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Any Experience with Dr. Brewer Nystatin + EDTA Intranasal?

Messages
171
Location
London
Hi

Has anyone on this forum had the opportunity to try Dr. Joe Brewers revised protocol for treating fungal mycotoxin secreting reservoirs that he believes are likely located in the sinus passages? I believe the latest protocol comprises the intranasal delivery of Nystatin, EDTA and a Surfacant.

Just wondering really if anyone has had any response good or bad to his protocol or if they know what doses are used on the protocol?

I read the post by the patient advocate here: http://cfspatientadvocate.blogspot.co.uk/2014/10/dr-joseph-brewer-at-ilads-2014.html

Cheers,

J
 

ukxmrv

Senior Member
Messages
4,413
Location
London
yes, there has been discussion of this before. However, I can't find the threads. You may find them through a search

Bumping this up as others may remember the threads
 

aquariusgirl

Senior Member
Messages
1,732
just saw him last week.. he has me on amphotericin b plus edta.. I think those are still the first line txtmetns if tolerated. he has patients from the UK.. fyi.. they have to get someone here to ship the stuff to them tho.. the pharmacy wont ship overseas.
 

Forebearance

Senior Member
Messages
568
Location
Great Plains, US
I hope this goes well for you, aquariusgirl!
My version of his protocol has been really helping me. It has been reducing inflammation, which basically reduces all my ME/CFS symptoms.
 

slayadragon

Senior Member
Messages
1,122
Location
twitpic.com/photos/SlayaDragon
I used an extremely similar version of this many years ago via Dr. Dale Guyer in Indianapolis. I was living in a moldy house at the time and was quite sick. I found it a little helpful. My understanding is that those two doctors know one another, so I suspect that that is where Dr. Brewer got the idea.