May 2011

Posted by Cort Johnson

Children are the most unfortunate recipients of ME/CFS. For many years they were largely ignored subset but the last couple of years have seen a small spurt in studies exploring the costs and course of the illness in adolescents and children with CFS. While prevalence rates are still extremely sketchy a picture of the illness is beginning to appear in the research literature. Check out info on children with ME/CFS below and some resources but first – the Action! 

SUPPORT THE SPEAK UP ABOUT ME PROJECT

The ‘Speak Up About ME!’Project http://www.speakupaboutme.org/- Denise Lopez-Majano , the mother of two ill teens, has gotten together an action for young people with ME/CFS at the CFSAC meeting on May 11th.

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Posted by Cort Johnson

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5377-SpeakUpForME.jpgChildren are the most unfortunate recipients of ME/CFS. For many years they were largely ignored but the last couple of years have seen a small spurt in studies exploring the costs and course of the illness in adolescents and children with CFS. While prevalence rates are still extremely sketchy a picture of the illness is beginning to appear in the research. Check out some info and resources on children with ME/CFS below but first – the Action!

SUPPORT THE SPEAK UP ABOUT ME PROJECT

The ‘Speak Up About ME!’Project http://www.speakupaboutme.org/- Denise Lopez-Majano , the mother of two ill teens, has gotten together an action for young people with ME/CFS at the CFSAC meeting on May 11th.… Read More

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Posted by Cort Johnson

Background – The month of May is and has been Making a Difference (M.A.D) month ever since RESCIND leader Tom Hennessey proclaimed May 12th (Florence Nightingales birthday) International CFS Day over 20 years ago. The 12 Days of May Phoenix Rising project honors Tom’s vision of a community working together to produce change by providing opportunities to make a difference (M.A.D.) in ME/CFS every day for next 12 days culminating on International ME/CFS day.

THE FIRST M.A.D MAY DAY IS……..FACEBOOK DAY

12 Days of May: MAD for ME/CFSFacebook is only, believe it or not, seven years old but with over 600 million active users and growing by leaps and bounds every day Facebook is the premier communication outlet on the planet.

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