the ME/CFS forums and had obviously studied this disease intensely but he’d basically slid off a cliff.   His case of ME/CFS had progressed far, far beyond what most people face, and quite frankly, I shuddered to think of what he was going through. I’d offered my feeble idea’s- which he gently brushed aside – and then he disappeared.  The next thing I expected to hear was that he was dead. That was over a  year ago. Read More

6 comments

Posted by Cort Johnson

The Recovery(ing) Stories #1 (Occasional stories from recovered or recoverying patients)

A new website/blog called Ncubator recently caught my eye.  Jody Smith, the websites creator, has an unusual talent for explaining issues in a very personal, down to earth and clear way. The articles were just a delight to read and at times touched me deeply. (see If a Tree Falls in a Forest )

Jody’s really been through the wringer with ME/CFS; her symptom signature included tremors, IBS, difficulty standing, severe fatigue, weight gain, hair falling out, stabbing pains, dysregulated sleep, vertigo, etc.  Along the way she had to stop working and close down a very productive website but over the past year or so she’s experienced a significant return to health.… Read More

2 comments

Posted by Cort Johnson

Dr. Logan is a board certified naturopathic physician who graduated magna cum laude from the State University of New York.  An invited faculty member at the Harvard School of  Continuing Medical Education and published researcher he is the author of “The Brain Diet” and the co-author with Dr. Alison Bested of a recently updated book on chronic fatigue syndrome (ME/CFS) – “Hope and Help for Chronic Fatigue Syndrome.”

He was willing to follow up a substantial comment he made to the “H2S Creator Speaks” blog with this full interview.

_____________________________________________________________

A good number of chronic fatigue syndrome patients do experience gut pain but gut pain has never been considered the main or even a main symptom of the disease.Read More

36 comments