Just back from Endo and want to write all I can remember said before it disappears into the black hole that is my brain. She asked a ton of questions, it appears she had looked at my records prior and during the time there. She checked eyes. She said pituitary looked ok on the January MRI, she did not think any of the supps and med currently taking would affect cortisol. She kept mentioning Biotin? so I need to ck my multivit to see if it has that. apparently that can affect cortisol. After she reviewed my records I think she is dismissing my thyroid, she said the FT3 and FT4 levels were fine and the TSH 'maybe' elevated due to the estrogen treatment I have been on since April. I then asked would that make me more fatigued and she said no so that still a mystery.
She acknowledged last two Cortisol were low. Did a stimm test today (I did not want to wait if no good reason to). They took a baseline Cortisol, and I think the other two were DHEA and ACTH but not sure. She also took a Prolactin? then they gave me Cortrosyn(sp?) and took another Cortisol 30 mins later. Then 1 hour later took another Cortisol, DHEA and ACTH? Sadly I am feeling like once again everything will come back normal but that is probably becuase that is usually what happens. She rulled out Primary AI already (said I would be in hospital if I had that). So this test I guess is to verify secondary AI. She said if it comes back low (double the Cortisol basline?) then she would trat with hydrocortizone(?) .
My concern is I did feel slightly better today but this test should be definitive regardless of how I feel. She also emphasized using the CPAP regularly. That is all I can remember. I think I have a bug so she initially was going to have me come back but I said I want to move forward with the tests. Honestly, if this doesnt show anything I dont know what Ill do. I just dont get it, I can feel so ill, fatigued ect and nothing reallly able to explain. It is in God s hands at this point.