Come on, there MUST be some Kiwis out there who have discovered this amazing site and could let me know if we have any CFS specialists? And if we have.......and if you've been to one......what happened?.
I'm not from there but I have heard of docs there. There's a bunch of support groups too. See http://www.anzmes.org.nz/ and this news about free care! http://www.prohealth.com/library/showarticle.cfm?libid=16971
http://www.stbenedictshealthcare.com/ These guys use GcMAF and do collections for nagalase testing for both New Zealanders and Australians. I've chatted with a couple of the doctors there via email. No experience with them as far as being a patient though.
Thanks for going to all the trouble to research my query........much appreciated......and I'm going to get onto it pronto!
Yes uk, she's the only one I'm aware of but unfortunately at the top end of the country, whereas I am way way down-under! Still, prob worth the trip to get it all sorted. Thanks.
Hi I would try to educate your local GP on the basis of info on this site...and research papers....I'm orig from down under and had a friend with ME 30 years ago who found NZ GP's very helpful and aware of the seriousness of ME. This site is fantastic and the new primer- add oxygen and IV saline and you are up to date. Just then need to see if Mabthera/rituximab...are for you/in your budget and or someone will prescribe them. Ros Vallings is certainly up to date and may be willing to talk to your GP. Just beware many NZ GP's are UK trained ...ie NICE Guideline susceptible....
I was wondering about doctors who treat HIV+ patients in Australia and New Zeland. They run similar immunologic blood tests that patients with CFS get (EBV HHV6, CD4,CD8). Why can't they do the blood tests for CFS patients? At least CFS sufferers would know if they have reactivated viruses and they could be treated with antivirals such as Famvir or Zovirax.
