Why should we start from the default position of assuming that ME-related OI is inherently different regarding appropriate treatments compared to OI without an ultimate known cause? Why cannot a symptom simply be treated as a symptom unto itself - "permissible" symptoms such as depression in ME certainly are, and pain in ME sometimes is as well. Why is there this huge exception for biological and objective symptoms caused by this one disease, which doesn't apply to psychiatric symptoms caused by the same disease, or biological symptoms caused by any other disease?I absolutely agree that PWME who also have anaemia or Addison's disease causing OI should have the necessary tests for ANOTHER cause for OI on top of ME. But we are working from the starting point that it seems that 95% of PWME have OI, which presumably means that MEs cause OI as well and that sort of OI we have no clue what to do about as far as I can see.
It's illogical, irrational, inconsistent, and inhumane.