Simon
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June Issue of the Global Chronicle out now, and it's another goodie:
For me, the highlight is Llewelyn King's brilliant proposal for a "Mothers for ME March on Washington" wearing Blue Sashes, slated for May 12 next year, ME Awareness Day.
Other magazine highlights include:
For me, the highlight is Llewelyn King's brilliant proposal for a "Mothers for ME March on Washington" wearing Blue Sashes, slated for May 12 next year, ME Awareness Day.
I envisage about 100 mothers of ME/CFS sufferers walking through the Capitol
wearing distinctive sashes; a very dignified demonstration -- with lots of
handouts for anyone who wants one.
Marchers don't have to be confined to mothers. But if mothers predominate,
there will more media attention than if it is just a general demonstration. I think
if everyone is wearing, say, white with a blue sash, and women far outnumber
men, that will have impact.
There is a long and effective history of mothers en masse changing history:
South Africa and Northern Ireland are two examples.
The aim of this demonstration should be to inform the 113th Congress and serve
notice on the agencies of government that the ME/CFS community wants parity
in research dollars with other diseases that are more in the public eye – and
right now.
This demonstration – and there is nearly a year in which to plan it -- should be
seen as the beginning of something big and enduring, not just a one-time or
even an annual event.
Other magazine highlights include:
- Short report from the 2014 Invest in ME conference
- Update on the ambitious "Science to Patients" video project: "The webinars that have been posted so far, have more than 145,000 views.This project has resulted in the establishment of the ME Global Chronicle."
- The story so far on the Lipkin Microbiome crowdfund appeal: money raised, media buzz and conference action [ok, I wrote this, but it's worth a read anyway ]
- ME News from around the world
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