Phoenix Rising, of course, is not the only group proposing special May Advocacy actions. Both the WPI (ANIDA) and RESCIND are engaging in May Actions.
ANIDA - The WPI is engaged in a Month of May Awareness Campaign in it’s beautiful ANIDA website and it’s Facebook page to build a network of advocates dedicated to finding a cure for neuro-immune disorders such as myalgic encephalomyelitis, chronic fatigue syndrome, fibromyalgia and Gulf War Syndrome. Donations support basic clinical research at the WPI and outreach and advocacy efforts.
Register to become an advocate here. Check out their Calendar of Events here and share your letters, photo’s and video using this email address info@ANIDA.co You can donate to the WPI here
Thus far ANIDA has suggested:
- Monday – Write your congressman or congresswoman.
… Read More
Medical research is an extremely expensive pursuit – seemingly too expensive for a not very wealthy patient community to make a difference in…..or is it? We actually have abundant evidence that even small amounts of money, put into the right hands, can reap major dividends.
Working out of rented quarters, the WPI was able, working on a small research budget, to galvanize the research community with the XMRV findings. Gordon Broderick was able to turn a $5,000 grant from PANDORA into a $100,000 grant from the CFIDS Association into a multi-million dollar grant from the NIH. The CAA has been able to turn at least three small pilot studies (Broderick, Shungu, Huber) into major NIH grants and its small research project has supported many of the prominent ME/CFS researchers in the field.… Read More
