No I've had the tests orthostatic hypotension with professor Julia Newton who specialises in this and I don't have it.
No it didn't start with a virus. It started after a lot of stress. No sinus problems but chronic migraines for years. No blocked nose or environmental issues.
My symptoms are more neurological with a wired feeling all the time, can't sleep, can't stop thinking, anxiety, migraines as I said, ibs, very weak eyes - can't watch tv or read and typing this is killing me and I can't walk much at all.
I'm working with a nutritionist and I have candida and leaky gut also borderline adrenal fatigue. Not sure about parasites but will ask her.
I think the worst symptom is the weak eyes. I'm so limited so must stop now. Thanks
Hi. thanks for responding.
I'm certainly no-way near as knowledgeable as others are on this subject but what you can look into the following options to help with your situation. These things below are easily available to source. If they start to improve your health then over time you will probably require less of them but you can figure that out as you go along. Quite often once your health starts improving most biochemical cycles in the body will start taking care of themselves so supplementation becomes less important but these are good treatments to keep in mind for their safety & effectiveness.
There are certainly many other angles to approach this condition, particularly with regard to hidden infections in the body but the idea behind what is listed below is that is gets your body out of the slump its in so it can start taking care of itself more effectively by enhancing neurological & immune function as well as unblocking antioxidant & detoxification pathways.
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Vitamin B12 injections (As far as I know this is possibly one of the most effective and most safest ways of improving CFS/ME symptoms - Even if adequate levels of B12 are found via a blood test, there does seem to be a functional B12 deficiency in many of us & it is essential for myelin sheath health & function.
Vitamin B12 injections are well known supplement for chess players, politicians & movie stars and is widely recognised as for its critical role in optimal neurological health.
You also should look into taking a course of
Vitamin B12 (Methylcobalamin) sublingual lozenges. It needs to be the Methylcobalamin form of B12 because that is the active functional form (most supplements use cyanocobalamin which is a synthetic inactive form & needs to be activated by the body (Via the Methylation Cycle) before it is useful - This form is often ineffective (possibly even harmful) for ME/CFS patients and should be avoided.)
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Methylfolate - this helps the methylation cycle along with B12 which raises levels of the antioxidant glutathione & helps in detoxification and recycling neurotransmitters as well as DNA synthesis. It is the active form of folate.
Most serum Folate blood tests measure the inactive Folic Acid. So if you've had Folic acid test it may not give you an accurate picture of how much active MethylFolate you have.
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N acetyl Cysteine (This you can take as capsules as the powder form tastes revolting). Some people report intolerance to this so start at around 300mg daily and if you don't have any tolerance issues you can build up to 1800mg daily. This is an amino acid precursor to the antioxidant glutathione which the medical literature now suggests is depleted in many chronic health conditions. Glutathione is certainly critical to neurological health and all systems in the body need it to function optimally especially the immune system.
N-acetyl Cysteine is also found to regulate Glutamate in the brain so it has a powerful effect in reducing anxiety and is now a proven treatment for a range of psychological disorders (such as obsessive compulsive disorder & bipolar depression) which are likely to be linked to poor regulation of Glutamate).
I've had long running anxiety issues which have been very successfully ameliorated by using 1200mg of NAC daily. This has been important in my situation because it certainly has made me feel more relaxed & in control of my mood & thoughts. Basically NAC has powerful anti-inflammatory effects so it certainly can improve neurological health.
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Melatonin
If you have sleep difficulties definitely consider Melatonin if you haven't already. This you will probably need a doctors prescription for. Melatonin is also an antioxidant & has anti-inflammatory properties & many of us have found benefit from low doses before sleeping. You can also consider 5-HTP as a supplement which is a biological precursor to Melatonin.
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GABA
This can be one of the best supplements for inducing sleep & relaxation. It doesn't necessarily benefit everybody as we still don't know how effectively it can cross the blood-brain barrier but in CFS/ME the blood-brain barrier is suggested to be compromised so it is likely to have some effect. Many of us (myself included) feel a strong relaxing effect about 20 minutes after consuming which can remove that 'wired feeling' in the brain & make sleep much easier.
This most likely occurs because GABA is reducing the activity of N-methyl D Asparatate which is a neuroexcitor (bascially it keeps you feeling wired & restless)
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Phosphatidyl Serine, Phosphatidyl Choline & Fish Oil
These provide building blocks to the fattyacids in the brain and they help with neurological repair & maintenance of myelin sheath.
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Iodine
I would also get your iodine levels checked & take supplementation if they are low. I don't think Iodine levels are checked as much as they should be. Also make sure zinc & magnesium are ok.