1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Recent Activity

Activity stream for all registered members at Phoenix Rising ME / CFS Forums.

  1. sming liked RustyJ's post in the thread Instant yawning upon starting excercise.

    I experience this. However, in my case, it appears to have nothing to do with being tired. It can be while I am walking or otherwise more...

    Jul 30, 2014 at 8:04 AM
  2. sming replied to the thread Instant yawning upon starting excercise.

    right, that's it. I get it when not fatigued (as well as when fatigued). A flight of stairs will do it.

    Jul 30, 2014 at 8:04 AM
  3. sming replied to the thread Instant yawning upon starting excercise.

    I've noticed it lifting weights (heavy weights, low number of slow reps), soccer and running. Lifting weights was the most pronounced...

    Jul 30, 2014 at 8:03 AM
  4. heapsreal replied to the thread High NK cells?.

    I wonder if that would make u a candidate for rituximab?? There has been a few with normal/high nk function but with low cd8 t cell...

    Jul 30, 2014 at 8:02 AM
  5. Nielk liked Sasha's post in the thread My Rituximab experience with RA and ME.

    Sorry to hear you're so ill at the mo @Firestormm - it's bad enough having ME without something else horrible on top of it. Thanks so much...

    Jul 30, 2014 at 7:57 AM
  6. heapsreal liked deleder2k's post in the thread My Rituximab experience with RA and ME.

    @heapsreal this is for you. From the first Rituximab study. I am sure that you have seen this before....

    Jul 30, 2014 at 7:56 AM
  7. fibrodude84 replied to the thread New Lyme test.

    Is this test in use yet? It still can prove a definite non diagnosis if someone never was infected and can rule out lyme.

    Jul 30, 2014 at 7:56 AM
  8. fibrodude84 replied to the thread CFS or fibro? how do I know?.

    Interesting thank you. What is the method of diagnosing chronic OI and what is used for treatment? My ENT did a tilt test but I may go back...

    Jul 30, 2014 at 7:54 AM
  9. fibrodude84 liked ahimsa's post in the thread CFS or fibro? how do I know?.

    I thought I'd chime in with the others and say that OI can definitely be chronic. In fact, Chronic Orthostatic Intolerance is the term that...

    Jul 30, 2014 at 7:52 AM
  10. fibrodude84 replied to the thread Good jobs for CFS?.

    I know but I'm young and I feel I should be on it but don't want to give in so quickly.

    Jul 30, 2014 at 7:50 AM
  11. deleder2k replied to the thread My Rituximab experience with RA and ME.

    @heapsreal this is for you. From the first Rituximab study. I am sure that you have seen this before....

    Jul 30, 2014 at 7:50 AM
  12. fibrodude84 liked taniaaust1's post in the thread Good jobs for CFS?.

    You may have to consider going onto a disability pension if you cant work full time, many of us have had to do that. The efforts of trying...

    Jul 30, 2014 at 7:50 AM
  13. fibrodude84 replied to the thread b12 shot even if not deficient?.

    I spoke to Jarrow and asked why they don't carry sublingual and they said some of it is released through the oral mucosa and others in gut...

    Jul 30, 2014 at 7:49 AM
  14. Nielk liked DanielBR's post in the thread My Rituximab experience with RA and ME.

    Back to the question autoimmunity or not. Of course we all have our personal theories and stories (and sometimes successes with certain...

    Jul 30, 2014 at 7:48 AM
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