Jody Smith continues to try to put into words the horror of the altered state that hobbles the brains of those with ME/CFS …
If you’re not a fan of hallucinatory drugs you’re gonna hate ME/CFS.
When I first became ill in March of 1992, the feeling of altered reality inside my head, the shaking which could not be seen in my arms and hands and which later spread to the rest of my body, the uncertainty with which I navigated, never quite sure I could physically accomplish a walk across the floor without falling or bumping into things … these things were bizarre and alarming.… Read More
Jody Smith explains how growing virtual lettuce created a real sense of satisfaction and provided a subtle return to the land of the living…
I knew I was coming back a bit to the land of the living after several years’ exile when I was able to go online again. Getting onto Facebook and learning my way around was quite a coup.
It was a ridiculously challenging and exhausting ordeal. What should have only taken days, instead took a few weeks. And even once I knew what I was doing, I would find myself frazzled and sweating as I’d write a few status updates and replies to friends.… Read More
by Jody Smith
As is so often the case, the research on a possible correlation between metabolic syndrome and ME/CFS is scanty. When I came across this threadbare research, though, I was desperate enough to check it out for myself.
I recognized myself when I read about the weight gain and difficulties in dropping the weight, but what really rang a bell was when I read that brain function can be severely affected. A poorly-working brain has been one of the worst symptoms of ME/CFS that I struggle with.
Diabetes runs in my family, and the fact that I had so many signs of metabolic syndrome was no surprise. … Read More