April 2010

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2429-lightning..gifDr. Frivold is the husband of Berit Frivold, who’s recovery from ME/CFS using the Lightning Process, was posted a month or so ago. Dr. Frivold, is naturally very happy that his wife has recovered and, after reading the discussion on Berit’s recovery, sent me these observations.

I recognize this is a difficult topic that can be disturbing. My feeling is that any treatment that helps someone deserves space because it could help others. ME/CFS is a broad and variable condition in which we regularly find people responding differently to drugs, supplements and other treatments .… Read More

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ANGER and Mind Training

April 30, 2010

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Written by Victoria

2430-anger-management__46.jpgWhat are we here for? Perhaps we are simply here for the opportunity to become so happy that we no longer care what we are here for! (wrote my Astrologer today…..).

How many people are genuinely happy? I don’t mean happy because they have material possessions or the perfect wife/husband/partner. I’m talking about inner joy & peace.

Happiness is not a switch that you can turn ON or OFF at will. If it was, the Universe & all who live in it would be eternally happy. We would never use the OFF switch, because, let’s face it, who wants to be UNhappy.… Read More

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Dr. Mikovits has been in touch with patients more than any other researcher by several magnitudes and a couple of days ago I got to chat with her on a variety of topics.

Some questions had been raised about the WPI’s two collaborators in the Science paper, the National Cancer Institute and the Cleveland Clinic. We hadn’t heard a word from any of them since the just after the Science paper came out. Dr. Ruscetti of the National Cancer Institute did show up for the CFSAC meeting in late Oct of last year but they’d been laying low since. Were they backing away from CFS and XMRV?… Read More

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The Phoenix Rising Video

April 25, 2010

Teejkay has done an amazing job on this poignant video on ME/CFS done to a striking song on ME called “Everyone Knows About ME” from Cinderkeys

Feel free to put this video on Blogs, FB or wherever you want.

You can access it at:

From TeejKay

Thank you very much to everyone who sent in your wonderful pictures and a big thank you to Cinderkeys for letting us use your awesome song, Everybody Knows About Me.
Thank you Dreambirdie for your tips and support.

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Written by teejkay

The Phoenix Rising ME/CFS YouTube video is up.
[video=youtube;00BZCjVK_6I]http://www.youtube.com/watch?v=00BZCjVK_6I[/video]

Thank you very much to everyone who sent in your wonderful pictures and a big thank you to Cinderkeys for letting us use your awesome song, Everybody Knows About Me.
Thank you Dreambirdie for your tips and support.

teej… Read More

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Written by creekfeet

2287-stripey-toe-sock__1.jpgby Creekfeet

If I could tell the world just five facts about Myalgic Encephalomyelitis (ME/cfs) I might choose these. ME/CFS…

• causes more functional impairment than diabetes, heart failure or kidney disease.
• creates a level of disability comparable to MS, chemotherapy or the final stages of AIDS.
• strikes an estimated 17–20 million worldwide, impairing function and shortening lives.
• like AIDS in its early days, receives inadequate funding due to widespread misunderstanding.
• has only recently gained notice in blood banks internationally as an infectious disease concern.Those five points should make everybody sit up and listen.… Read More

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FFC Fundraiser Is Over!

April 23, 2010

The Fundraiser is (very quickly!) over. We raised $2650 in cash donations and $650 in software (to be delivered) in about a day and a half – a remarkable turnout.

A big thank you to everyone who made the fundraiser such a success. We know the financial stresses that come with CFS and we very much appreciate your willingness to open your pocketbooks and give, particularly during these troubling economic times. We received 67 donations ranging from $2 to $650 in value from the US, Canada, the UK, Australia, the Netherlands, France, Belgium and Israel.

We’re confident that the tools you’ve provided the Fatigue Consultation Clinic and Dr.… Read More

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The first ‘Official’ Phoenix Fundraiser will provide essential information infrastructure elements to Dr. Bateman that will assist her in her studies on XMRV with Dr. Light/Singh, on XMRV with Glaxo-Smith Kline, on muscle and other receptors with Dr. Light, on Ampligen with Hemispherx and other studies. etc. – from CBS, Cort

Why Should We Help?

Reason # 1 – Dr. Bateman’s Fatigue Consultation Clinic is Right in the Middle of Some Really Critical Research

A former member of the IACFS/ME Board and CFSAC panel, and a physician, researcher and advocate, she is a vital cog in our search for answers. Dr.… Read More

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2167-Steps..gifBy Rosemary Rowlands

Posted with permission from the CFIDS and Fibromyalgia Self-Help Website

I’ve had CFS for more than 20 years. My health declined gradually and was very poor by a few years ago. Since then, however, using pacing ideas from the self-help program and other sources, I’ve made steady progress and my life has improved greatly.

I now go out once or twice a day, rather than once or twice a week. I spend time socializing and doing enjoyable activities instead of using all my energy just taking care of my basic needs. My health is more stable and instead of often feeling helpless and hopeless, I feel much more in control.… Read More

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