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Misfit Toy - Are you able to take magnesium and/or potassium? Sometimes one or the other will help with muscle spasms.
Excellent idea! It may take magnesium injections to get enough into the system to make a difference.
Dr. Jay Goldstein was often the last stop for desperate people. He treated over 20,000 ME/CFS patients, and by the end of his career, he could significantly help almost anybody. About twice a week, he would have people tell him that if he couldn't help them, they would kill themselves. He never failed to deliver. For people like these, or other people who came in in terrible shape, sometimes being carried, he had what he called his "resurrection cocktail". It was a combination of IV ketamine, IV lidocaine, IV TRH, IV ascorbate, nimodipine, and gabapentin. (I can give give you quantities if you want). This "cocktail" never failed, although obviously it was a temporary solution while he worked out a more lasting treatment. If you can get your doctor to give you this, it can allow you to take a huge step forward. And if this is too much for your doctor, see if he'll go for just IV lidocaine, which helps almost everybody, and is quite safe. The dose is 200 to 300 mg in 500 ml of normal saline infused over two hours. This alone, repeated periodically, is an extremely effective treatment for ME/CFS.
For more details, please see
Betrayal by the Brain. (I just finished reading it tonight.) Goldstein lists a number of medications which are tried in series until the patient is asymptomatic or nearly so; these work for the majority of ME/CFS patients. The book is extremely technical, but with the cooperation of your doctor, you should be able to get a lot of benefit from it. The follow-up book
Tuning the Brain takes up where the first book left off, and allows the skilled practitioner to, in Goldstein's words, "significantly help almost every patient." Any skilled doctor can do this, but it takes someone with a lot of intelligence, patience, and a willingness to work outside the boundaries of traditional Western medicine. Western medicines are used, and are used exclusively; they're simply used in a very unorthodox way that few people other than Dr. Goldstein could understand. Fortunately, he provides a "cookbook" method for using these medications, so a complete understanding of all aspects of his theory is not required.