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Ember replied to the thread Patients to DHHS: Fix the Broken ME/CFS Case Definitions NOW!.

I'll provide references for you, Mark. But it's late here, so I'll leave off for now. As an aside, you write, “You know as well as I do...

Answers2013 posted a new thread.

Mast Cell Diagnosis?

Hello For 8 months I've struggled with a range of health issues with literally every kind of test revealing no diagnosis (range of...

Forum: Addressing Mast Cell Activation

Allyson posted a new thread.

Lyme Disease in Australia - useful poster

A great objective summary of Lyme in Australia 2013 http://www.asid.net.au/images/PDFs/Poster%20Presentations/Ann%20Mitrovic%201.pdf...

Forum: Other Health News and Research

Mark replied to the thread Patients to DHHS: Fix the Broken ME/CFS Case Definitions NOW!.

I can't find that request within the ICC paper, do you have a reference for it? I also can't find anything in the ICC paper that is...

helen1 liked triffid113's post in the thread Anxiety, Ammonia, and the NMDA Receptor.

Ok I agree with most of what I read above but it is a big mistake that no one mentioned DHEA. I have constant anxiety if I do not take my...

Ember replied to the thread Patients to DHHS: Fix the Broken ME/CFS Case Definitions NOW!.

Have I done due diligence to the best of my ability, Mark? Yes, I have. But I'm not the one with responsibilities for advocating for this...

brenda replied to the thread Breakspear Medical in the UK.

I am the NHS patient who has been funded by my PCT, first off for tests which came to £3,500, then further funding, for Lyme treatment...

Allyson replied to the thread what symptoms "count"in ME/cfs?.

thanks Shell and Bob; please do post if so thanks Ally

Allyson liked Bob's post in the thread what symptoms "count"in ME/cfs?.

Videos of the whole event will be placed online.

Allyson liked Shell's post in the thread what symptoms "count"in ME/cfs?.

I hope the CFSAC meeting will be up on Youtube. I can't read much at the moment. I need to hear it.

Allyson replied to the thread DId your ME/EDS symptoms first appear after AIRPLANE travel?.

OMG i would have thought nail polish illegal on a plane. Yes i have walked iinto a room where someone was applying nail polish and...

Allyson liked Ocean's post in the thread DId your ME/EDS symptoms first appear after AIRPLANE travel?.

Good point. I was on one flight where a woman was putting on nail polish, the smell was awful. She has a hard time understanding why I...

Allyson replied to the thread Does IM B 12 stop your nocturia/polyuria/polydipsia?.

Thanks for that useful link Ric - interesting. they do not mention ME /cfs on it though but i know a lot of us have these...

Allyson replied to the thread Does IM B 12 stop your nocturia/polyuria/polydipsia?.

Hi X and ric thanks I take IM neo B 12 weekly - wel every 5-6 days i find is best Oral/sublingual B12 did nothng for me and sub -...

Jarod replied to the thread Constant tingling.. Maybe it is not Potassium deficiency?.

Have you tried stopping the zinc by any chance? I was having some unusual tingling in the feet and stopped taking the zinc which seemed...