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Does anyone know where these POTS info pages can now be found?

taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
Im trying to get together a list of POTS articles from sources people would trust to put in the resource area for people to use to give to family/friends to help them understand it better.

A couple of the ones I have printed off from before and planned to put into the list, the articles are no longer at the addresses I have for them at which they were previously at. So does anyone know where the following pages have been moved too? or are they forever gone???

- The page which used to be at Dinet on POTS myths.

- The John Hopkins page on POTS (they used to explain POTS in about 13 lines). It used to be in their arrhythmia section of their site.
.......

If anyone knows of any others or news stories which are suitable to copy or give the link to people (ones suitable for even those who have no medical knowledge).. please put the links in the POTS thread in the resource section of this website.

Note so far Ive got the POTS news story on the girl who is often mistaken for being drunk and that POTS news story on the help dog links. It seems POTS news stories or easy to understand POTS stuff is very hard to find online! I cant believe a couple of good pages seem to be gone.
 

ahimsa

ahimsa_pdx on twitter
Messages
1,921
So does anyone know where the following pages have been moved too? or are they forever gone???
...
- The page which used to be at Dinet on POTS myths.

Here's an extract from http://dinet.org/index.php/information-resources/pots-place/pots-overview-8
As with many disorders that have received little research, there are numerous false assumptions made about POTS. Many of these assumptions stem from the lack of information available about this disorder. This page was created in hopes of clarifying some of these false assumptions. Suggestions for this page can be sent to: Dysautonomia Information Network

Myth: POTS symptoms only occur while standing.

Many patients report symptoms occurring while sitting or lying down. Standing does exacerbate symptoms.

Myth: Everyone with POTS faints.

Many people with POTS have never fainted.

Myth: POTS symptoms are present at all times.

The symptoms of POTS can vary greatly from day to day and hour to hour.

Myth: Most doctors will be competent in treating POTS patients.

Some doctors have never even heard of POTS. It is essential to one's well being to seek out a specialist.

Myth: People get POTS because they are lazy and deconditioned.

People can get POTS symptoms due to prolonged bed rest, however the symptoms should diminish as the person becomes more active. The origins of chronic orthostatic intolerance are certainly distinct from laziness or deconditioning.

Is this the information you are looking for?

It's a fairly short list. I seem to remember seeing a longer list sometime but don't remember where.