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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My NK cell results are back, and they are low. Is there a tx plan for this?
My results: 2 LU30
Normal Activity: 7 - 250 LU30
Those are all good and legitimate questions @Jonathan Edwards and that is why I think we need larger and deeper studies on patients with true ME, otherwise we'll keep on being left with doubts and probably miss an important piece of the puzzle.Can I ask how the sample was taken, how long it took to get to the lab and what lab did the test? If a lab has a range from 7 to 250 it is hard to see what that can mean. If it is quite OK for some people to have thirty five times as much function as others and the others still be normal it is hard to know what real life function they can be measuring.
According to Quest's website, the actual test is performed by the Nichols Institute in California and has to follow their "short stability protocol."Dr. Derek Enlander in NY tests for NK cell function as well. A large mainstream lab here - Quest Diagnostics tests for it. It is collected and tested right away like any other blood test.
AHCC?Besides antivirals which I'm on so my NP wants me to try AHCC.
There are some threads here where @heapsreal talks about it, his experience, dose, cost.
AHCC?
Read more: A Closer Look at Natural Killer Cells In Chronic Fatigue Syndrome and Three Natural Ways to Boost Them http://www.cortjohnson.org/blog/201...ic-fatigue-syndrome-three-natural-ways-boost/
Gingergrrl Of note is that one must use 10-20 mg Melatonin in order to have an effect on the immune system. I take 2.5 as more leaves me groggy into the next day.
I am, however, intrigued by the AHCC. What brand and dose are you taking? This article shows a significantly greater response with Maitake and Shiitake combo than AHCC alone. Is there a reason doctors recommend AHCC over that combo? Seems might be good to pulse with all 3 different extracts?
As for Colostrum, is anyone using it with success? There must be a good reason that Klimas et al only use Inosine, but I prefer to throw more at this thing if there's a chance it will help.