• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. R

    Can it be that I have me/cfs

    Thank you , I hope your headache goes away Tried getting out yesterday went to eat with girlfriend , who is supportive , I feel bad , tried to get a little drunk sometimes helps lol pretty tired this morning was stiff but happens to me a lot when sharing bed with girlfriend and 100 pound dog...
  2. R

    Can it be that I have me/cfs

    Very upsetting to hear that , you are in prayers
  3. R

    Can it be that I have me/cfs

    Well I stopped the meds over a week ago made me crazy, don't want them anymore . I did tell her but as most tell u it's psychosomatic . I just don't know about pem because I haven't felt normal in 3 weeks , constantly tired but can still do things if I had to , if a fire broke out I could...
  4. R

    Can it be that I have me/cfs

    That's where I'm confused , yesterday I walked a long time did a bit of chin ups , pushups , did a bit of errand but mostly say around all day , my work is pretty much on computer nowadays Anyways this morning i had trouble waking up , still tired after pretty good nights sleep actually didn't...
  5. R

    Depersonalization

    Hmm I'll check it out thanks for your concern
  6. R

    Depersonalization

    I emailed her today and asked for it , after you had mentioned it
  7. R

    Depersonalization

    Thank you for your response , although I went in January and my stomach problems have disappeared at least 2 months ago , naturopath is aware of this and has mentioned to me that she thinks maybe I never recovered from it? Right now she gave me some things for my drenals , immune system and...
  8. R

    Depersonalization

    Thank you I do need to calm down I guess ....story of my life
  9. R

    Depersonalization

    Thank you any dr you can suggest?
  10. R

    Can it be that I have me/cfs

    I checked out dr Hyde , but according to him , or what's on his site , m.e had a sudden onset , patients are well one day and very I'll the next , is not my case whatsoever , I think I will be dismissed , was your dp from encephalitis?
  11. R

    Depersonalization

    I'm sorry you had to go through that , I'm scared shitless right now I don't know what to do , what's a functional medicine doctor . I can't sleep I'm so worried about having m.e I though m.e has distinct onset ? How bad do symptoms have to be to fit in the criterias? How bad does pem have to...
  12. R

    Can it be that I have me/cfs

    Well you have now scared the life out of me
  13. R

    Can it be that I have me/cfs

    Maybe , but then I guess I'd have a very mild form of m.e , compared to what people have told me , feel like getting hit by truck or having cognitive issues like sushi explained , I have not experienced anything like that .
  14. R

    Can it be that I have me/cfs

    I see .... Very confusing because when i read the hummingbird site or whatever it is , it keeps saying that when you get m.e you know you have it , it's not something that gradually gets worse , it's a distinct onset , but now from what I read here that doesn't seem to be true . And again as...
  15. R

    Can it be that I have me/cfs

    Oh !? My goodness , sushi I sincerely apologize , I really hope that I did not come off as someone that says , hey I'm tired I must have cfs , my tiredness is very unusual for me and scared me , I'm really not at that stage at all , but I thought maybe I fell in a category that I had very mild...
  16. R

    Depersonalization

    Thank you for your response again, I'm sorry to hear about your withdrawal from Ativan . I will have to admit your posts were the one that scared me the most especially about encephalitis that triggered your m.e I'm worried I have that . But your response you just wrote to me is the one that...
  17. R

    Can it be that I have me/cfs

    Thank you sushi for your response as always , that's what I'm so confused about I've read over criterial over and over , I understand the description of pem but don't understand it , I mean I am tired after doing things like going to grocery store , but I mean I've been tired for 2 months so...
  18. R

    Can it be that I have me/cfs

    Actually going to do that blood test next week, the Epstein Barr , what else do u think I should ask for?
  19. R

    Can it be that I have me/cfs

  20. R

    Can it be that I have me/cfs

    Yea I know but I was getting dp from taking them and was on low dose 25mg so figured I'd be fine ....guess not . Interesting you say that about viruses , how do I go about testing those , thank you for your input
  21. R

    Can it be that I have me/cfs

    @SOC Like I've said in other threads the last thing I want is that people think I'm down playing the severity of this illness I'm not or I wouldn't be worried about it. But just reading threads I see how much knowledge people have here not only for cfs/me but things related to it, treatments ...
  22. R

    Can it be that I have me/cfs

    Minkeygirl , lol I have no idea , no idea how it works , she kept saying I don't have the symptoms ? I've read both criterial and seems to me like I have most except for pain and the flu symptoms . @SOC Yes I know , I'm sorry but call me stupid but their explanation is hard for me to...
  23. R

    Can it be that I have me/cfs

    Hello again , I've posted on other threads mostly about my worry of the depersonalization I suffer from , but as hard as it is to find a specialist for cfs/me , you all seem to be experts so I'll kindly ask your opinion . My symptoms Tired all the time sometimes worse than others Wake up tired...
  24. R

    Depersonalization

    Thank you all for your input , aerose , I just want you to know that I have read your other posts and know that I pray for you, I hope you have had some sort of relief from the symptoms I read you have , please don't take that in wrong way . I'm just very worried that one I have dp from some...
  25. R

    Depersonalization

    Thank you for all your responses , I'm actually not anxious state constantly but I can honestly admit that I am a hypochondriac and have no problem saying that ,I am trying to be calm about it but no one has to tell me that I am I know am . @ Brenda I doubt I was passed on something sexually ...
  26. R

    Depersonalization

    Hello I am new to the forums I have not been diagnosed with anything as of yet , I have had 2 doctors say possible cfs , I have been trying to rule out m.e both dr have have told me absolutely not , which. Don't understand , they acan do that based on a 40 minute visit with all they have is a...