1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Recent Activity

Activity stream for all registered members at Phoenix Rising ME / CFS Forums.

  1. Snowdrop replied to the thread The delayed fatigue effect in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

    "This is the psycho-social theory whereby they acknowledge an abnormal level of measurable cytokine levels in ME/CFS patients but then...

    Apr 24, 2014 at 5:04 PM
  2. Izola liked jspotila's post in the thread NIH rejection of Lipkin funding request.

    Thank you, Izola!!! I understand what you are saying about feeling like you've lost the magic pen. I feel that way too sometimes, and the...

    Apr 24, 2014 at 5:01 PM
  3. jspotila replied to the thread NIH rejection of Lipkin funding request.

    Thank you, Izola!!! I understand what you are saying about feeling like you've lost the magic pen. I feel that way too sometimes, and the...

    Apr 24, 2014 at 4:21 PM
  4. Rrrr replied to the thread Treatment of 741 italian patients with chronic fatigue syndrome.

    i had never heard of thymopentine, so i looked it up: http://en.wikipedia.org/wiki/Thymopentin

    Apr 24, 2014 at 4:16 PM
  5. PennyIA liked Bob's post in the thread Chronic fatigue syndrome: the current status and future potentials of emerging biomarkers.

    Chronic fatigue syndrome: the current status and future potentials of emerging biomarkers David B. Fischer, Arsani H. William, Adam C....

    Apr 24, 2014 at 4:15 PM
  6. Rrrr liked A.B.'s post in the thread Treatment of 741 italian patients with chronic fatigue syndrome.

    I know. It would be interesting to hear the rationale behind this. By the way, the website of Dr. Tirelli names some of the...

    Apr 24, 2014 at 4:15 PM
  7. Rrrr liked Roy S's post in the thread Standing Up for Patients: An Interview with Dr. Derek Enlander.

    Thanks, Gabby. I really appreciate our outstanding physicians and researchers advocating for the patient community. Delays in publishing...

    Apr 24, 2014 at 4:14 PM
  8. A.B. replied to the thread Treatment of 741 italian patients with chronic fatigue syndrome.

    I know. It would be interesting to hear the rationale behind this. By the way, the website of Dr. Tirelli names some of the...

    Apr 24, 2014 at 4:12 PM
  9. Rrrr liked NK17's post in the thread Treatment of 741 italian patients with chronic fatigue syndrome.

    Thanks @Rrrr we're unluckily in this together! United we stand, divided we fall!

    Apr 24, 2014 at 4:09 PM
  10. Rrrr replied to the thread Treatment of 741 italian patients with chronic fatigue syndrome.

    thanks, @A.B., for your help with this. do keep us posted regarding if you feel any better from the protocol they have you on. meanwhile, i...

    Apr 24, 2014 at 4:08 PM
  11. Rrrr replied to the thread Treatment of 741 italian patients with chronic fatigue syndrome.

    @NK17 oh, i totally understand your frustration and anger. i've been near bedridden for 1 full week, this past week, and that comes after...

    Apr 24, 2014 at 4:06 PM
  12. ahmo replied to the thread Antihistaminic flavonoids: Quercetin, Rutin... especially Luteolin.

    @Violeta, That is indeed interesting. It responds to my increased need for honey after my enemas, when lot's of stuff is moving. AND, it...

    Apr 24, 2014 at 4:05 PM
  13. Rrrr liked NK17's post in the thread Treatment of 741 italian patients with chronic fatigue syndrome.

    I can tell you that for sure at this specific clinic they didn't and still don't use the CCC or the ICC to diagnose. I know this because I...

    Apr 24, 2014 at 4:04 PM
  14. Rrrr liked A.B.'s post in the thread Treatment of 741 italian patients with chronic fatigue syndrome.

    I understood, and said that it was a request for clarifying an aspect of this study for a curious patient. Maybe I can get the info next...

    Apr 24, 2014 at 4:03 PM
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