Posted by Cort Johnson The XMRV International Workshop is over, the Alter paper was finally published….we seem to be in a kind of lull….what is next for XMRV and ME/CFS? Of course anything could happen at any time (and has) but we do have some clues. First, though, let’s take a look at where we are. The XMRV Studies page
ContinueMonth: October 2010
Aktion Time! The CFSAC Action Begins
Posted by Cort Johnson (The CFSAC meetings are the only time during the year when ME/CFS advocates sit down and prod federal officials to do the right thing. We all know the statistics – we know the federal government has basically been pretending we don’t exist for decades. The action Bob, Rivka and Charlotte created initiates a new brand of
ContinueLet’s do it again!
Posted by Cort Johnson Discuss this article on the forums American Express is offering $200,000 to five different charities every three months. People will be able to vote for their favorite charities once a week. The next three-month round of voting starts on Jan. 1, 2011, but they are accepting nominations now. To be eligible, a non-profit organization must be
ContinueBatter Up! the XMRV/MLV Debate Continues
Posted by Cort Johnson Dr. McClure has been publicly pretty clear that she believes XMRV is not present in ME/CFS. Last week she hinted about an article soon to come out that will explain just how contamination caused XMRV to pop up in ME/CFS patients. Now to her credit she and her Imperial College retrovirologists have put their pen where
ContinueInterview with Dr. Lapp – Hopeful About Ampligen’s Approval
Discuss this article on the forums Written by Kelvin Lord To give you an idea how long Chuck Lapp has been serving the CFS/ME community, think about this – Before Steve Jobs invented the Macintosh Computer, Dr. Charles Lapp was contacting the CDC about a mysterious new illness. Dr. Lapp has been treating and specializing in CFS patients for over
ContinueFinally Getting ‘IN’
Posted by Cort Johnson XMRV has turned the ME/CFS world upside down and in a very good way. In the past year a‘cast-out’ disorder has shown signs it may be getting ‘in’; getting into major research facilities, getting into the discussion of major officials, getting into the groove that most diseases participate in…. in short its shown some signs of
ContinueA Conversation for Possibility
Posted by Cort Johnson What is really possible in ME/CFS? We are so embedded in what hasn’t happened, in our dark history – in what hasn’t happened or what did happen that shouldn’t have happened – that we hardly take time to think about the other side of the coin – what’s possible? If we were put aside our history
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