• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. B

    Borderline CFS and applying for PIP

    I was turned down after plenty of lies from the examiner but went for tribunal. It took 5 years to get to appeal so got a lot of money backdated. The panel were wonderful apart from the doctor so keep going.
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    Dark Side of Vitamin A(retinol)

    Thanks but I won't take supplemental Vit D but use a sun lamp.
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    Dark Side of Vitamin A(retinol)

    Yes I have a problem with copper and iron, due to the many environmental toxic exposures in my life starting in my first year with mercury. My liver must be wrecked but also there is a genetic problem with detoxing. The state of the liver affects the amount of Vit A you can cope with. Perhaps it...
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    Dark Side of Vitamin A(retinol)

    It's about 7 weeks now since I cut back on Vit A, which was liver, eggs and goat cheese along with high carotene from sweet potatoes, and other veg. I still eat one food with high Vit A as my diet is so restricted now as I had to give up all grains and dairy , that is tinned sardines in small...
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    Ron Davis Update

    Does DD wash the hair samples please?
  6. B

    Anyone try infrared light therapy?

    Some companies offer a money back guarantee.
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    Anyone try infrared light therapy?

    I bought this one recently: https://www.blockbluelight.co.uk/products/red-light-therapy-powerpanel-mega as I had been awarded my backdated PIP. I had been thinking of buying one for ages and am very glad I did. I set it for 2 minutes for the first session and felt the benefit after it. It...
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    Anesthesia

    I had nitrous oxide and died on the dentists chair. He resuscitated me and I was looking out of the window when I came round but can't remember much else.
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    Dark Side of Vitamin A(retinol)

    It seems that the emphasis on here has been on taking too much of a vitamin A supplement. However, there is a great storm in alternative health circles, to recognise just how big the problem is, not just with supplementing it but from the amount in food and the variation in people of the ability...
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    A seemingly unexplored simple explanation for ME/CFS and my experiments with it

    I have used spooky 2 successfully for a number of things like, pleuricy, fractured toe, gall bladder pain, but I don't think it is useful on its own for MCS or CFS. I don't bother much with it but if I had an infection it would be out immediately.
  11. B

    Help finding B12 sources please!

    Hmm car battery acid could be that lol
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    Help finding B12 sources please!

    "Folic Acid 200mcg / 50% Vitamin B12 (As cyanocobalamin) 2000mcg / 33‚333%" Not suitable for those who have certain snp's and that Freddd warned against.
  13. B

    Help finding B12 sources please!

    I would like to know what 'natural berry flavours' is first.
  14. B

    Methylene Blue -- The "Perfect Supplement" For ME/CFS (?)

    I have been trying to cope with a dental crisis and have put returning to MB for now. I have liquid. Forgot where it came from but here is one: https://www.fishersci.co.uk/shop/products/methylene-blue-pure-certified/10455081
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    Dental blues

    My biological dentist advised against using this product with my sensitivities. The temporary filling has holded but the molar next to it has started to crumble. I am feeling very depressed about it. Anyway, I feel my dentist let me down as they could not fit me in to a time convenient for me...
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    Dental blues

    I saw a biological dentist yesterday, and he is going to take my amalgams out. I have had no dental treatment for about 10 years, no hygienist, and he kept saying that my gums are very healthy, no plaque and all teeth sound (apart from the disintergrating wisdom tooth which is going to be filled...
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    Copper, Thiamine, Memory Loss, Adrenal Issues

    @willowhope me again. I have had more time to study your post and comment more on it. Maybe you are suffering from an overload of supplements. Did you try coming off them all. There are some very clever people on the Ray Peat forums who might be able suggest a few things as some of them are...
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    Copper, Thiamine, Memory Loss, Adrenal Issues

    Hi @willowhope Which lab did your HTMA? Apparently there are only 2 who do it properly by not washing the samples. I also have the copper problem and trying to sort that out. I was having vertigo which was pretty scary as I am old and scared in case I fall, being alone most of the time. I...
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    Dental blues

    I've been doing a lot of reading recently, since a heavily amalgamed molar/wisdom tooth has been disintergrating, including the mercury. The root looks good however, and I do want to keep the tooth if possible as I have already lost 5. For the past few years, maybe 8, I have not been attending...
  20. B

    Candida disappearing with Calcium

    You need vitamin K (MK4) for proper calcium distribution.
  21. B

    Lab test in UK....

    for: lactate, pyruvate, beta- hydroxybutrate, acetoacetate thanks.
  22. B

    (Dentistry Question) I'm getting a crown and need to avoid metals..some advice needed (UK)

    I would go to a mercury free biological dentist for better crown materials.
  23. B

    Dizziness.

    I did get an xray as it seemed to be the only way forward and it was good news, although it has raised the inflammation levels in my body - bladder problems, my weak spot. The root looks very healthy, and the dentist says that a filler can be put alongside what mercury is left. However, the NHS...
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    Dizziness.

    I don't know what happened to the nicotine/long covid thread, but the dizziness that I was associating with it, is more likely to do with the disintergrating heavily amalgamed wisdom tooth, I have become concerned about the last week, so I have been reading up. It said that mercury will stop...
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    The Latest Long Hauler Research From Dr. Bruce Patterson

    Nicotine patches and gum, are being experimented with on the Ray Peat forum. Nicotine being a known spike protein antagonist at the ACE2 receptor, is apparently not addictive, the additives to cigarettes being the culprit.
  26. B

    Manganese : chelated v. ionic

    WaterOz has suddenly gone out of business in case anyone was thinking of ordering.
  27. B

    Me/cfs and methylene blue

    Thank you so much for that. Very interesting. I have tried many diets - raw vegan, macrobiotic, keto and the rest. This time it was out of desperation having suffered interstitial cystitis for a year. Giving up grains cured that immediately. I have not used medications for about 20 years or so...
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    Me/cfs and methylene blue

    Thank you for your interest and the link. I refuse all pharmaceuticals so no and yes I monitor it at home but have not done for a few weeks. Must do it soon. Recently I quit all grains and dairy and hope that will help with inflammation.
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    Me/cfs and methylene blue

    Thank you @Garz Yes I do have Lyme, and MCAS and high histamine. I gave up trying to treat Lyme a while back but have been getting back to it with Cats Claw and hopefully soon Rife. Maybe I should stop the MB till then. It was just the HBP that concerned me.
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    Me/cfs and methylene blue

    I'm back to trying it again but at a miniscule dose. If my blood pressure rises again I will try a herbal remedy to lower it. So I started with one drop in a glass of orange juice, and drank one quarter of it. That's pretty low. I took it in orange juice - a tip from the Ray Peat forum. I will...