September 2011

Posted by Cort Johnson

Quick hits from the IACFS/ME Ottawa Conference

#IACFSME - on last day room is quite full. Immune session begins with 3 positive studies on #CFS fr. Australia (Bond), CDC and Lights (Utah)
Cort Johnson

CortJohnson Cort Johnson

#IACFSME - brain blood flow study finds significantly reduced blood flows – anterior cingulate region may explain increased lactate in brain

 

Cort Johnson

CortJohnson Cort Johnson

#IACFSME - findings validate strong earlier interest in anterior cingulate region by UK ME researchers

 

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CortJohnson Cort Johnson

#IACFSME - confusing Jones CDC study suggests too many signals from body making their way to the brain overwhelming it
Cort Johnson

CortJohnson Cort Johnson

#IACFSME - Jones proposes that sense of self is interrupted by constant barrage of signals from body….self becomes body sensations in #CFS
Cort Johnson

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#IACFSME - Clauw proposes sensory processing is key problem in FM and related disorders.

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Posted by Cort Johnson

Quick hits from the first two days of the Conference. Follow CortJohnson on Twitter tomorrow for more

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME - #Clauw reports #interstitial cytisus (allied with #CFS) will change name next year to reflect understanding about CNS origin

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME - #Clauw reports #interstitial cytisus research community acknowledges they were all wrong; its all the central nervous system.

 

Cort Johnson
CortJohnson Cort Johnson

#IACFS/ME - #Baraniuk says #brain proteome #CFS validation study went even better than expected.

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Posted by Cort Johnson

 Quick hits from International ME/CFS Conference in Ottawa. Follow CortJohnson on Twitter tomorrow for more….


Cort Johnson
CortJohnson Cort Johnson
#IACFSME - over the past year 2 NIH CFS heads, Vivian Pinn the head of the Office of Women;s Health, CDC CFS Chief and Wanda Jones have left
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CortJohnson Cort Johnson
#IACFSME - Mangan’s retirement is a big loss to the #ME/CFS community. He showed commitment and initiative we hadn’t seen before…
Cort Johnson
CortJohnson Cort Johnson
#IACFSME- name of the site to ME/CFS, engaged the patient community & headed up the CASA project is retiring Oct 31st due to family matters
Cort Johnson
CortJohnson Cort Johnson
#IACFSME - Dennis Mangan, who revitalized and enlarged the CFS Working Group at NIH, produced the State of Knowledge Workshop, changed the.

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Posted by Cort Johnson

Just M.E. 

“The Month Of ME’ – in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the ‘Month of ME’ on Phoenix Rising. We examine ME’s role in this disorder throughout the month. All articles, blogs and posts produced by Phoenix Rising only used the term myalgic encephalomyelitis or ‘ME’ unless ME/CFS or CFS was absolutely required..

In reward for doing so, GregF, a Forum member, contributed $1,000 to the Whittemore Peterson Institute. Although it was not in the bargain he also generously contributed $320 to Phoenix Rising.Read More

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Donating To Phoenix Rising

September 16, 2011

Posted by Cort Johnson

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Donations are crucial to our ability to provide this place for you all. Phoenix Rising is a registered 501(c)(3) non-profit organization and your donations are deductible to the full extent of the law. Although our moderators, administrators, and systems engineers (all of whom have ME/CFS themselves) give their time and energy for free, unfortunately the hardware, software, and infrastructure all costs money. So even if you can’t afford to give much – or anything at all – please take a few seconds to read over our donation options and see if one of them is right for you.… Read More

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Posted by Cort Johnson

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One of the biggest questions awaiting the new definition for myalgic encephalomyelitis (ICC) is who fits it vs who fits the standard definition for CFS. The ICC authors believe that people who meet their criteria may have a different sort of illness than people who meet the Fukuda definition but who do not meet the ICC definition. Future studies will hopefully determine whether that is true or not.

We should note that the ICC was produced by the agreement of ME professionals. Dr. Leonard Jason is currently using statistical analyses to determine symptom criteria.… Read More

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Posted by Cort Johnson

“The failure to agree on firm diagnostic criteria has distorted the data base for epidemiological and other research, thus denying recognition of the unique epidemiological pattern of myalgic encephalomyelitis.” 

Dr. Melvin Ramsey

“The Month Of ME’ – in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the ‘Month of ME’ on Phoenix Rising. We examine ME’s role in this disorder throughout the month. All articles, blogs and posts produced by Phoenix Rising only used the term myalgic encephalomyelitis or ‘ME’ unless ME/CFS or CFS was absolutely required..

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