December 2010

Posted by Cort Johnson

The Buzz From Spain – Cristina Montane relayed a report from Dr. Julia Blanco on the meeting. Dr. Blanco first noted the usual on XMRV: that the problematic methodologies being used impair detection, contamination could be possible for some results, the polytropic MLV findings and the need to assess anti-retroviral effectiveness.

((editorial) With regards to contamination effecting some findings ….with roughly the same percentage of positives in people with CFS and healthy controls showing up in Dr. Cheney’s patients and the London study and the reduced levels of positives in theVIP Dx results – it seems hard to believe that this statement applies to the WPI/VIP Dx findings.Read More

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BROKEN SPACE – this is a holder for the First Article on the Front Page – which is broken, for some reason, for the moment. Please read the article to the right or below.… Read More

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Helen, a member of the PR Forums, made a contest entry for a Netipot. The prizes are big! ($5000, $4000, $3000, $2000 and $1000). Any winnings will be donated to the following 4 ME/CFS causes:
25% to Phoenix Rising
25% to the Whittemore Peterson Institute
25% to the ME/FM Action Network
25% to the What About ME? documentary
Please understand, this is not an official fundraiser, nor is it to be considered a treatment recommendation!.
Winners are decided based on viewings and Facebook votes:

STEPS TO VOTE:
2)Go to: http://tiny.cc/iavc6
1)Click ‘VOTE NOW’ and lastly click ‘Allow’

We want to climb to position 5 or even higher, let’s do it!… Read More

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With no less than four XMLV publications under her belt during the last 14 months Kozak is the premier XMRV evolutionary biologist. Her latest paper is a review of her and others work on murine leukemia retrovirus (MLV) evolution that delineates where contamination could come from and where it could not come from.

A Hot Item! - The first mouse leukemia retrovirus was isolated in 1951, the next in 1970, from none other than Dr. Jay Levy, a one time CFS researcher, who, believe it or not, scored two papers in Science and one in Nature that year on murine viruses and their connection to cancer – before they were eclipsed by HIV, the mouse retroviruses were hot, hot, hot items.… Read More

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4554-MWPCAAd.jpgThe MWPCA’s press release charting how the ad came about, the need for research, XMRV and Annette Whittemore noting that the NIAID has rejected six grant proposals from the WPI. P.A.N.D.O.R.A. Inc., Rocky Mountain CFS/ME and FM Association, Vermont CFIDS Association, Inc., Wisconsin ME/CFS Association, Inc. and R.E.S.C.I.N.D. and many patients donated money to produce the Ad.


Check

ressman using the Time For Action campaigns ideas here. 4553-mcwpa_logo.jpg out the Ad here and, above all, send emails, faxes etc to your Cong

Quote:
-Possible New HIV-like Retrovirus in Blood Supply–
CORAL GABLES, Fla., Dec.

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ME/CFS is hitting the lawmakers in Washington DC right in the chops today with a provocative half page ad suggesting that everybody, healthy or not, is put at risk when the federal government ignores ME/CFS. The ad has been the fruit of months of work from people with ME/CFS, the MWPCA and PANDORA. The MWPCA has a beautiful website up to showcase the ad and a Press Release has been provided to news organizations across the world.

Now is the time, if there ever was a time, to get involved. XMRV has thrust ME/CFS into the news.… Read More

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4548-BreakingThrough.jpgME/CFS is hitting the lawmakers in Washington DC right in the chops tomorrow with a provocative half page ad suggesting that everybody, healthy or not, is put at risk when th4547-mcwpa_logo.jpge federal government ignores ME/CFS. The ad has been the fruit of months of work from people with ME/CFS, the MWPCA and PANDORA. The MWPCA has a beautiful website up to showcase the ad and they are releasing a Press Release tomorrow to news organizations across the4546-PandoraII.jpg world.

Now is the time, if there ever was a time, to get involved.… Read More

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Posted by Cort Johnson

Some information on the former post was incorrect – here are the corrected sections.

The Red Cross Ban leaves the FDA and the American Association of Blood Banks (AABB) looking a little isolated, what with Canada, Australia the UK and now the biggest single blood donation organization in the US, all turning their thumbs down on the prospects of people with CFS giving blood. The Red Cross cited the AABB’s ‘active’ discouragement of people with CFS giving blood by asking people with CFS who are not ‘feeling well’ that day not to give blood but went further, stating that ‘in the interest of patient and donor safety” they will ‘indefinitely defer’ anybody who has been diagnosed with chronic fatigue syndrome.

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  • American Red Cross Says No to Possibly Dangerous ME/CFS Blood - Citing recent studies suggesting that XMRV may, in fact, really be present in CFS, the American Red Cross banned people with ME/CFS from donating blood. Why does a Red Cross ban of CFS blood make the newspapers? Because, as the Red Cross website puts it “Some four million people give blood—the gift of life—through the Red Cross, making it the largest supplier of blood and blood products in the United States.”

    The Red Cross Ban leaves the FDA and the American Association of Blood Banks (AABB) looking a little isolated, what with Canada, Australia the UK and now the biggest single blood donation organization in the US, all turning their thumbs down on the prospects of people with CFS giving blood.  

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4539-Ann.jpg(Lannie goes over the report from the Pacific Fatigue Lab and creates a ‘a plan of attack’ to implement what she’s learned about her body. Thanks again to Lannie for providing us our first in depth look at the Pacific Fatigue Lab’s innovative technology. You can find her blog here)

Check out

The intention since my last article (Part 3), was to provide an overview of my “plan of attack.” Using what I learned at the 2-day test, how I was going to implement what I’ve learned into my daily life.… Read More

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4549-BridgingGroups.jpg(The CAA Board of Directors takes a stand for we, asserting and recognizing that no one group has the answer or ‘the’ right approach and that there are many types of ME/CFS and therefore many speakers for it. Can a community of ‘We’ take hold in ME/CFS? Can we agree on broad goals and work towards them? Is that possible? Is it desireable? If it is how might the CAA need to change:? How might we need to change?

Coming up shortly – an interview with Jennifer Spotila, former Chairwoman of the Board and current Board member of the CAA)

NOT ONE ALONE

We are witnessing an extraordinary time in the fight to solve CFS, and the most important word in this sentence is “WE.”

Scientific interest in CFS is at an all-time high.… Read More

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