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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

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    Fibro & MCS mattress topper ideas

    Cool! Thanks for that idea :-) I'm sorry you're even more limited, though, that sucks.
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    Fibro/CFS Doctors in the D/FW Area ?

    I'm glad you've found a good one! I've seen that site, but was hoping for personal experiences with the names on the list - it still feels like an awful crapshoot since you don't know if lists like that are friends-of-the-doctor or what. But thank you for suggesting it :-)
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    Fibro & MCS mattress topper ideas

    thanks for the suggestion. I will check into that.
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    Fibro/CFS Doctors in the D/FW Area ?

    Man, that stinks about your doc :-( My folks live near Houston, and sometimes I wish I still lived out that way - seems like a lot of what I end up needing is more available there than in the D/FW area. But that pesky thing with the hubby wanting to stay employed and all - that just keeps us...
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    Fibro & MCS mattress topper ideas

    THere's an interesting idea! THanks :-)
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    Fibro & MCS mattress topper ideas

    It's beginning to look like the hubby may just have to learn to fluff :-/ That's unlikely, but it seems that the low-maintenance requirement is really the show-stopper for mattress-pads, anyway.
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    Fibro/CFS Doctors in the D/FW Area ?

    I just downloaded Dr Kippel's "new patient survey"! Holy moly! It's like 24 pages! no response to my query email yet. Looks like he's still a little further than I'd like to go - but since that's the only idea so far, I might have to try it anyway.
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    Fibro & MCS mattress topper ideas

    I have not heard of kapok - I will go look into that :-)
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    Fibro & MCS mattress topper ideas

    30 days is the usual return-window for things, though - so if it won't reach tolerable levels within about 2 weeks, it really needs to be heading back home to it's maker. (unless it's got a longer return-window)
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    Fibro & MCS mattress topper ideas

    If I was able to care for it myself, that would be one thing. Convincing the husband to do the things that I can't do, when he doesn't feel the pain or appreciate the difference that the physical aids make in my life, has traditionally been a rather different story. He seems to think it's...
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    Fibro & MCS mattress topper ideas

    The down idea seems like a good possibility, but organic doesn't necessarily equal non-chemically-irritating, unfortunately, so I was hoping for individual product experiences there. Also - doesn't down need to be "fluffed" regularly? I know my duvet has to be shaken vigorously from time to...
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    Fibro & MCS mattress topper ideas

    Thanks for the sympathies :-) When we bought our mattress, we were offered hypoallergenic pillows as part of the deal. And after the first night I used them, I thought I was coming down with the flu. I spent the next couple of nights on the couch (closer to the toilet and the kitchen, so...
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    Fibro & MCS mattress topper ideas

    LOL! that looks very similar to the mattress pad I do have, actually. But no, it's not very cushy. When I bought it, I was only considering MCS, and latex and wool allergies - fibro didn't happen until later. Now I really could use that cushion, just not sure how to achieve it given the...
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    Light, nice looking wheelchairs online?

    Absolutely! I use a lot of leverage instead of muscle. I push down on the back and lift up slightly on the handlebars to get the front wheel into the back of my van then I push forward on the handlebars, and and push up-and-forward on the back to roll it forward into the vehicle. No disassembly...
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    Do your children have ME/CFS?

    I have 3 daughters, ages 10, 8, 2. Each was breastfed for 2+ years. So far, I'm the only one with CFS/Fibro/MCS/IBS/ETC. The kids and the hubby and all known extended family are healthy as horses for the most part.
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    Fibro & MCS mattress topper ideas

    I have fibro and a bunch of other junk ;-p I've been considering a mattress topper to help with my sleep-issues, but I seem to be having trouble determining what products will be safe for me to use. I am allergic to wool - this does not mean I just have to cover the wool, or use softer...
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    roommates

    I've had all sorts of room-mate/house-share situations, and most of the ones that went bad could have been avoided if both parties had simply been more up front about expectations and pet peeves. A lot of people feel that too much information will be a turn-off, and it well may. But you *want*...
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    Cooling vest???

    I have been using kafka's cool ties when I go out of the house. I usually keep several frozen and one in the fridge. When I go out, I wear the fridge-one, and put the frozen-ones in a small cooler with an assortment of cold drinks. They keep the drinks cold as they thaw and soften. I'll...
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    Light, nice looking wheelchairs online?

    I have one of these: www.travelscoot.com It is light enough that I can lift it *myself* and then drive *myself* around wherever I want to go. My hubby now begs *me* to go to the garden centers with *him* instead of the other way around, because I can tow a wagon behind my scooter ;-> You can...
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    Fibro/CFS Doctors in the D/FW Area ?

    Ok, I thought I replied earlier, but I don't see anything - With the fog I've got today, there's just no telling what happened. I sent Dr Kippels a query-email, and have looked over his website. Thanks! Still open to more suggestions, of course :-) The more the merrier, or something like that. ;-p
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    Fibro/CFS Doctors in the D/FW Area ?

    I tried searching for info, but I'm having a terrible day, and it was just overwhelming trying to *find* anything... so I apologize if this has been asked and answered elsewhere. I have been diagnosed with Fibro/CFS by my VA doctor. Before my diagnosis I got lots of testing and a reasonable...