Phoenix Rising is proud to join the Coalition 4 ME/CFS. Every member of the Phoenix Rising Board of Directors has had ME/CFS for over ten years and we are all personally aware of its costs.
A recent letter one of our Board Members, Pat Sonnett, wrote to Amy Dockser Marcus of the Wall Street Journal, summed up the feelings for all of us.
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“Amy, thanks once again for covering the story of ME/CFS. I firmly believe that much of the patient anger and frustration we’re witnessing now is justified and is a direct result of decades of denial, ridicule, neglect and malfeasance on the part of our government health agencies whose responsibility has been to investigate this illness properly.