Tired of being sick
Senior Member
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- Western PA USA
I have a strong feeling that not very many of you had this done..
Having Vascular Disease Screening done is extremely important for people who have POTS.
I myself had cardiologists tell me there are no tests to check my entire circulatory system for underlying
causes of blood flow problems,even though I was diagnosed in the ER with Monophasic blood flow circulation in my right superficial femoral artery using doppler ultrasound.
I know for a fact that I have monophasic blood flow problems in at least my limbs,brain,and most likely
my digestive system.
POTS, even though it is secondary,POTS can be the most disabling condition in CFS/ME or any other disease that POTS is secondary to and I will prove it.
Without adequate amounts of blood supplied to ALL of your muscle tissues,skeletal system, organs, especially your brain it WILL cause every CFS/ME symptom and then some..
How do I know this?
I have Livedo Reticularis on ALL of my limbs including my right leg in which Livedo Reticularis is a true indicator of underlying blood circulation problems
My brain MRI impression read as follows:
Probable chronic ischemic change in deep white matter
Digestive problems such as bloating,nausea,IBS,and a never ending cycle of constapation,to regular to loose
to diarrhea to water then back to constipation
Monophasic blood flow is as bad as it gets for blood flow besides loosing all blood circulation.
Triphasic blood flow circulation is the healthiest blood circulation
Biphasic blood flow circulation is on the fence between healthy and poor blood circulation
Monophasic blood flow circulation is on the fence between poorest and no blood circulation at all
meaning that the only thing worse than monophasic blood flow is amputation of limbs,stroke,
heart failure and organ failure..
Monophasic blood flow causes large amounts of arthritis throughout all areas of the body that is affected by monophasic blood flow including arthritis in uncommon parts of the skeletal system like the sternum for example as I have arthritis in my sternum.
I have tender spots over my entire body as well including my scalp..
This is all blood flow problems in my book
Blood is the giver and taker of life period.
Trust me,I know the pain that losing blood supply causes as I have Keinbock's disease in my right
wrist in which the lunate bones loose blood supply causing pain liken to a broken wrist.
I know what a broken wrist feels like as I had both of mine broke at the same time.
The left was a compound fracture and the right was fractured..
Here is a link to a boat load of tests that can be done to find actual debilitating blood circulation problems:
I as well as all of you who have POTS are now loaded with a ton of undeniable ammunition and armor.to place in front of all doctors who try to pull the wool over our eyes !!!
Having Vascular Disease Screening done is extremely important for people who have POTS.
I myself had cardiologists tell me there are no tests to check my entire circulatory system for underlying
causes of blood flow problems,even though I was diagnosed in the ER with Monophasic blood flow circulation in my right superficial femoral artery using doppler ultrasound.
I know for a fact that I have monophasic blood flow problems in at least my limbs,brain,and most likely
my digestive system.
POTS, even though it is secondary,POTS can be the most disabling condition in CFS/ME or any other disease that POTS is secondary to and I will prove it.
Without adequate amounts of blood supplied to ALL of your muscle tissues,skeletal system, organs, especially your brain it WILL cause every CFS/ME symptom and then some..
How do I know this?
I have Livedo Reticularis on ALL of my limbs including my right leg in which Livedo Reticularis is a true indicator of underlying blood circulation problems
My brain MRI impression read as follows:
Probable chronic ischemic change in deep white matter
Digestive problems such as bloating,nausea,IBS,and a never ending cycle of constapation,to regular to loose
to diarrhea to water then back to constipation
Definition of ISCHEMIA
: deficient supply of blood to a body part (as the heart or brain) that is due to obstruction of the inflow of arterial blood
Monophasic blood flow is as bad as it gets for blood flow besides loosing all blood circulation.
Triphasic blood flow circulation is the healthiest blood circulation
Biphasic blood flow circulation is on the fence between healthy and poor blood circulation
Monophasic blood flow circulation is on the fence between poorest and no blood circulation at all
meaning that the only thing worse than monophasic blood flow is amputation of limbs,stroke,
heart failure and organ failure..
Monophasic blood flow causes large amounts of arthritis throughout all areas of the body that is affected by monophasic blood flow including arthritis in uncommon parts of the skeletal system like the sternum for example as I have arthritis in my sternum.
I have tender spots over my entire body as well including my scalp..
This is all blood flow problems in my book
Blood is the giver and taker of life period.
Trust me,I know the pain that losing blood supply causes as I have Keinbock's disease in my right
wrist in which the lunate bones loose blood supply causing pain liken to a broken wrist.
