≡ Menu

holiday season

Is December getting to you? Jody Smith shares some thoughts on some of the struggles that all too often attend this time of year … 

pixabay-lights-1088141_640

The holiday season just doesn’t live up to the hype, especially for the chronically ill and their caregivers. You people with ME/CFS know all too well what I’m talking about.

I am one of the lucky ones, and I know it. My symptoms are generally mild and while they keep my life small, I’m able to do more than many who have ME/CFS.

Today I drove for 20 minutes to a shopping plaza and picked up a few things for Christmas, then drove back home.… Read More

{ 30 comments }

This holiday season Jody Smith turns her eyes to the people of Phoenix Rising and gives thanks for you all …

pixabay-christmas-present-publicdomainpictures

Phoenix Rising is a community that I will always love. Seven years ago I stumbled upon this place in its early days. I had been isolated and lonely for a number of years because I have ME/CFS, and finding this place and these comrades in disease was life-changing for me.

As is the common story with ME/CFS, I had gone through the personal culture shock of having had a perfectly fine social life, personal life, family life, and the ability to do most normal things with only the normal amount of struggle — and then had it all ripped away from me.… Read More

{ 15 comments }

The Holiday Season vs. ME/CFS

By Jody Smith

pixabay-christmas-boy-windowIn North America, the end of November traditionally kicks off the holiday season which runs till the beginning of January. “Holiday season” may seem to be at best an ironic term, at worst a bad joke, for describing this most taxing of time periods, especially for people who are chronically ill, and often poor and isolated as so many are who have ME/CFS.

In the United States, Thanksgiving pulls the trigger for the holiday season. It’s an occasion that does its best to bring some light and comfort to a cold, bleak time of year. At least, in theory.… Read More

{ 15 comments }