Posted by Cort Johnson The CAA – a Timeline – Events and Finances of the Past Ten Years. via Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association Event Timeline.
ContinueMonth: January 2011
Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association – the last Ten Years
Posted by Cort Johnson Check out an overview of the CAA’s activities over the turbulent first decade of the 21st century…their hits, their misses, their ups, their downs….. via Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising – CFIDS Association – the last Ten Years.
ContinueChronic Fatigue Syndrome ME/CFS News From Phoenix Rising – CFIDS Association Interview with …
Posted by Cort Johnson Check out the comprehensive CFIDS Association Interview as former Chairman of the Board Jennifer Spotila talks about the organization past and future, its tangled association with the CDC, why it made some the decisions it did and more. via Chronic Fatigue Syndrome ME/CFS News From Phoenix Rising – CFIDS Association Interview with Jennifer Spotila.
ContinueBook Review of Elizabeth Turp’s book "Chronic Fatigue Syndrome/ME"
Discuss this article on the forums Written by Jody I’ve written a book review and posted it on empowher.com Here is a link — “Elizabeth Turp’s Book “Chronic Fatigue Syndrome/ME”: A Review” Here is Jody’s review Elizabeth Turp has written a book called “Chronic Fatigue Syndrome/ME” for sufferers of CFS/ME and the people who care about them. A book on
ContinueUK "Policy Change Now" Campaign Underway
Posted by Cort Johnson Discuss this article on the forums Written by sproggle I’d really appreciate it if members of this forum could get behind this campaign, we need as many participants as possible to give us the best chance of receiving a meaningful response and not a useless standard reply! The full details, which I have posted below, can
ContinueCFIDS Association: the last Ten Years – A Timeline (Events and Finances)
Posted by Cort Johnson Discuss this article on the forums 2000 Citing stagnation in the field, CAA stops receiving or funding grants and instead launches a series of scientific symposium designed to open up new avenues of research. They include “Does Dysautonomia Play a Role In the Pathophysiology of This Complex Illness “, “Neuroendocrine Aspects of CFS “, Immunological Aspects
ContinueCFIDS Association Of America Interview with Jennifer Spotila
Posted by Cort Johnson Discuss this article on the forums Jennifer Spotila was Chairman of the Board of the CFIDS Association of America from 2008-2009 and is a Board member today. Companion Articles CFIDS Association: the Last Ten Years – An Overview CFIDS Association: a 2000-2010 Timeline Can you briefly tell us your story with chronic fatigue syndrome (ME/CFS)? Jennie’s
ContinueThe CFIDS Association: the Last Ten Years – An Overview
Posted by Cort Johnson Discuss this article on the forums In 2001 Marc Iverson resigned from the CAA Board citing different priorities and a different vision for the organization. He envisioned an organization that would become a hub for patient activities on the internet and had his view prevailed presumably we would have seen forums, blogs and physician and treatment
ContinueBecoming Visible In Vermont: Invisible – An ME/CFS Movie
Posted by Cort Johnson What is ME/CFS in Vermont like?’ Invisible’ suggests that it’s much like it is in the rest of US. A struggle for health and a struggle to maintain ones sense of mental well-being in the face of a medicals community’s disregard and often disdain. Vermont does have something or rather someone who is different, though, and
ContinueME/CFS Orgs Petition the CDC For Change
Posted by Cort Johnson Discuss this article on the forums (From Muffin) – This petition is quite far-reaching and outlines what patients expect from the new CDC/CFS head, Dr. Unger. The petition authors made sure to include communication to the very senior players so that the petition will have impact. It is a well written document and has ideas that
ContinueOlympic Champion Supports ME/CFS
Posted by Cort Johnson Dan Moricoli is doing some great stuff at the ME/CFS Community Center. (Look at the Scientific Committee members!) Check out this video of an Olympic Champion espousing the need for more support. Olympic Champion Laura Kraut on ME/CFS and the ME/CFS Pocket Money Research Fund. The ME/CFS Champions Campaign seeks to raise public awareness of ME/CFS,
ContinueClinical Study of Simplified Yasko Protocol for CFS and Fibromyalgia
Posted by Cort Johnson Clinical Study of Simplified Yasko Protocol for CFS/fibromyalgia Rich Van Konynenburg, Ph.D. Independent Researcher/Consultant richvank@aol.com Neil Nathan, M.D. Gordon Medical Associates Santa Rosa, CA Yasko Protocol Conference – Boston July 30-August 1, 2010 • Type: Open-label clinical study • Setting: A single private practice in Springfield, Missouri • Informed consent: Patients signed forms after explanation of
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