Today is day 10 for the Valcyte administration, and things have been going pretty well.
Most of my symptoms resolved around day 6-7 aside from generalized weakness. The was a wonderful feeling of energy even though there wasn't anything in the tank to back it up. I was able to do more around the house yesterday - able to help the wife clean house some and shoveled our short driveway (just long enough to have a full sized SUV on) while being only moderately short of breath. Am having a bit more difficulty today as I changed my dosing to 450mg twice a day on day 8.
This week at work should be relatively easy, so the dosage was changed to allow me to recover before next week's blitz of activity. Hoping to be fairly recovered by then. Maybe this will work out (crosses fingers, toes, arms, legs and eyes)...
There has been some thinking that if the energy comes back in the next few weeks and appears as if it will stick around for a while, that I might be able to exercise and regain some of the muscle mass I've lost the past 2 years (wouldn't hurt to loose some of the fat either). If that works out, I'm considering changing jobs to something I enjoy better - not one where I'm there due to energy restrictions. Would really like to go back to an ER job.
One other item to mention - I slept the other day! Like 11 hours straight! Haven't slept more than 4-6 hours at a time in several months. Felt so good - would love to have it happen more often!
=== BY THE NUMBERS: DAY 10 ===
Weight: 262.6 lbs
Activity Level: 4 - likely due to increased dosage
Current Dosing: 450mg, twice daily
Lab values of note: CBC - completely normal range for all values
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Valcyte - Day 10 and Counting
Blog entry posted by ArgyrosfeniX, Jan 22, 2012.
About the Author
Living with ME/CFS since the age of 16 (1989). Was persistent enough to get three Associates Degrees and get married through it all. Working hard to keep going for as long as I can before becoming bedridden. Current treatment plan is to use Valcyte for 2 years starting January 13th, 2012, then possibly switch to Valtrex for an indefinite period. "Here I am trying to live, or rather, I am trying to teach the death within me how to live." ~ Jean Cocteau