I know what a broken wrist feels like as I had both of mine broke at the same time.
The left was a compound fracture and the right was fractured..
Here is a link to a boat load of tests that can be done to find actual debilitating blood circulation problems:
Vascular Disease Screening and Prevention - New York ...
Carotid Duplex: This ultrasound procedure can detect carotid artery disease – blood clots, plaque build up, and other blood flow problems in the carotid arteries – early, before it causes any symptoms. When the disease is detected early vascular specialists can perform procedures that are effective in preventing stroke.
Aorta Ultrasound Scan: An aorta ultrasound exam can diagnose aneurysms that develop in the abdominal aorta, and is used to follow patients who have undergone procedures including aortic endograft and aortic open repair aneurysm.
Arterial Duplex Imaging: Using this high-frequency ultrasound test vascular specialists can visualize the arteries in the legs and the velocity and direction of blood flow in those arteries.
Treadmill Exercise Testing for Claudication: Doctors use treadmill testing to detect peripheral artery disease in patients who have pain in their lower limbs (claudication). During a treadmill test they can evaluate how exercise affects ankle-level blood pressure and analyze the relationship between claudication and vascular function.
Digital Photoplethysmography (PPG) with Thermal Measurement: Digital photoplethysmography (PPG) is an imaging test used to detect changes in blood flow at the microvascular level in the fingers and toes in people with Raynauds disease.
Ankle Brachial Index (ABI) with Pulse Volume Recordings (PVR): Doctors use these tests to measure blood flow and detect arterial blockages in the arms and legs. Together the tests help determine the presence, severity, and location of peripheral arterial occlusive disease.
Renal Artery Duplex Scanning: This imaging test evaluates blood-flow velocity and patterns in the aorta and renal arteries to help diagnose and locate blockages in the vessels and damage to the kidneys from chronically poor blood flow.
Dialysis Access Evaluation: This ultrasound exam helps vascular specialists map veins and determine which can be used for hemodialysis access.
Thoracic Outlet Obstruction Evaluation: Doctors use a combination of imaging studies including chest x rays, CT scans (in some cases with 3-dimensional reconstruction to show compression of the structures at the thoracic outlet), angiography and venography, MRI, ultrasonography, electromyography (EMG), and nerve conduction studies to diagnose thoracic outlets obstructions and determine the most effective treatment.
Vein Mapping for Arterial Bypass: Before performing surgery to perform a bypass, surgeons use preoperative ultrasound imaging to determine which vein segments might be used for bypass grafts.
Venous Ultrasound Scan of the Upper and Lower Extremities: This ultrasound exam shows blood flowing through blood vessels and can be used to detect deep vein thrombosis (DVT) and superficial vein thrombosis (SVT).
Diagnostic Tools and Technology
Diagnostic Angiography: Angiography is a type of imaging test that allows doctors to view blood vessels throughout the body and diagnose blockages, enlargements, clots, and malformations. An angiogram to study the arteries is called an arteriogram; one to study the veins is called a venogram.
CT Scans: A computed tomography (CT or CAT) scan is a noninvasive imaging test in which computers combine special x-ray images to produce cross-sectional images of internal organs, bone, soft tissue and blood vessels, allowing radiologists to diagnose vascular problems.
TeraRecon/Aquarius: This new technology allows vascular specialists who are planning an endovascular stent graft repair of an aortic aneurysm to create and analyze a three-dimensional reconstruction of a computed tomography angiogram. These images help ensure proper sizing and placement of the graft.
MRI: Magnetic resonance imaging (MRI) uses a powerful magnetic field, radio frequency pulses, and a computer to produce detailed pictures of organs, soft tissues, bone and virtually all other internal body structures. Detailed MR images allow physicians to better evaluate various parts of the body and certain diseases that may not be assessed adequately with other imaging methods such as x-ray, ultrasound or computed tomography (also called CT or CAT scanning).
Zeego: Specialists at NewYork-Presbyterian now use a new vascular imaging system (Zeego) that employs X-ray technology to image blood vessels. This angiography system allows doctors to move a C-shaped arm to almost any position around the patient, and to visualize internal organs from all sides.
Dyna CT: This new system allows vascular specialists to create CT-like images of soft tissue, and enables them to differentiate between normal and abnormal tissue to visualize, for example, brain tissue and intracranial hemorrhages.
I as well as all of you who have POTS are now loaded with a ton of undeniable ammunition and armor.to place in front of all doctors who try to pull the wool over our eyes !!!
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