August 2011

Posted by Cort Johnson

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It’s rare that we actually get a chance to physically make a difference in someone’s life but with Pandora’s project we actually could. Poor sleep is endemic in the ME community and has been shown to cause increased pain, fatigue, poor concentration, etc; even in healthy people; in short – if you can improve your sleep you will certainly get better. Here’s a chance to give alot of people the opportunity to get better sleep. Check out Annie’s post below for this opportunity.

Taken From Annie’s Post

Each month Pepsi funds amazing ideas that refresh the world, one community at a time.… Read More

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August 24, 2011

Posted by Cort Johnson

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Posted by Cort Johnson

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“The failure to agree on firm diagnostic criteria has distorted the data base for epidemiological and other research, thus denying recognition of the unique epidemiological pattern of myalgic encephalomyelitis.”

Dr. Melvin Ramsey

“The Month Of ME’ – in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the ‘Month of ME’ on Phoenix Rising. We examine ME’s role in this disorder throughout the month. All articles, blogs and posts produced by Phoenix Rising only used the term myalgic encephalomyelitis or ‘ME’ unless ME/CFS or CFS was absolutely required..Read More
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Posted by Cort Johnson

Myalgic encephalomyelitis from Acheson to Incline Village to the ICC- CFS and ME“The Month Of ME’ - in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the ‘Month of ME’ on Phoenix Rising. We will examine ME’s role in this disorder throughout the month. All articles, blogs and posts produced by Phoenix Rising will only use the term myalgic encephalomyelitis or ‘ME’ unless ME/CFS or CFS is absolutely required. We encourage others to make this a “Month of ME” as well. 

ME or myalgic encephalomyelitis has always been the preferred choice for many patients and patient support organizations particularly in the UK and Canada but the term ‘chronic fatigue syndrome’ or CFS or an iteration thereof has held sway for over 15 years both in the US and in the scientific community.

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Posted by Cort Johnson

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6220-ME_image.jpg“The Month Of ME’ - in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the ‘Month of ME’ on Phoenix Rising. We will examine ME’s role in this disorder throughout the month. All articles, blogs and posts produced by Phoenix Rising will only use the term myalgic encephalomyelitis or ‘ME’ unless ME/CFS or CFS is absolutely required. We encourage others to make this a “Month of ME” as well.

ME or myalgic encephalomyelitis has always been the preferred choice for many patients and patient support organizations particularly in the UK and Canada but the term ‘chronic fatigue syndrome’ or CFS or an iteration thereof has held sway for over 20 years both in the US and in the scientific community.… Read More

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Posted by Cort Johnson

‘The Month Of ME’ - in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the ‘Month of ME’ on Phoenix Rising. We will examine ME’s role in this disorder throughout the month. All articles, blogs and posts produced by Phoenix Rising will only use the term myalgic encephalomyelitis or ‘ME’ unless ME/CFS or CFS is absolutely required. We encourage others to make this a “Month of ME” as well.

The cover of ‘When Something’s Wrong – How to Navigate the World of Health Care’ by ME patient Christina Caskey features a shot of a lonely gravel mountain road veering around a distant corner with only few rocks on the side to deter the unwary or unfocused traveler from plunging off the hillside….one false step and you’re in the drink.… Read More

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Posted by Cort Johnson

“The Month Of ME’ - in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the‘Month of ME’ on Phoenix Rising. We will examine ME’s role in this disorder throughout the month. All articles, blogs and posts produced by Phoenix Rising will only use the term myalgic encephalomyelitis or ‘ME’ unless ME/CFS or CFS is absolutely required. We encourage others to make this a “Month of ME” as well. 

In parts I and II of Dr. Klimas’s Heart Rate Based Activity program we followed Brenda as she did her VO2 max test learned what it meant about her health and her activity levels.… Read More

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The Consult

In Part I of the Dan Moricoli’s three part series on Dr. Klimas’s Heart Rate Based Activity Management Program on ME-CFSCommunity Center.com, we followed Brenda as she did a VO2 max exercise test on a bicycle at Dr. Klimas’s CFS Clinic. In the second video Dan video’s Brenda as she consults with Connie Sol, the exercise physiologist at Dr. Klimas’s Clinic, about her test results.

You exercise – you have no idea what you’re doing’ …and then you crash. That kind of approach is counterproductive and what shouldn’t be done.
Dr. Connie Sol, exercise physiologist for Dr.

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