Hello again Everyone!
The past week was a blessing at work - busy, but of a light activity level. This next week is going to be the one to test me (and the Valcyte results) as we're going to be very, very busy... Wish me luck on making it through!!
I have 1 day left of the Valcyte after this mornings dose before I have to get some more. The insurance copay hasn't lowered by much since the last purchase, so I'll have to shill out about $850 clams for my next months worth. Thankfully, after that has been paid for, our family's deductible will have been met. This means that the rest of the meds for 2012 should be paid for entirely by the insurance company! YAY!! :Sign giggle:
I have noticed some additional (occasional) improvements. I've had a few more days where I've gotten periods of sleep longer than 4-5 hours, and last night, I almost felt refreshed when I woke for work! That hasn't happened in over a decade!! What I wouldn't give to actually feel refreshed after a good period of sleep...
One item to make mention of: Even though I've been having less problems with gorging myself during the day due to endless hunger (which is due to endless lack of energy), I seem to have been gaining weight since I started the Valcyte. Not sure if it is water weight, or something else. Hopefully, it isn't the trend of things to come ( I've gained about 4 pounds since the 13th).
Thanks again for reading!
=== BY THE NUMBERS: DAY 18 ===
Weight: 265.1 lbs
Activity Level: 6-7, depending on the day
Current Dosing: 900mg in AM
(I work nights and found that the Valcyte was making
me sleepy - so I take it when I get home from work.)
Lab values of note: No additional labs at this time.
50 experts and 171 advocates oppose the HHS/IOM Contract to re-define ME/CFS.
Check out our IOM Contract Forum for the latest news and to join the campaign.
Demonstrations in San Francisco Dec 9th and Washington D.C. Dec 10th
Valcyte - Day 18
Blog entry posted by ArgyrosfeniX, Jan 30, 2012.
About the Author
Living with ME/CFS since the age of 16 (1989). Was persistent enough to get three Associates Degrees and get married through it all. Working hard to keep going for as long as I can before becoming bedridden. Current treatment plan is to use Valcyte for 2 years starting January 13th, 2012, then possibly switch to Valtrex for an indefinite period. "Here I am trying to live, or rather, I am trying to teach the death within me how to live." ~ Jean Cocteau