As the Pandora/Dr. Unger meeting, which was prompted by a Pandora letter signed by several US organizations, is about to occur and as we move into our big advocacy month the Phoenix Rising Board is releasing its own letter to Dr. Unger (and is explaining why it did not participate in the first letter.)——————————————————————-
The Phoenix Rising Board Letter to Dr. Unger
First the Board of Phoenix Rising want to congratulate Dr. Unger on your recent appointment as Acting Chief of the Chronic Viral Diseases Branch at the CDC. We realize that you assume this position during very challenging times when relations with the ME/CFS patient community are at an all-time low and trust and respect for the CDC is almost non-existent.… Read More
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Dr. Elizabeth Unger, the first new CDC CFS Research Chief in over ten years, has replaced Dr. William Reeves – a forceful and controversial figure who put his own initimable stamp on the CFS research program. The ME/CFS community certainly didn’t want someone from within the CDC to emerge as Research head but now that we have her, let’s take a look at her.
As Pandora gets ready to have the first patient to CDC Chief meeting in memory let’s look at what we know about Dr. Elizabeth Unger.
She is smart – whatever else Dr.… Read More
Robert Miller has been uncanny in his ability to get near prominent public figures and push them for more support with ME/CFS. Despite having a severe case of chronic fatigue syndrome that keeps him from being able to work and participate in many activities, Bob finds a way. Bob has had personal contact with figures ranging from NIH Director Collins to Vice President Biden. This time it was his wife Courtney’s turn.
At a Reno Town Hall Meeting Courtney, asked President Obama, on camera, why the federal government is essentially ignoring her husband and a million other Americans with Chronic Fatigue Syndrome and asked for his support.… Read More
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Help win WPI and/or the CAA $525.000 by voting through Facebook:
Simple steps
1. Login to your Facebook account. (Facebook acount is required)
2. From your Facebook page, go to Chase Giving Community page by clicking on the link shown here:
http://www.facebook.com/ChaseCommunityGiving
3. “Like” the Chase Giving Community by clicking on the “Like” button. If you don’t already “Like” it.
4. Now go to the Chase community giving app by clicking on the link shown here http://apps.facebook.com/chasecommunitygiving/
5. Now search for “Whittemore Peterson Institute”
6. Cast your vote by clicking the “Vote Now!” button.
7.… Read More
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For a fuller picture of Gordon Broderick and the work he’s doing check out this 2009 Pandora Interview. He explains how he was introduced to the field by Dr. Vernon, his dismay at the level of disability found in ME/CFS and his current work. Intriguingly he’s talking about the work, 2 years ago, that showed up at the SOK Workshop. A mathematician and engineer who returned to the medical field to study leukemia, his group has been developing developing supercomputing algorithms
and applying the mathematics of telecommunication networks to study interactions between the bodies systems.… Read More
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Stating that there’s been a ‘major revolution in science… brought about by technological advances that have allowed us to look at data generated in the lab in a different way” Dr. Basil Aldadah kicked off the Systems Biology session. These studies tend to use sophisticated analytical techniques to look at very large amounts of data. They are expensive, resource intensive studies that some people think provide the best opportunity to understand complex disorders like chronic fatigue syndrome. Others wonder, ultimately, how accurate they are.
Gordon Broderick (Minute 204) – Regulatory Imbalance in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Network Approach There are ups and downs in every conference and Broderick’s presentation, which generated quite a bit of discussion throughout the conference, was definitely one of the ‘ups’.… Read More
Stating that there’s been a ‘major revolution in science… brought about by technological advances that have allowed us to look at data generated in the lab in a different way” Dr. Basil Aldadah kicked off the Systems Biology session. These studies tend to use sophisticated analytical techniques to look at very large amounts of data. They are expensive, resource intensive studies that some people think provide the best opportunity to understand complex disorders like chronic fatigue syndrome. Others wonder, ultimately, how accurate they are.
Gordon Broderick (Minute 204) – Regulatory Imbalance in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Network Approach
There are ups and downs in every conference and Broderick’s presentation, which generated quite a bit of discussion throughout the conference, was definitely one of the ‘ups’.… Read More
Chase Community Giving is at it again. This time they have expanded their month long Facebook contest to include a round of larger non-profits with have annual operating expenses from 1-5 million dollars. That would includes two ME/CFS organizations in the US; the Whittemore Peterson Institute and the CFIDS Association of America.
The WPI, of course, uncovered XMRV, which has brought much needed exposures to ME/CFS and could be the breakthrough we’ve a;; be waiting for plus they have a dynamic clinic opening up shortly. The CAA demonstrated their effectiveness in supporting high quality research when many of the presenters at the State of the Knowledge conference thanked them for their support.… Read More
