• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

"Last Word on Nothing" Article - Part 2

slayadragon

Senior Member
Messages
1,122
Location
twitpic.com/photos/SlayaDragon
Here is the second half of Julie Rehmeyer's story in "Last Word on Nothing," which goes into the politics of the disease, the current issues with the definition, and her return to functioning via mold avoidance.

I am really pleased that Ed Yong, one of the most influential science writers, has just tweeted a link to the story to his 51k+ followers. So a lot of science writers and people interested in science will end up seeing it.

I am very happy with this story (and grateful for the enormous amount of work that Julie put into it), and hope that a lot of people connected to the M.E. community will end up reading it. Hits do matter, in terms of getting future coverage. So please share!

http://www.lastwordonnothing.com/20...cal-unhelpful-about-chronic-fatigue-syndrome/