1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Blog entries from Cort

Cort has a total of 88 entries.

  1. Cort
    We're moving tomorrow! After much testing and evaluating we hope the transition will be as seamless as possible but in a move like this some glitches are probably inevitable. All you will need to do is login again (and click the stay logged in button, if you wish). Be prepared for a quite different look! Why did Phoenix Rising Switch Forum packages (from Vbulletin to Xenforo)? Xenforo is a...
    Cort, May 10, 2012
  2. Cort
    For decades, ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) has devastated the lives of patients and our loved ones, leaving us with an alarmingly low quality of life. Today, ME/CFS affects the lives of more than 1 million Americans of both sexes and all ages at an annual cost of at least $21 billion in direct costs and lost productivity. As patients and loved ones, we have...
    Cort, Apr 25, 2012
  3. Cort
    Getting Social Security Disability/Supplemental Income (SSD/SSI) can be a lifeline for financially beleaguered people with CFS (ME/CFS) but the application process is often lengthy and difficult. Anecdotal reports from physicians and patients suggest getting disability may be more difficult for CFS patients yet documentation of success rates is lacking and little hard data exists on what works...
    Cort, Apr 1, 2012
  4. Cort
    <img src="http://xenforo.com/styles/default/xfsite/logo.png" align="Right" />Phoenix Rising is moving :Retro eek:....to a new Forum package called Xenforo. The move did not come easy (particularly for me); VBulletin has been good to us but after taking a close look at both packages it became clear which way we should go...Xenforo is a new product (created by VBulletin's former lead developer)...
    Cort, Mar 13, 2012
  5. Cort
    I'm going to spend a couple of months focusing on Treatment articles on Phoenix Rising and I'm reviewing the literature and looking for people who have recovering/recovering stories..All stories can be anonymous or use pseudonyms. I'm basically looking for the following facts When did you get ill? How did it happen? How ill did you get at your worse? What helped to turn things...
    Cort, Feb 29, 2012
  6. Cort
    Background The theme of this year is expansion, not contraction as one might expect after the biggest finding in CFS history (XMRV) didn't pan out. With XMRV drawing more attention than ever to this disease the ME/CFS research community emerged in better shape with more new projects and more new faces than ever before. Yes, ME/CFS is still a fringe topic receiving abysmal funding from the...
    Cort, Feb 23, 2012
  7. Cort
    A Place To Go<img src="http://phoenixrising.me/wp-content/uploads/pr-logo-1-wider-rising.jpg" align="right" height="140" width="90" /> ME/CFS can be isolating but people with ME/CFS do not have to be isolated and Phoenix Rising is a big reason why. If John in Los Angeles wants to get the latest info on GcMAf; if Pat in Miami needs to get the latest research news, if Mary in the UK just wants...
    Cort, Dec 20, 2011
  8. Cort
    <img src="http://phoenixrising.me/wp-content/uploads/KlimasXMRV1.jpg" align="right" /> I can promise we will be providing cutting edge research and care, and educating providers like never before. Dr. Nancy Klimas Dr. Klimas recently left the University of Miami to head up a new Institute dedicated to researching chronic fatigue syndrome (ME/CFS) and Gulf War Illness at Nova Southeastern...
    Cort, Dec 20, 2011
  9. Cort
    <img src="http://www.jewishcommunityheroes.org/page/file/0e16a6fbc7b4c02243_iem6bhgvr.jpg/@mx_223" align="right" />Marly Silverman is a worker! How many people have played a major role in creating not one or two but three organizations? Marly first created PANDORA, then in response to the CDC's new website, dreamed up the MWCPA and then was a key figure in getting the Coalition4MECFS off the...
    Cort, Oct 24, 2011
  10. Cort
    <img src="http://forums.phoenixrising.me/images/fuelinggood.png" align="right" />Dan Moricoli is proof that even individuals afflicted with a severe illness can make a difference. Hampered by an alarming case of ME/CFS that has stymied many doctors Dan has nevertheless produced a unique place for people with CFS to gather and learn. The CFS Knowledge and ME/CFS Community Centers now have the...
    Cort, Oct 14, 2011
  11. Cort
    We've been developing a program specifically designed to evaluate Physician effectiveness at treating ME/(CFS) and we'd like some volunteers to give it a run through. It's not done - there are still some sections we want to add but its at a good testing phase. Warning - its very bare bones - no formatting - not pleasant to look at but the basics are there. If you're interested in checking it...
    Cort, Aug 31, 2011
  12. Cort
    [ATTACH]The Month Of ME - in response to a challenge and in recognition of the important role the term myalgic encephalomyelitis (ME) has played and continues to play in this disorder, August, 2011 will be the Month of ME on Phoenix Rising. We will examine MEs role in this disorder throughout the month. All articles, blogs and posts produced by Phoenix Rising will only use the term myalgic...
    Cort, Aug 7, 2011
  13. Cort
    The Forums are a major part of Phoenix Rising. In recognition of this we have allotted a permanent space on the Phoenix Rising Board of Directors to be filled by a Forum member. Depending on how many nominations come in we will hold a vote; and the top three nominees will go to the Board and one person will be chosen. The Forum Board Members main job will be to guide and assist Phoenix...
    Cort, Jun 4, 2011
  14. Cort
    [ATTACH]Phoenix Rising is committed to being a leader not only within the ME/CFS field but in how web technologies can be innovatively used to support people with health problems (in our case ME/CFS). We see many ways health support sites could be improved and we plan to make a Phoenix Rising a model of people with chronic disorders can use how web technologies to empower themselves....
    Cort, Jun 4, 2011
  15. Cort
    [ATTACH]As the International Workshop on Chronic Fatigue Syndrome (ME/CFS) approaches now is a good time to look at where we are. The Workshop is just two days but it's a big deal because it will present where the state of XMRV, of course, dominated our interest last year but quite a bit of other research took place and this is the research that will take center stage at the Workshop. That is...
    Cort, Apr 2, 2011