• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. invisiblejungle

    Recommendation of a reliable hair analysis lab?

    ARL and TEI are the only 2 hair-testing labs that don't wash the hair before testing, which supposedly is important for accuracy.
  2. invisiblejungle

    Anyone Tried Bill Bengston Yet?

    I had treatments from Equilibrium here in Chicago, which is the "home base" for Bill Bengston's therapy in the US. I had both in-person and remote treatments. I had 4 weekly treatments, and I felt temporarily worse after each treatment, but there were no lasting effects. I'm very sensitive to...
  3. invisiblejungle

    Impressive results from using GABA-B agonists. Why is this?

    This is a reliable source for phenibut: https://liftmode.com/calming/phenibut.html By the way, phenibut is in the same category as Gabapentin and Lyrica. They're all gabapentinoids (voltage-gated calcium channel blockers). Phenibut feels almost the same as Gabapentin but is more euphoric since...
  4. invisiblejungle

    Oxford peptides.

    Thank you Seven. Can you PM the doctor info?
  5. invisiblejungle

    Oxford peptides.

    Hi Seven, can you tell us more about how to receive this treatment? Thanks!
  6. invisiblejungle

    Making your own Mineral Supplements?

    A few places that sell bulk powders: http://www.bulksupplements.com/ http://purebulk.com/ https://pforlife.com/nutritional-supplements-dietary-food-ingredients/ http://nootropicsdepot.com/powders/
  7. invisiblejungle

    Who else here is in their 20's?

    This is a really good article about chronic illness written for social workers: https://www.socialworktoday.com/archive/070714p18.shtml "Imagine a person with a chronic illness as forever walking down a dividing line between the past and the future. Looking backward, he can see everything...
  8. invisiblejungle

    Gastroparesis - Problem w/Fluid Emptying Only - Need help with rare symptom / diagnosis

    Hi @Howard , I have a j-tube as well. If you haven't already, I recommend joining Inspire.com, since they have several forums dedicated to gastroparesis and feeding tubes. https://www.inspire.com/groups/g-pact-gastroparesis-and-cip/ https://www.inspire.com/groups/agmd-gi-motility/...
  9. invisiblejungle

    Suggestions wanted now that PheniTropic (for sleep) is off the market

    Hello Scotty, I looked up PheniTropic, and it looks like the main ingredient is phenibut. Phenibut is available from many sources; they just can't explicitly label it as a dietary supplement. I get phenibut from Liftmode: https://liftmode.com/calming/phenibut.html By the way, phenibut is a...
  10. invisiblejungle

    Who else here is in their 20's?

    lol maybe not enough hip-hop heads here to get the joke? ;) I'm 35, been ill since 23. So that's 1/3 of my life. And my decline was swift, almost literally overnight. I'm pretty much homebound, have a feeding tube, can't tolerate much activity besides reading. Honestly, I'm surprised I've kept...
  11. invisiblejungle

    Newsweek: Pentagon May Have Released Weaponized Ticks That Helped Spread of Lyme Disease: Investigation Ordered

    Here's an interview with the author of this book, for those who want a summary of the main points: https://www.thehighersidechats.com/ed-haslam-dr-marys-monkey-the-polio-vaccine-and-lee-harvey-oswald/
  12. invisiblejungle

    The Naviaux Protocol (Remove the Trigger / Refill the Tank / Flip the Switch)

    Hi Michael, Are you still following Ari Whitten's program? Just wondering how it's going and if it's worth buying.
  13. invisiblejungle

    100% Convinced my CFS/Fibro is Mycoplasma infection based

    I'm rooting for you man! Wishing you the best and looking forward to your updates.
  14. invisiblejungle

    Evaluating intensive IV Ozone results from Cyprus / Thailand / Bali clinics (2x daily / 5 weeks)

    If you end up going to Cyprus, let me know and I'll meet you there! ;)
  15. invisiblejungle

    Bioresonance Therapy.

