Lillybelle
Senior Member
- Messages
- 110
- Location
- Australia
@heapsreal the reality is Griffith is majorly funded by the Qld Govt Smart State scientific govt funding to the tune of 4million.Lets hope they dont listen to the UK crap and listen to their own researchers at Griffith uni who have been partially funded by the state govt as well as a couple of philanthropists interested in solving this problem who have donated heavily into several projects that griffith have been involved in on cfs/me. Maybe there is someone in the state government that realises if they wont people off disability then they are going to have to improve research into many chronic conditions and find good treatments. Maybe the reason behind the federal govts initiatives to try and improve medical research.
Currently Griffith are presenting information on cfs/me at the International Cytokine and Interferon Society Conference in Melbourne. http://www.cytokines2014.com/
http://www.griffith.edu.au/health/national-centre-neuroimmunology-emerging-diseases article down the bottom of the second link talks about this conference.
The private funding you discuss is $800,000 and is an ANZ trustees grant. So not individuals but a trustee investment from Mason Research Grant of $800,00.
We need more public funding of research so people who are disabled can afford it. Privately funded clinics 99% of us will never afford. ME/CFS needs greater public awareness via PR/Social Media and user generated content in Aus.
Similar to MS. MS affects only 25% of those who are affected by ME yet their public awareness and public funding is 1000% of ME.
We need a Phoenix rising style blog in Aus which is searchable and has research the public can read and understand.