April 2010

Posted by Cort Johnson

Written by Cort

2039-bio-picture..jpgDr. Goff, one of the top retrovirologists in the field, taked with Dr. Racaniello about XMRV for almost an hour. This was a rare opportunity to hear what experts in the field felt about the XMRV/CFS connection. Here’s my take on what they said from the XMRV Buzz Page

XMRV and the Prostate - One way researchers figure out which types of cells a virus infects and which parts of the body it may damage is to determine which cells have receptors for it. Receptors are like hooks the virus can use to get into the cell and different cells will have different receptors.… Read More

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Posted by Cort Johnson

The patient community has been on a wild ride lately. No, no studies have been published but patients are digging deeper into the studies and coming up with some surprising findings.

Three er… Make That Two CFS XMRV Validation Studies?

After digging deeper into the cohort from the last Dutch study Parvofighter on the Phoenix Rising Forums has uncovered some disquieting facts about them. We knew that they were defined using the Oxford definition – which is not optimal, for sure – but what Parvofighter uncovered appears to go beyond using a poor definition.

The samples from that study were gathered a long time ago – prior to the creation of the standard Fukuda criteria that researchers use today.… Read More

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Written by Kelvin Lord

garlic+colors.jpgYes, I’m going to talk about sex in this post, because one of our challenges is that this hideous virus not only diminishes our libido, but sometimes completely wipes it out. But I’m also going to discuss what I’ve found to be one of the best remedies for that part of our symptoms list, which also turns out to be also one of the best natural virus killers out there.

My first experience with eating raw garlic came in the form of a prank some 20 years ago, when I lived in L.A.… Read More

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Posted by Cort Johnson

Written by Kati

2018-XMRVnodules.gif
This is a rare chance to get a view of how the XMRV/CFS connection is viewed by virologists outside of the ME/CFS field

Part I: Transcribed by Kim

TWiV 76: XMRV with Professor Stephen Goff
by Vincent Racaniello on April 4, 2010

VR: I wanted to talk about XMRV with you.
SG: Okay.

VR: We could probably talk about all we know in an hour, right?
SG: Yup, that’s probably true (laughs).

VR: There’s not a lot of papers on it, of yet, but it’s a new field. Why don’t you tell us where this virus originally came from.Read More

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Posted by Cort Johnson

Written by Wayne

Wayne posted this story of the benefits a person with brain trauma received from using EFT. It’s interesting how many of her symptoms resemble those found in ME/CFS and it illustrates how these types of techniques can alter neural functioning. I imagine that the right type of brain scan would have revealed a huge difference between her pre and post EFT.

Quote:
I just had this remarkable story sent to me, and thought I would pass it along for anybody who might be interested. I’ve experimented with using EFT periodically and feel I’ve gotten some benefit from it.

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Posted by Cort Johnson

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1923-Brain..jpgIn 2008 I participated in Dr. Baraniuk’s spinal tap study at Georgetown University in Washington, D.C. Some readers may remember how exciting Dr. Baraniuk’s first proteome study was; it was the easy winner of the Phoenix Rising Paper of the Year.

The study suggested that chronic fatigue syndrome (ME/CFS) patients had unusual proteins in their cerebral spinal fluid. These results suggested that clumps of abnormally folded proteins could be causing small punctures in the blood vessels of ME/CFS patients brains.

These punctures, in turn, could cause blood to leak out into the brain causing the symptoms of ME/CFS.Read More

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Posted by Cort Johnson

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Written by Cort

1914-LumbarPuncture.jpgI’d contacted Dr. Ravindran earlier and mentioned I was coming out to DC but we fell out of contact and I assumed my chances of getting the study in while I was in town were nil. It didn’t help that I waited for several days before I called but several hours after I called to tell him I was in towns there I was in the research wing of the hospital giving blood, whooping it up doing pulmonary tests and scrunching my arm muscles while Dr. Baraniuk aimed this weird horn at my nose.… Read More

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Posted by Cort Johnson

Marly Silverman and others at PANDORA and the Landford Foundation have big plans. She wants nothing less than to build the first NeuroEndocrineImmune Center for the research, treatment and education into diseases like Chronic Fatigue Syndrome, Fibromyalgia, Gulf War Syndrome, multiple chemical sensitivity and others in New Jersey. (Think the WPI’s Neuro-Immune Institute with the ‘Endocrine’ added. – think a WPI on the east coast)

NEID is taking a multi-disease approach because it believes that “the discoveries and advances made in anyone of the NEID’s, will be applicable at beneficial to the other NEID’s, thereby bringing researchers closer to a cure”.… Read More

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