    Cool, hope it works out for you. The BICOM was the original bioresonance machine.
  16. invisiblejungle

    How to help when overstimulation gets really bad

    Thanks Bearfan. I had heard of Alexandru Barboi, and I hope that you have a good experience with him. Like yourself, I have suicidal ideation because I've been mostly homebound and bedridden since age 23. I'm turning 35 soon, and it feels like my life was stolen from me. Even improving just a...
  17. invisiblejungle

    Five ways to reduce your ME/CFS "wired but tired" hyperaroused brain state

    I ordered a huge box of amoxicillin from an online pharmacy 10 years ago, and even though they're way past expiration, they still work fine.
  18. invisiblejungle

    Unfolded Protein Response and A Possible Treatment for CFS

    I don't know. The poster was asking specifically for UDCA rather than TUDCA, which is available as a supplement. Interesting thing about TUDCA. It's found naturally in large amounts in bear bile, and Asian bears have a lot more than American bears. Bear gallbladders have been used in...
  19. invisiblejungle

    Anyone tried Limbic Retraining: Dynamic Neural Retraining System?

    I've tried some far-out things (like radionics), but there is no way that I'm going to walk around on words on the floor and say, "Great choice, INVISIBLEJUNGLE, I love you so much and I'm proud of you!" :p
  20. invisiblejungle

    Bioresonance Therapy.

    Do you know the name of the bioresonance machine your practitioner uses? There are a bunch, most of them made in Germany.
  21. invisiblejungle

    Unfolded Protein Response and A Possible Treatment for CFS

    I found several sources for UDCA: https://www.mimaki-family-japan.com/item/list?keyword_pc=Ursodeoxycholic+acid&x=0&y=0 http://www.buypharma1.com/Products/search/?keyword=Ursodeoxycholic+acid brandmedicines.com goldpharma.cn I've ordered from all of these pharmacies before and can vouch for...
  22. invisiblejungle

    Evaluating intensive IV Ozone results from Cyprus / Thailand / Bali clinics (2x daily / 5 weeks)

    I don't see why someone has to go to Cyprus to try ozone treatment. There are doctors all over who offer it. http://www.oxygenhealingtherapies.com/my_ozone_doctor.com.html https://www.drsozone.com/ozone-therapy-practitioner-directory/ https://aaot.us/search/
  23. invisiblejungle

    Hazards of 5G technology

    5G hasn't been released yet. The 5G network is going to be rolled out over several years. That being said, the only way to avoid it would be to move to a wilderness area. If you're EMF-sensitive, there are ways of blocking EMFs. http://www.lessemf.com/
  24. invisiblejungle

    BETRAYAL by the BRAIN: Jay Goldstein, MD - Has anyone read???

    You can get a pdf of Tuning the Brain by searching for "Jay Goldstein" here: www.libgen.io If you're interested in IV lidocaine, you could try finding a neural therapy practitioner in your area. Neural therapy is a modality that started in Germany about 100 years ago; some people call it...
  25. invisiblejungle

    How to help when overstimulation gets really bad

    Hi Bearfan, can you tell me the name of the doctor you saw? (I live near Chicago). Thanks!
  26. invisiblejungle

    Tips for Finding Reliable Prescription-Free Online Pharmacies

    There are 2 types of online pharmacies: those that sell controlled meds like pain meds and those that only sell non-controlled meds. For non-controlled meds like baclofen and tianeptine, there are plenty of reputable sources. My main sources are brandmedicines.com, goldpharma.cn...
  27. invisiblejungle

    Anyone here used 'buy-pharma.md'?

    Buy-pharma is a top-notch vendor. They ship from India, so delivery time will depend on where you live. Usually 2-3 weeks.
  28. invisiblejungle

    I need to sleep! Help !!!!!

    Hi Learner, Can you provide anymore info regarding ornithine/citrulline and how they can help with sleep? I thought I had tried everything when it comes to sleep remedies, but this is new to me! :)
  29. invisiblejungle

    Are You Guys Able to Get PainKillers (Hydrocodone) It the only thing that Helps me

    Hydrocodone is one of my "emergency" meds that I take when I absolutely need to get something done. (like take a shower lol) Unfortunately, with the crackdown on opiates, it will be very difficult to get a prescription "just" for ME/CFS. It's a huge issue for legitimate pain patients. I know...