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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. liverock

    collagen depletion

    I have received one reply from a collagen supplement manufacturer (NOW), on this question about collagen and hypertension:
  2. liverock

    collagen depletion

    If your losing a lot of muscle it might be worthwhile checking for BeriBeri. Most doctors dont check for this unless your an alcoholic. People losing a lot of weight sometimes try to put it back on by eating a lot more carbs which can deplete further the already low level of Thiamin (B1)...
  3. liverock

    Insurance company (United Healthcare) hardball tactics

    I used to regularly be able to access the LA Times website from Europe but no longer. It seems that over 30 of the top US 100 news sites are not complying with GDPR and are therefore blocked to Europeans.
  4. liverock

    Why Is the Stars and Stripes Flown Every 4th July In this English Village Church

    Happy 4th July to all American members! :balloons: Here in this 900 year old village in Northern England, the Stars and Stripes are flown every 4th of July from the local church tower for a very special reason. : The question is why is the Stars and Stripes being flown in this particular...
  5. liverock

    Transdermal B12 oils

    https://www.healthmonthly.co.uk/source_naturals_coenzymated_b2_60_sublingual
  6. liverock

    Help me make sense of these Aldosterone results?

    Thiamin (B1) deficiency can cause low aldosterone. https://www.ncbi.nlm.nih.gov/pubmed/7299493 Low Thiamin can also cause high cortisol and hyperplasia of the adrenal glands which can cause pain. https://academic.oup.com/jn/article-abstract/34/1/1/4725811 If you are not familiar with Thiamin...
  7. liverock

    MCAS and ANA

    http://www.mastattack.org/2016/07/patient-questions-is-mast-cell-disease-autoimmune/
  8. liverock

    B12 for probably non-ME/CFS symptoms

    @garyfritz, so glad to hear that you finally have made a full recovery from the restless legs/B12/mercury journey which seems to have been going on for so long. Also glad to know that my suggestion that you investigate mercury as your main problem was helpful.:thumbsup: On the Dr Amy Yasko...
  9. liverock

    shortness of breath

    High adrenaline and stuck in 'fight or flight' can be a problem on low carb diets due to low thiamin(B1), or if thiamin is adequate then inactivated thiamin can also be a problem. Folate is required to activate Thiamin: https://emedicine.medscape.com/article/116930-overview#showall Low...
  10. liverock

    This helps me,,, but why -- [Cold showers/baths]

    https://www.selfhacked.com/blog/12-reasons-embrace-cold/
  11. liverock

    Experiences with sleep apnea treatment amd ME/CFS

    DHEA seems to have been used for sleep apnea in the past, probably before cpaps became on the market and appears to have 38 patents for the treatment. This man appears to have come across it for his apnea treatment by accident...
  12. liverock

    Evidence-based medicine can have problems with the evidence

    https://www.independent.co.uk/news/science/glaxo-chief-our-drugs-do-not-work-on-most-patients-5508670.html
  13. liverock

    FDA Warns Of Kratom Harms Including Death

    Its 14 years since the Head of Research at pharmaceutical giant Glaxo came out and said "most of our drugs dont work." The NHS bill for drugs in 20016 was £15bn, using his statistics over half (£7.5bn) was being wasted on drugs that don't work and no doubt will be rising every year. Figures...
  14. liverock

    New Gastroenterologist actually knew about dysautonomia

    @Sushi Billy Connelly relating the trauma of his colonoscopy prep(the night before) :rolleyes: (not for those sensitive to toilet humor)
  15. liverock

    Sleeping! (calcium/magnesium ratio - hair analysis) (and no drugs)

    Taking increased amounts of magnesium can lower potassium levels which can raise blood pressure which maybe what is happening in your case. This is the wagon wheel in the article showing all the interactions with other minerals including potassium.(K)...
  16. liverock

    Sleeping! (calcium/magnesium ratio - hair analysis) (and no drugs)

