One of my worst symptoms is burning skin. I’m starting this thread to see how many of us have something similar to this, and to see if anybody out there seems to have the same form of it as I do. I found some info in an earlier thread.
This is similar to what happened to me, though in my case it occured a few years into my ME. I had a history of urticaria, sensitive skin and allergies, but in 2007 a violent reaction occurred and my skin seemed to completely lose tolerance. I started having a feeling of constantly burning skin, my urticaria increased and I had “allergy like” reactions such as cold sweats and shivering. I could no longer tolerate most textile fabrics (I had to stop wearing the fleece pants and sweaters I had used for years), heat, sun, screens or chemicals.
Ever since the burning skin has been my worst symptom (and I’m severely ill and mostly bedbound, so ranking it my no 1 symptom means it’s HELL…) The visible allergic reactions (the urticaria) have subsided, but the violently burning skin remains. It feels like having fallen asleep in the sun and gotten really badly sunburnt, and then being forced back out into the sun.
The burning is worst on my face and the front side of my body, but occurs all over the skin. It’s triggered by most textile fabrics (I have an extremely hard time finding clothes and bedlinen I can tolerate), heat, sun (even sun through the window), chemicals, screens. It’s also triggered on the few occasions I can do some very small exercises for my neck and back – that is, when blood circulation increases.
When I’m exposed to triggers and the burning increases, I also get reactions which remind me of the first stages of the allergy shock I once had: shivering, cold sweats, extreme malaise. So for me, it’s not a straightforward allodynia, it seems immunology/allergy connected and probably has to do with my previous problems with urticaria, hypersensitive skin and heat allergy. Blood circulation seems to be involved somehow.
Does anyone have anything similar to this?
The first major symptoms that occurred with me was a "sunburned" feeling over my whole body. It came on suddenly and lasted for several months. At the time I was sure that I was going to kill myself if it didn't stop, as it was so severe that I really didn't think I could have endured it for much longer.
It finally subsided a bit after about 6 months. (…)
This is similar to what happened to me, though in my case it occured a few years into my ME. I had a history of urticaria, sensitive skin and allergies, but in 2007 a violent reaction occurred and my skin seemed to completely lose tolerance. I started having a feeling of constantly burning skin, my urticaria increased and I had “allergy like” reactions such as cold sweats and shivering. I could no longer tolerate most textile fabrics (I had to stop wearing the fleece pants and sweaters I had used for years), heat, sun, screens or chemicals.
Ever since the burning skin has been my worst symptom (and I’m severely ill and mostly bedbound, so ranking it my no 1 symptom means it’s HELL…) The visible allergic reactions (the urticaria) have subsided, but the violently burning skin remains. It feels like having fallen asleep in the sun and gotten really badly sunburnt, and then being forced back out into the sun.
The burning is worst on my face and the front side of my body, but occurs all over the skin. It’s triggered by most textile fabrics (I have an extremely hard time finding clothes and bedlinen I can tolerate), heat, sun (even sun through the window), chemicals, screens. It’s also triggered on the few occasions I can do some very small exercises for my neck and back – that is, when blood circulation increases.
When I’m exposed to triggers and the burning increases, I also get reactions which remind me of the first stages of the allergy shock I once had: shivering, cold sweats, extreme malaise. So for me, it’s not a straightforward allodynia, it seems immunology/allergy connected and probably has to do with my previous problems with urticaria, hypersensitive skin and heat allergy. Blood circulation seems to be involved somehow.
Does anyone have anything similar to this?