Posted by Cort Johnson Dr. Singh An Old Murine Leukemia Virus (MLV) Hand Dr. Singh knows these viruses well and she’s not surprised at the difficulty researchers are having pining them down. She has been studying XMRV for four years and a close relative of it (Moloney Murine Leukemia Virus) for 12 years. ](How lucky we were that a major
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Lost in the World? the Romberg Test and ME/CFS
Posted by Cort Johnson Standing is just not a pleasant experience for many people with CFS. The autonomic nervous systems of a chunk of people with ME/CFS dysfunction when they stand up – sending their heart rates soaring, their blood vessels opening instead of closing and , their brains into confusion due to lack of oxygen. But even if they
ContinueChronic Fatigue Sydrome: 10 Things People Misunderstand About This “Fatigue”
Discuss this article on the forums Written by Jody (written for EmpowHER.com https://www.empowher.com/chronic-fatigue-syndrome/content/chronic-fatigue-syndrome-10-things-people-misunderstand-about-fatig) I think we can all agree that Chronic Fatigue Syndrome is a stupid name for an incapacitating illness. I think we can also agree that it is exceedingly misleading to the casual observer. Here are ten things that are often misunderstood about the “fatigue” of Chronic Fatigue
ContinueTai Chi: Meditation in Motion by Jody Smith
Discuss this article on the forums (A recent Fibromyalgia Tai Chi study published in the New England Journal of Medicine found substantial improvements after a 12 week, twice a week trial of Tai Chi. SF 36 scores were moderately increased while Fibromyalgia Impact Test scores (FIQ) dramatically improved indicating increased activity levels. https://pubmed.ncbi.nlm.nih.gov/20818876 They still had fibromyalgia but they felt
ContinueThe Times They Are a Changing – CAA Nominates Distinguished Researchers To CFSAC…
Posted by Cort Johnson Discuss this article on the forums ‘Names’ Step Out – A key, key need for 25 years has been to get distinguished researchers, ‘names’, interested in ME/CFS. We’ve always had good, committed researchers but rarely have we had people who could be counted as ‘opinion-makers’ or leaders. That is changing – quickly. The WPI’s XMRV finding
ContinueLot’s of Questions at Int. XMRV Work Shop Q&A…and one BIG Answer?
Posted by Cort Johnson No ‘Flip’ Yet: The Workshop did not, as we hoped, turn out to be the place where the research world flipped from worrying about how to find the virus to figuring out what it does and how it does it. According to one report Dr. Ruscetti said he, at least, was turning his attention from diagnosis
ContinueA Time to Act!
Posted by Cort Johnson “A Time to Every Purpose Under the Heaven” Ecclesiates says there is a “A time to every purpose under the heaven”. I suggest that our time is now. ME/CFS has been ignored and kicked to the side of the road for decades. Twenty-five years later – long after it has been shown to afflict at least
ContinueDr. Cheney on the XMRV International Workshop
Posted by Cort Johnson Discuss this article on the forums Dr. Cheney gave permission to have his comments on the Workshop posted here. Thanks to Rich for contributing it. Quote: “I attended and was a poster presenter at the recently completed XMRV conference at the NIH. It was fascinating and I took perhaps 30 pages of notes. The bio-political undertones
ContinueNIH Steps Up to the Plate – Pathogen Ace Picked to Lead Major XMRV/CFS Study
Posted by Cort Johnson Discuss this article on the forums Major Study – The NIH tagged Anthony Fauci to oversee a major study on XMRV and CFS. The HEAD of the NIAID (National Institute of Allergy and Infectious Diseases), an Institute with a multi-billion dollar budget, and a major figure in immunology with over 800 citations, Fauci is the biggest
ContinueDr. Peterson and ME/CFS Patients Meet with NIH Officials Prior to XMRV Workshop
Posted by Cort Johnson Discuss this article on the forums (Bob Miller is a long time person with severe ME/CFS who has frequently testified at CFSAC Meetings. Congratulations to Bob for engineering such a startling meeting. ) By Rivka Solomon, with help from Robert Miller Contact: Robert Miller < bobmiller42@msn.com> See Rivka’s Video for Action here On September 7, 2010,
Continue“Dear Sec. Sebelius, Dear Director Collins” Video Campaign
In celebration of the 1st International XMRV Conference, here is the link to my “Dear Secretary Sebelius, Dear Director Collins” bedroom video. https://www.youtube.com/watch?v=8t1Xqp1LDxM I hope this starts a video campaign where people with ME/CFS make their own videos from their own beds, post them on youtube and email them to HHS Secretary Sebelius and NIH Director Collins. With hope for
ContinueFour Viruses! Alter Paper Confirms Retroviral Activity in CFS
Posted by Cort Johnson Kim McCleary stated that the Alter paper was the most anticipated research paper on ME/CFS ever and she was surely right. Demonstrating a remarkable online viral spread of its own Kim reported over 150 media outlets quickly jumped on the XMRV story. The story sent attendance at the Phoenix Rising Forums zooming, quickly breaking the record
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