    @Mary Trace Elements have articles on all the major minerals including how they relate to other minerals by David Watts the owner. This is the one on Magnesium in which he defines type 2 insomnia, (where you keep waking up) as a MG deficiency, but type 1 insomnia (where you have trouble...
  17. liverock

    question about B6

    Most people on PR who have high B6 (even those not supplementing) is probably due to the buildup of B6 caused by low cortisol prevelant among PWME. Adequate cortisol is needed for alkaline phosphatase to allow B6 to eventually enter cells .https://www.ncbi.nlm.nih.gov/pubmed/4301410
  18. liverock

    My journey to heal from CFS - diary

    Neck,dizziness,vertigo and motion problems can be caused by the Atlas joint at the top of the spine. When the Atlas joint gets out of alignment it can cause problems in other parts of the body including the gut and bowels as well as the autonomic stress response through affecting the vagus nerve
  19. liverock

    question about B6

    Getting a build up of B vitamins in serum is generally due to MTHFR genetic mutations preventing conversion of non active to active B vitamins. You need to take it slowly if you are moving to active B vitamins especially folate and B12 as they could cause overmethylation problems. If you...
  20. liverock

    How to Correct a magnesium deficiency? Magnesium Cofactors for Absorption?

    90% of your symptoms are the same as MERCURY TOXICITY, do you eat a lot of seafood or have many silver teeth fillings? Mercury builds up slowly and it eats up magnesium constantly as well as many other nutrients. Mercury is also a bully and will occupy the sites normally reserved for minerals...
  21. liverock

    Hypomagnesemia, hypocalcemia and hypokalemia - Help please.

    What is your sodium level?
  22. liverock

    Question re: Quercetin + Vit C from Vitamin Shoppe (US)

    @Gingergrrl You didnt mention the name of the supplement manufacturer, but I know Vitamin Shoppe sell Twin Lab Quercetin +Vitamin C You might be better contacting TwinLab directly and explaining your problem about a possible allergic response to a change in color of Quercetin. They...
  23. liverock

    Severe vitamin b12 deficiency.Cant get my b12 levels up please help!!!

    @J4son This is a good point made by @Eastman regarding thiamine supplementation possibly increasing B12 uptake. This mineral wheel shows how high zinc is a thiamin antagonist and probably substantially lowered your thiamin (B1) levels initially and thats why you cant increase your B12 until...
  24. liverock

    Plea to colleagues by doctor felled by ME

    @Countrygirl I think you already brought this up on another thread you started last August. http://forums.phoenixrising.me/index.php?threads/plea-to-colleagues-by-doctor-felled-by-me.53388/
  25. liverock

    Panic attacks and CFS again

    @Jemima37 All the symptoms you have mentioned seem to point to Estrogen Dominance. Ongoing stress will lower Progesterone upsetting the E/P hormonal balance which can cause high Estrogen, and cause panic and anxiety attacks. High Estrogen will also cause chronic fatigue by reducing the...
  26. liverock

    Article When the 'Holiday Season' Is No Holiday at all for Those With ME/CFS

    Wow Jody, this is bringing back memories of the early days of the Community Lounge when I sought solace in writing jokes after continually failing in my New Year resolutions, year after year, to start eating more chocolate.:) Thanks to you and all the Community Lounge members who pointed out...
  27. liverock

    Please would you consider doing a kindness to one of our community who is in dire circumstances?

    @Countrygirl Has anybody tried contacting the BBC DIY SOS programme, who may be able to do something about improving her property. They are normally interested in private properties for the programme, but perhaps could be persuaded to help in view of her extreme circumstances...
  28. liverock

    Breaking News: Immunotherapy Drugs Cause Autoimmune Diseases in Some Patients

    http://www.sciencemag.org/news/2017/11/powerful-new-cancer-drugs-are-saving-lives-can-also-ignite-diabetes-or-other-autoimmune
  29. liverock

    Is Folate inhibiting Thiamine (B-1) ?

    @alethea Don't despair, these are before and after pet scans of the brains of patients after Benfotiamine was used in a small scale recent Alzheimer's trial. ( red&yellow show highest active areas) A bigger trial using higher patient numbers is in progress and still recruiting...
  30. liverock

    Good article on Jen's film Unrest in The Telegraph today 24th Oct

    Life here in the UK will not seem the same without Jen and her inimitable smile.:):cry: