1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!

Took second dose of Valcyte this AM.

Blog entry posted by ArgyrosfeniX, Jan 14, 2012.

Hello Everyone,

I started my second Valcyte journey yesterday (Friday the 13th) and have taken my second dose this morning.

Have a funny sensation in my muscles - like a tingling sensation, or a slight numbness. There doesn't seem to be any changes in strength at this time, but I feel a bit more slack than normal - looser if you will. Not sure if this is anything significant, but I'll keep writing about it if it turns into something more.

After writing my "pre-dose" blog entry, I had a meeting with my boss about the next few weeks while my body is adjusting to everything. He asked that I get a note from the Internist detailing what to expect if I have a herx / die-off reaction. That way, we can make any absences excused and I won't get in trouble for the time off. Hopefully, I'll be able to hand that to him in person on Tuesday (I have to pick it up on Monday and I work nights, so Tuesday is the soonest I can get it to him).

My family bought me a Britta water filtering system that goes to 4 bottles for my birthday on the 9th. I'll be using that to keep my hydration levels up - keep my kidneys functioning well. That was the one thing I noticed last time - that my kidney function tests had started to change just before ending the 6 month dosing. They were still in the normal range, but were getting close to edge of that range. Since we're likely going to be going at this for a longer period, I'm wanting to take extra care with them this time around.

=== BY THE NUMBERS: DAY 2 ===
Weight: 261.0 lbs (haven't reweighed)

Activity Level: 4 today

Current Dosing: 2 doses taken at 450mg each

Lab values of note: No results yet.
ArgyrosfeniX

About the Author

Living with ME/CFS since the age of 16 (1989). Was persistent enough to get three Associates Degrees and get married through it all. Working hard to keep going for as long as I can before becoming bedridden. Current treatment plan is to use Valcyte for 2 years starting January 13th, 2012, then possibly switch to Valtrex for an indefinite period. "Here I am trying to live, or rather, I am trying to teach the death within me how to live." ~ Jean Cocteau