December 2010

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Recognisable?
[video=youtube;us8iGG2biDw]http://www.youtube.com/watch?v=us8iGG2biDw[/video]

We hope good health, happiness and a bright future is ahead for all of us.
You are not alone, that’s a fact! Let’s move forward in 2011!

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Written by VillageLife

[video=youtube;RAivZPc4LdQ]http://www.youtube.com/watch?v=RAivZPc4LdQ[/video]

Giving Hope and Thanks This Christmas.
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Phoenix Rising is an officially designated 501 3C non-profit which means that donations are tax deductable, and, of course, we’d love to take some off your hands :)

Phoenix Rising is currently engaged in several exciting projects; two treatment and physician review projects to help patients better determine which treatments to take and which doctors to see, an large online survey to gather data on the types of CFS and a website overhaul.

We are a small but vital organization that aims to make a difference. Please Donate!

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Dr. Montoya runs the Infectious Disease Clinic at Stanford University. His 50 plus publications have focused on wide range of pathogens including toxoplasma, encephalomyelitis, herpesvirus 6, cytomegalovirus, acanthoamoeba, and many more etc. A preliminary study several years ago suggesting that antiviral therapy returned a large percentage of the recipients to health sent a jolt through the ME/CFS Community. A followup study will soon be released.

He recently sent a letter to his patients and supporters that caught them up to date on his work and his plans for chronic fatigue syndrome and other chronic inflammatory infectious disorders. He is another example of a respected researcher that has made a strong commitment to chronic fatigue syndrome – something we can all be grateful for.… Read More

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Dr. Racaniello Retracts Statement About XMRV and CFS – showing an admirable commitment to the pursuit of the truth Dr Racaniello made an abrupt about face regarding his statement that the four papers were ‘probably the beginning of the end of XMRV and CFS’. His new blog “XMRV and CFS- It’s Not the End’ paints a very different picture andemonstrates just how difficult a subject this is. Dr. Racaniello runs a research lab – he is well versed in this field – yet this is what it took for him to alter his opinion:

“I read the papers over again, and began checking XMRV sequences in Genbank.

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The Retrovirology Papers: Day Two – Not surprisingly the media jumped on the titillating but wrong story and stated XMRV was done and that it was not the cause of ME/CFS. XMRV certainly did take a hit, yesterday, but several important names, particularly Dr. Coffin – who was a co-author of two of the papers , and has been doing his own research on how to tell XMRV apart from a contaminant, refused to fold XMRV’s tent stating that the arguments against XMRV were subtle and indirect and that none of them directly indicated the WPI had inadvertently come with a contaminant.… Read More

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What is ME/CFS Video

December 21, 2010

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Written by LaurelB

Hey, all:

I have a new video up on YouTube to help try to raise awareness. Due to my health, it took me over 4 months to complete.

You can find it below:
[video=youtube;zFUwg01brEk]http://www.youtube.com/watch?v=zFUwg01brEk[/video]

I have disabled comments for the video because I’m too sick to monitor them on a regular basis. However, you are free to give the video a thumbs up or down as you feel appropriate. :)

Thanks! And thanks to all those who helped me with suggestions and clarifications!… Read More

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ME/CFS Books for the Holidays

December 21, 2010

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All these books are by people with ME/CFS and all have received excellent reviews. This is an opportunity to support people with ME/CFS and get a good read in at the same time. If you know of other books please add them in the comments :)

4634-unbroken.jpgUnbroken by Lauren Hillebrand

Already 180 reviews on Amazon – a solid five-starer…Lauren Hillenbrandt has struck again…..Amazon Best Books of the Month, November 2010: From Laura Hillenbrand, the bestselling author of Seabiscuit, comes Unbroken, the inspiring true story of a man who lived through a series of catastrophes almost too incredible to be believed.… Read More

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The WPI response to the Papers Published in Retrovirology

The Lombardi et al. and Lo et al. studies were done using four different methods of detection. They were not simply PCR experiments, as were the studies by McClure et al. and others who have recently reported their difficulties with contamination. Experienced researchers such as Mikovits, Lombardi, Lo and their collaborators understand the limitations of PCR technology, especially the possibility of sample contamination.

As a result, we and Lo et al. conducted rigorous studies to prevent and rule out any possibility that the results reported were from contamination. In addition to the use of PCR methodology, the Lombardi team used two other scientific techniques to determine whether, in fact, we had found new retroviruses in human blood samples.

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