Discuss this article on the forums Written by Kelvin Lord I absolutely hated gym class in Junior High. I was a skinny kid growing faster than my Mom could sew, and I had no arm muscles whatsoever. So when the dreaded “physical exam” days came around, I usually got physically sick. Trust me, vomiting cereal before you have to do
ContinueMonth: August 2010
Dr. Peterson’s Update (on XMRV, Ampligen, Anti-retrovirals, Stem Cells and more.)
Written by m0joey (Joey posts a scintillating review of his meeting with Dr. Peterson at a particularly opportune time. He gets in depth with Dr. Peterson on XMRV, ampligen and treatment) Just to backtrack a bit, I first saw Peterson in September of 2009. It was the same old story: what can I do to get these gutless NK cells
ContinueOpening the Door to a New Era: the WPI Arrives
Posted by Cort Johnson As the Whittemore-Peterson-Institute opens its door on what may be a new era of understanding and treating ME/CFS, it’s good to look at the circumstances that spawned the Institute. It was borne out of hope and possibility, for sure, both of which it has vastly exceeded but it was also borne out of trial. The new
ContinueStanding Up For ME/CFS: Rivka in Washington DC
Posted by Cort Johnson (With so much happening and so much at stake, Rivka reminds us that now is the time to act) Dear Everyone Who Cares About People With ME/CFS, I just held my one-woman demonstration at the Red Cross national headquarters in Washington DC (Red Cross collects 45% of all blood donations in this country) and at the
ContinueVindication? Dr. Mikovits Breaks the News on the FDA XMRV Study
Posted by Cort Johnson Several weeks prior to publication Dr. Mikovits spilled the beans on the XMRV FDA study stating in an interview with RGJ.Com, what has seemed to be more and more obvious – that the FDA paper in press is going to confirm the WPI’s findings when it is released. While no one yet had directly said so,
ContinueDr. Katz on XMRV, the Big Study, The Elephant in the Room and What the Heck ME/CFS Is
Posted by Cort Johnson The XMRV webinar on Blood Safety did not sound particularly enthralling but it turned out to be one of the better XMRV webinars/eminars/talks. Dr. Katz is a good speaker with a nice touch of humor but there was more to it than that. Dr. Katz, it turns out, has been treating CFS patients in his practice
ContinueBreakthroughs Happen: A Model For ME/CFS Success
Posted by Cort Johnson The New York Times lead article today “Sharing of Data Leads to Progress on Alzheimer’s”. described how a bold new type of research effort paid off big time in Alzheimer’s. All it took to succeed was for researchers to make a commitment to work together, share and collaborate…. nothing much really – just a commitment to
ContinueOFFERING Up a Conference: The OFFER CFS/FM Conferences
Posted by Cort Johnson Discuss this article on the forums OFFER, the Patient Support Group started by Dr. Bateman in Salt Lake City, Utah missed giving a conference in 2009 but they’re back for their fifth conference on Sept 11th. They’re giving two conferences this year – a ‘Health Providers Conference’ (that patients are welcome to attend) and a ‘Patient
ContinueThe Best XMRV Study Underway? Dr. Singh Talks!
Posted by Cort Johnson Discuss this article on the forums A Little History – Dr. Singh has quite a history. She’s been at Stanford and Yale and Columbia (where she was Dr. Racaniello’s colleague) and is now a clinical pathologist at the University of Utah. She spends 80% of her time in her research lab searching for pathogens people and
ContinuePost-Exertional Malaise III: Cause and Effect By Jennifer M. Spotila, J.D.
Discuss this article on the forums (In part III of Jennie’s series on post-exertional malaise she tackles the always tricky question of cause. Kinesophobia – fear of movement – and deconditioning are present in some CFS patients but neither appear to be the cause. Instead Jenny points to several abnormalities in pain processing, oxygen consumption and the immune and suggests
ContinuePost-Exertional Malaise II: Perception and Reality By Jennifer M. Spotila, J.D.
Posted by Cort Johnson Discuss this article on the forums (In part two of the Post-exertional Malaise (PEM) series Jenny Spotila looks at the scientific evidence regarding PEM, including the startling repeat exercise studies done by the Pacific Fatigue Lab. She also examines the critical question “Is PEM unique to CFS”? Thanks to the CFIDS Association of America for allowing
ContinueEmbracing Reality (Ampligen Chronicles Trt#28)
Posted by Cort Johnson Discuss this article on the forums Written by Kelvin Lord I admit it. I really blew it, big time. Two weeks ago, after my last “glowing” report about how good I was feeling at the 6-month mark, I took it too far, and overdid it. I moved from the reality of my health, to a fantasy
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