energy

by Jody Smithpixabay-clock-and-face

The struggle with energy (or lack of it) is an integral part of life with ME/CFS. Whatever other symptoms each of us deals with, the ongoing energy black hole and knowing when and how to use what little oomph we might have safely, is a conundrum we all grapple with, often without success.
 
During the times when we just don’t have anything to spare beyond breathing and the most basic thought processes, the quandary of how to use energy is irrelevant and out of reach. The question sticks its tongue out at us in derision.
 
For some of us though, there are times when we have a little extra energy.… Read More

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By Jody Smith

diagram for krebs cycle

Energy. It’s defined by Merriam-Webster.com as the force that drives and sustains mental activity, and the capacity for doing work. ME/CFS is noteworthy for a dearth of it.

Anyone with ME/CFS knows all too well what it’s like to be so exhausted that we can’t lift our heads. We have very likely had the experience of being stopped mid-thought as the mental energy used by our brains seems to simply disappear. We know what it is to be unable to sit upright, or to walk down a hallway, because we do not have the energy.

When we say we lack energy we don’t mean what other people do by that.… Read More

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1. Take D-ribose (Corvalen) (5,000 milligrams – I scoop) 3x’s a day for 3 weeks, then 2 x’s a day. Add to food or drinks.

2. Take the Energy Revitalization System vitamin powder (Enzymatic Therapy) or similar multivitamin with B-complex

3. Take 500-1,000 mgs. of acetyl-L-carnitine a day for four to nine months and then as needed

4. Take 200 milligrams of coenzyme Q10 daily for four months (Vitaline, Enzymatic Therapy or Ultraceuticals)

Dr. Teitelbaum recommends that all ME/CFS patients try the first two. If cost is an issue stop there

Otherwise consider adding acetyl-L-carnitine for 3-4 months. Then add Coenzyme Q10 for three to four months.… Read More

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Pacing

March 6, 2011

Most people with the illness are still doing too much….on the other hand, perhaps 1 in 4 people are doing too little”

Dr. Friedberg

The Energy Envelope theory is founded on the idea that ME/CFS patients have a kind of physiological ‘safety’ zone available to chronic fatigue syndrome patients. It’s different for each person and is largely defined by how much activity you engage in. Partaking in too much mental or physical or even emotional activity will push you outside that zone stressing your system to the point at which it fray’s causing your symptoms to increase. Staying within that zone, on the other hand, will hopefully give your body the opportunity to help heal itself or at least not suffer further damage.… Read More

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