An MD on the Lightning Process

Posted by Cort Johnson Discuss this article on the forums Dr. Frivold is the husband of Berit Frivold, who’s recovery from ME/CFS using the Lightning Process, was posted a month or so ago. Dr. Frivold, is naturally very happy that his wife has recovered and, after reading the discussion on Berit’s recovery, sent me these observations. I recognize this is

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ANGER and Mind Training

Discuss this article on the forums Written by Victoria What are we here for? Perhaps we are simply here for the opportunity to become so happy that we no longer care what we are here for! (wrote my Astrologer today…..). How many people are genuinely happy? I don’t mean happy because they have material possessions or the perfect wife/husband/partner. I’m

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Dr. Mikovits Chat’s on XMRV

Posted by Cort Johnson Dr. Mikovits has been in touch with patients more than any other researcher by several magnitudes and a couple of days ago I got to chat with her on a variety of topics. Some questions had been raised about the WPI’s two collaborators in the Science paper, the National Cancer Institute and the Cleveland Clinic. We

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Phoenix Rising YouTube Video Thread

Posted by Cort Johnson Discuss this article on the forums Written by teejkay The Phoenix Rising ME/CFS YouTube video is up. Thank you very much to everyone who sent in your wonderful pictures and a big thank you to Cinderkeys for letting us use your awesome song, Everybody Knows About Me. Thank you Dreambirdie for your tips and support. teej

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Five Facts About ME/CFS: Socking It To ME/CFS

Posted by Cort Johnson Discuss this article on the forums Written by creekfeet by Creekfeet If I could tell the world just five facts about Myalgic Encephalomyelitis (ME/cfs) I might choose these. ME/CFS… • causes more functional impairment than diabetes, heart failure or kidney disease. • creates a level of disability comparable to MS, chemotherapy or the final stages of

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FFC Fundraiser Is Over!

Posted by Cort Johnson The Fundraiser is (very quickly!) over. We raised $2650 in cash donations and $650 in software (to be delivered) in about a day and a half – a remarkable turnout. A big thank you to everyone who made the fundraiser such a success. We know the financial stresses that come with CFS and we very much

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The ‘Optimize Dr. Bateman’s Research’ Fundraiser

Posted by Cort Johnson The first ‘Official’ Phoenix Fundraiser will provide essential information infrastructure elements to Dr. Bateman that will assist her in her studies on XMRV with Dr. Light/Singh, on XMRV with Glaxo-Smith Kline, on muscle and other receptors with Dr. Light, on Ampligen with Hemispherx and other studies. etc. – from CBS, Cort Why Should We Help? Reason

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Third Times a Charm: How I Learned to Pace Myself

Discuss this article on the forums By Rosemary Rowlands Posted with permission from the CFIDS and Fibromyalgia Self-Help Website I’ve had CFS for more than 20 years. My health declined gradually and was very poor by a few years ago. Since then, however, using pacing ideas from the self-help program and other sources, I’ve made steady progress and my life

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Taking Back the CFSAC

Posted by Cort Johnson Discuss this article on the forums Written by Cort We saw the power of the Federal Advisory Committee on CFS (CFSAC) last October when Annette Whittemore, Dr. Peterson, Dr. Coffin and others presented live testimony on video on XMRV. The Committee is one of the only places where federal officials can compelled to give public testimony

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A Few Paleo Thoughts by Lisa

Discuss this article on the forums Written by Lisa (picture supplied by Cort) Tuesday will be exactly four months since we made the switch to a Paleo lifestyle. I can still hardly believe how much meat we consume each week because I have never in my life been a huge meat eater. The previous 12.5 years of vegetarianism, over a

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Evening Up the Odds – the SolveCFS BioBank Begins

Posted by Cort Johnson The odds have always been against the researchers with the guts or commitment to take ME/CFS on. With it’s unfortunate name, vague definition and complicated, multi-systemic nature it’s gotten little respect and even less funding. Everybody knows the statistics – last in the NIH in funding….$20 billion in economic losses and easily, easily the lowest dollar

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XMRV and ME/CFS: the WPI Throws the Gauntlet Down

Posted by Cort Johnson Written by Cort Yes, the WPI has been frustrated, and sometimes vocally so, regarding the inability of the three XMRV studies to validate the original Science study results. Yesterday, in a surprise announcement Annette Whittemore threw the gauntlet down, so to speak. For sure she did it politely but her proposal that Dr. McClure, one of

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