Jody Smith reflects on the growth of the Phoenix Rising forums, from a handful of members in 2009 to several thousand today… There may have been other forums for people with ME/CFS back in 2009, but if there were, I didn’t know about them. Phoenix Rising’s forums, as far as I knew at that time, were unique. So when I
ContinueForum member RivkaRivka extends an invitation to members of the ME/CFS, Lyme and MCS communities to join together in a teleconference to say “Thank you; We love you; Goodbye” to Rich Van Konynenburg. All are invited to the ME/CFS, Lyme and MCS community’s Memorial Service for Rich Van Konynenburg on November 18, 2012 On Sunday, November 18, 2012, please
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Jody Smith remembers the early days of the Phoenix Rising forums – and explains why she’s glad to be back… I don’t know exactly when I stumbled upon Phoenix Rising. It was during a period of years now shrouded in a CFS fog, when I was mostly awake in the middle of the night, sleeping through much of the day. I spent time
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by Jody Smith The Food and Drug Administration has deemed ME/CFS to be one of 39 conditions that may receive their special consideration. But of these 39, only 20 conditions will be picked. If ME/CFS is one of those 20, patients’ comments will be heard through public meetings and through mailed and emailed messages. The FDA evaluates and approves drugs
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Help win $100,000 for Medical Equipment for a new Chronic Diseases Clinic in Vancouver. Vote every day until Monday 9am PST, 6pm UK. The Aviva Community Fund Contest is open for Canadian projects and international voters – anyone in the world can vote – and your vote is urgently needed daily until Monday at 12 noon Toronto time (9AM PST, 6
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The bi-annual federal advisory committee (CFSAC) meeting for chronic fatigue syndrome is upon us. It’s intriguing to note that ME/CFS is one of the few disorders to have a federal advisory panel all to itself. CFSAC contains ex-officio officials who represent a variety of federal agencies (CDC, NIH, FDA, Social Security Administration and others), and ME/CFS professionals who provide recommendations
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